Snickers Really Satisfies – My Urge to Worry!

Tuesday evening the kids and I were at the grocery store. Jed was entertaining himself by looking at the candy, which, as I’ve already said, the poor child has no concept of. He doesn’t want to eat any of it, he just likes the pretty colors!

He grabbed a Snickers bar off the rack and held it out to me, saying “Daddy lunch!”

Well, how sweet is that? So I told him to hand it to the cashier so we could get Daddy a treat.

He handed it to her, saying “Here you go, lady! Daddy lunch!” I just love hearing my little boy speak! Melts my heart with his sweetness, you know?

So we got home and gave Darrel his candy bar, telling him the story of how Jed wanted Daddy to have a treat. Aw…

And somehow, in the “eat dinner, take showers, read bedtime stories, clean the kitchen, put the kids to bed” routine, we lost track of the Snickers bar.

Wednesday morning, Jed woke up before me and went to play in the living room alone. He wasn’t up for long before me, based on the timeline, but it was enough time for him to find the Snickers bar, figure out how to open the package, and eat 3/4ths of it!

I discovered my sweet son standing in the middle of the living room with chocolate smeared all over his face when Zac and I woke up.

Gnawed off very unsafe yumminess

Gnawed off very unsafe yumminess

Honestly, at that moment my thoughts went “Oh man! The fructose is going to wig him OUT today, and we’ll probably have some bad diapers with blood in them. This is awful!”

Then I got the candy bar away from him (he didn’t even put up a fuss!) and went to throw it away, but I wanted to see exactly what the ingredients were before I tossed it. I needed to know what I was up against, after all. And after reading the ingredients?

I felt like throwing up.

You could not POSSIBLY create a worse food for Jed. The only thing I can imagine would be worse for him would be a big bowl of milk and melted butter, with a jar of peanut butter, three cups of sugar and a few eggs mixed in for good measure.

As a reminder, he has a confirmed IgE allergy to EGG, a probable IgE to PEANUT, a DAIRY intolerance, and has FRUCTOSE MALABSORPTION.

This is what I could read of the label (he didn’t open the package nicely, after all):

It's like a laundry list of all the things Jed SHOULD NOT eat!!

It’s like a laundry list of all the things Jed SHOULD NOT eat!!

Um, yeah. Every kind of milk, many types of sugar, peanuts and egg! Dear Lord!

So I got out our “allergy kit” (with the Benadryl and Epi-pens) and kept it close while we got ready for speech therapy. We actually ran a little late because I spent the first 30 minutes I was awake watching Jed like a hawk.

He seemed okay, but he screamed when I washed his face. Normally he loves when I wash his face, so this is unusual. It reminded me of the sensitivity he got during his last peanut reaction, so I was on guard.

Nothing else happened, so we went to therapy. I warned his therapist of his Snickers exposure and told her I’d be close by if she needed me. We went over his Benadryl and Epi-pen treatments when we started therapy months ago, but I wanted to assure her I wasn’t going to be far away and to remind her of what she needed to do just in case.

When I collected him at the end of the hour, he was still just fine! His therapist said he was a little “off” today; more argumentative and belligerent than usual, but that after he’d shoved a little kid down and been told “no, Jed, we’re soft with our friends” he went over – without prompting – hugged the kid and said “Sorry, friend!”

So, yeah, the fructose was already messing with him, but at least his sweet personality was still lurking beneath the surface!

He had a poopy diaper later in the day and the fecal occult test was…odd. It could have been a “trace” positive, or it could have just been the lighting. I really couldn’t tell. But I did see something reddish in his stool, so, I don’t know. We’ll keep an eye on it.

I carry his allergy kit with me everywhere we go, obviously, but yesterday I always made sure it was at the top of the junk in my purse, instead of just “somewhere” in the bag.

And at one of our errands we ran yesterday afternoon, Jed once again grabbed a Snickers bar off the check-out rack. This time, though, he said “Jed like!” with a huge smile on his face. Oh, no!

I told him “Oh, you like those? That’s good, honey! But you know, those aren’t good for you. They’ll make your tummy hurt. Why don’t you put it back, sweetie?”

And – thank goodness – he DID!

Hmm…didn’t pitch a fit when I took the candy away in the morning, didn’t pitch a fit when I said ‘no’ in the store…do you think he liked the taste but realized it was making him feel badly?

Well, a Mama can hope!

And I’d like to punch the marketing genius behind cash register candy displays. Now that he’s gotten a taste of candy, I’m sure I’ll be having many fights about not buying candy in the future.

Just one more place where my kids can’t be Normal. Just one more unnecessary reminder of how restricted our lives are.

I was a nervous wreck all day long, and Jed – aside from moments of normality – really was “fructosed”. He was argumentative, whiny, annoying, and downright un-Jed-like. I’m truly grateful that is ALL that Snickers bar seemed to do to his body. I know it could have been much worse!

Well, today should be better. And I love Darrel, but he can buy – and eat – his treats at work from now on. Even if my sweet boy wants to be giving and treat Daddy, I’m going to say no. Mama can’t take the stress!

On the Lighter Side of Protesting…

What, did you think I was going to be uber-serious all week? After yesterday, I thought I would share with you the lighter side of going to a protest rally with your children.

Let’s start at the beginning. I care (obviously) very much about this cause…but, I don’t get out much! The first I heard about this GLOBAL protest march was about midnight Friday night, when I woke up and couldn’t get back to sleep and decided to waste some time on Facebook.

A friend of mine in Houston asked “Is anyone going to this?” and I was immediately disappointed because I just knew  there would be no way I could participate; I didn’t expect my neck of the woods to have anything planned. (Sort of like Rare Disease Day…hmm…I need to get more “plugged in”, I think!)

So I was happily surprised when I clicked on the March Against Monsanto link and saw that our area DID in fact have a protest scheduled! Yippee!

Saturday morning Darrel told me of his plans to go out to some pretty places and take pictures, and I told him I was planning on going to the protest rally I had learned about a mere 9 hours prior. Good husband and father that he is, he decided he could take pictures at the rally and decided to come with.

This was an ideal protest for us to bring our kids! I mean, protesting against GMO’s is ALL about family, when you get down to it. (Health for future generations, our kids are the future, etc.) So there were TONS of kids there!

And since it was so family friendly, why not bring the family dog, too, right? So there were tons of doggies – kid friendly doggies – at the protest.

And of course, we were late. Getting two kids ready (cook for and feed one, nurse the other, shower them both, dress them both, then listen to them yell and scream for you when you lock them in the living room so you can get ready – so much FUN!) and then driving in to town for a last-minute thing, well, we got there about half an hour after it started.

People were already leaving, in fact, when we got there! Still, I don’t live in a major metropolis so the 300 or so people that came was a pretty decent turn out. Based on the number of positive shouts and horn honking we got from cars driving by, I would imagine that if more people had known about it the turn-out would have been higher.

So, we’re walking up to the crowd and the first thing Jed sees is – a PUPPY DOG!!

Can I pet him?

Can I pet him?

So he pet the puppy dog (seriously, a 2 month old puppy and he was SO cute!) while the grown-ups listened to speakers pumping up the crowd.

Zac enjoyed being there. I wore him in his Ergo and he spent most of his time trying to grab my hat! People kept stopping by us to tickle his little, bare feet and every time he would grace them with his gigantic, happy smile. He is SUCH a happy baby!

Darrel took pictures while we rallied; there were TONS of interesting people and signs on display!

Love the BIG sign!

Love the BIG sign!

People were lined up along the street to spread the message to drivers in the road.

SumPics Photo Blog

SumPics Photo Blog

And after the crowd was properly pumped, we began the march.

And the march begins!

And the march begins!

It was a pretty decent length march through our city center; I’ve never been to any sort of protest march before, so I don’t know if this is typical but as the march progressed the pressing crowd of people began to spread out. Some folks don’t walk as fast as others, I guess, and it was a pretty hot day so I saw people resting at times.

So Darrel was able to get some shots of people along the way…

SumPics Photo BlogJed loved the march! Along the way he found places with ROCKS that he kept stopping to try and gather (no pictures, as we were trying to keep moving to avoid being run over), a cool playground at a church that he begged us to stop in to play at, and he LOVED the cars honking!

He had to stop every so often to grab a cracker from the snack tray on the front of the stroller, but otherwise he nearly ran the whole time!

Eventually we returned to where the rally began. We listened to a few more speakers; if you watched the video of me giving my last-minute pep talk at the rally, you might have heard this guy speak:

The Farmer :-)

The Farmer 🙂

And while we listened to more speeches, Darrel took pictures in the crowd.

Aw...get 'em started young!

Aw…get ’em started young! And so polite, too!

There were SO many people dressed up with butterfly and bee antennae and wings! Honestly, that one took me a while to figure out – I originally just thought it was creative people looking for any excuse to put on a costume! But, no, duh, Carrie! GMO’s are just now coming out as the culprit behind hive colony collapse and the massive kill-off of native butterfly species. These folks were just supporting the bees and butterflies, too!

I loved  this lady!

Such a sweet smile!

Such a sweet smile!

Such a sweet smile, and such a sweet and clever protest slogan!

(Yes, I am a bit of a Geek myself…why do you ask?)

At the end of the whole shebang, we had to drag Jed away! Why? Because he did what Jed ALWAYS does…and found a pretty girl!

Jed being Mr. Charm, as usual!

Jed being Mr. Charm, as usual!

A pretty girl AND a friendly doggie? <snort> Like he’s going to walk away willingly from that! After all, Mama, GMO’s and our food supply are important and all, but a little boy has to have priorities!!

 

Memorial Day and Our March on Monsanto

photo courtesy of Michael Elliott at http://www.freedigitalphotos.net

photo courtesy of Michael Elliott at http://www.freedigitalphotos.net

Today is Memorial Day in the United States; a day when we remember and honor the servicemen who have sacrificed to protect our liberty.

Since America was created, our servicemen have fought to defend the American people from world-wide threats to our way of life; a way of life based on the opening words of the Declaration of Independence

We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable Rights, that among these are Life, Liberty and the pursuit of Happiness.

Although I never had the privilege of being a military wife or military “brat”, at any family gathering I can spot nearly all branches of the American military represented amongst my relatives. We are a family of military honor and duty, devoted to preserving the American way of life.

I am so proud of my family for always responding to the call to duty; for offering to sacrifice even their lives for the protection of the rest of us. I know they all served and fought because they believed in freedom and wanted to do their part to ensure their families would be able to grow and thrive in a country that allowed them the hope of choice and autonomy.

So I respect our servicemen. I honor them. I admire them. I support them.

And on this Memorial Day, as I think about what exactly our servicemen have fought to protect, I can’t help but feel that we are dishonoring their efforts.

There is a danger that has grown in this country. It has snuck in through backdoors and in shadows. It has tricked us and lied to us. In our ignorance and complacency, we have allowed this clear and present danger to take root in our lives.

This danger is real, make no mistake! It is a danger to our way of life, and even to our actual LIVES. This danger is exactly what our servicemen have always fought against: an entity that cares little for our freedom, our health, and our lives.

What is this danger?

Monsanto, and their Genetically Modified Organisms.

Now, I am no scientist. I am simply a Mother with chronically ill children who are seriously affected by the food they eat, and I try to learn everything a person in my circumstances can learn about how to keep my children healthy, and why they are sick in the first place.

And I believe Monsanto has harmed my children.

There is a wonderful documentary called “Seeds of Death: Unveiling the Lies of GMO’s” that I strongly recommend you watch. It is long, but it is 80 minutes that will change your outlook forever. Please; I feel so strongly that this should be watched that I’ve posted it below. Please click and watch. (Though you might want to finish reading before you click…it is 80 minutes long!)

There are so many things about Monsanto that offend me that I hardly know where to start. There’s the way they persecute farmers and destroy them. There’s the arrogance they display in thinking they can improve on nature with cross-genetic seeds. There’s the corrupt manner in which they conduct their business. There’s the disdainful conviction they have that their way is the right way and the rest of us are too stupid to be allowed to make a decision for ourselves.

But the thing that (pardon me) pisses me off the most about them is the fact that they decided (and were allowed) to make all the humans of the world into lab rats for their experiments – without our consent or even knowledge.

In 1996 GMO soy, corn, cottonseed, and canola were introduced into the food chain. I didn’t know this had happened, and even if I had, at 19 years old I wouldn’t have been aware of the dangers. Now, I am aware.

As any Food Allergy Family will tell you, soy and corn are in everything! This means that 17 years ago, we all began eating GMO’s on a regular basis.

Well, what’s the harm in that? – you may be asking. Seriously, watch the video. It is the clearest, most thorough explanation I’ve ever seen to explain the dangers of Monsanto and GMO’s.

But I’ll attempt to summarize. In 1996, the FDA’s own  scientists were concerned that these new GMO’s – based on studies THEY did at the time – would increase allergies, asthma, leaky gut, exacerbate current medical conditions and even CREATE new health concerns in the American population.

Thanks to Monsanto’s bribery and lobbying, they were told to shut their mouths. The FDA allowed GMO’s to be introduced into our lives.

Now, here’s a little interesting tidbit I’ve learned as an FPIES Mama: children who are sensitive to soy are often sensitive to peanut, because they are both legumes and are very similar in make-up.

From 1997 to 2002, the number of children with peanut allergies in the U.S. doubled. DOUBLED! This during a time when awareness of food allergies did not rise at all, which leads one to conclude that people were not simply “making the allergy up” or “imagining it”.

Is this coincidence? I think it unlikely, especially considering the concerns of scientists at the time.

Far more frightening to me, though, is the evidence that GMO’s do not just pass through our system, causing only temporary harm. No, the evidence exists that their un-natural DNA becomes a permanent part of the DNA of the bacteria that reside in our guts!

We all have gut bacteria; it is healthy and necessary for life – why do you think everyone wants to eat probiotics? Yogurt doesn’t taste that  good, after all! But it has lots of good little bacteria growing in it, and those good little bacteria help keep our digestive tracts plugging along efficiently, making us healthy humans.

But the GMO versions of foods are not the same  as the original food they are meant to replace. Sometimes the RNA of our existing bacteria react unexpectedly to the GMO’s unusual DNA and trigger mutations in the DNA of the bacteria, causing it to permanently be altered.

Did you catch that? Our life-giving, health-enforcing gut bacteria are mutated permanently!

And it’s a done deal. We all are already affected. Our children are already affected.

Oh, how our children are affected! Allergies are increasing, rare diseases are increasing, autism is increasing, auto-immune disorders are increasing…do I know for a fact that Monsanto’s GMO’s are the sole, direct cause of all of this? No, I do not.

But I like to think I can see the forest for the trees.

All of these things have increased dramatically since – when? The mid-1990’s.

GMO’s were introduced – when? The mid-1990’s.

Has anything else major changed in the world that would affect every single person in the same time frame? No.

At the very least, there is a correlative relationship between the two; scientists, however, have actually made the claim that this is, in fact, a causal relationship.

I don’t need a microscope or an advanced degree to see that for myself.

I look at my children, my sweet, adorable little boys, and see that they struggle with so many food issues, so many gut imbalance issues, and are so sensitive to everything they consume, and I have rather un-Christian thoughts about Monsanto and GMO’s.

Because I have no doubt that my children – while possibly genetically pre-disposed to having some sort of allergies – were pushed over the edge into a world of life-threatening, severely inhibiting allergies due to the presence of GMO’s in our diets.

I didn’t know in 1996 about any of this. I didn’t know about this in 2008. I didn’t start to educate myself until 2010. My real education has only come in the last 10 months.

And let me tell you – ignorance may be bliss, but it sure as hell hurt my children.

That is why last Saturday my family, along with 2 million other people across the globe, Marched on Monsanto.

My family did not fight in wars and serve in peacetime to allow a corporation to dictate to us what we will eat. They did not do what they did so we would live in a world where we are considered too idiotic to make an informed choice for ourselves. The servicemen of our country did not sacrifice in their many ways so we could find ourselves, once again, the subjects of a cruel and careless ruler.

In 1776 the Revolutionary War was fought against King George, a ruler who gave the colonists no voice in their own self-management.

In 2013 we are ruled by Monsanto, via a bought and paid for government, whose goal is to keep us ignorant of the poison they are forcing down our throats via “legal” means.

They are threatening our lives. They are steadily removing our Liberty. And they are a serious threat to our pursuit of Happiness. (Can any mother be completely happy with her life if her children are chronically ill?)

So we marched. We marched for my children, for my grand-children, for my great-grandchildren. We marched for the servicemen of American history and present. We marched for the future of mankind.

As I said in the beginning, our servicemen have fought to defend the American people from world-wide threats to our way of life; a way of life based on the opening words of the Declaration of Independence

We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable Rights, that among these are Life, Liberty and the pursuit of Happiness.

I also said I believed we were dishonoring their efforts. They fought to protect us from foreign threats. If we do not fight – here and now – against these domestic threats…their sacrifices will have been for nothing.

This Memorial Day, remember what has been given to you. Remember the sacrifices so many men and women have made to give you the life you now lead.

Honor them by taking a stand. Educate yourself. Read about GMO’s. Plant a garden. Write your Congressmen and Senators. Write the President! Become an activist. We MUST insist on GMO labeling, at the least. We should push for the banning of GMO’s entirely. Let the world know that we will no longer eat Frankenfoods – including the currently-being-considered Genetically Modified Salmon.

If you won’t do it to honor our ancestors…

Do it for your children.

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While at the rally, I chatted with the man who organized our March. While thanking him for his work, I told him my belief that GMO’s are involved in why my kids are so allergic. It came about that I was offered a chance to speak when we returned from the March!

The crowd had thinned out quite a bit at that point, but it was still good turnout. I’m a bit proud of myself for speaking completely off the cuff to a group of people like this!

So, yes, I am bragging a bit to include the video of my extemporaneous speech here, but I’m mainly including it to give you an example: be brave! Step outside your comfort zone! If a Mama wearing her baby can brave the last minute nerves of public speaking, you can handle writing letters and voting appropriately!

(I didn’t take this video, a lovely new acquaintance I made at the rally was nice enough to send it to me. Thanks, Cydni! But I couldn’t figure out how to edit it. There is another speaker ahead of me on this video – he was very interesting, but if you’d like to skip to my part, it starts around minute 5.) 

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Editorial note: I did not include very many links or references in this post for a few reasons. One, it’s all terribly easy to find this information online through simple searches. Two, I was so impressed by the cohesiveness of the “Seeds of Death” documentary that I was often using data I gleaned from it – and at the end of their movie is a LONG list of sources that any of you can check out if you’d like. Three, I’m tired!

But I assure you, this is all the truth to the best of my understanding, references notwithstanding. Fortunately, my English teachers will not be grading this post.

Beat the Heat With Popsicles

Popsicles for breakfast? Sure!!

Popsicles for breakfast? Sure!!

I remember playing outside in the summertime as a kid. The sun would blaze overhead and the neighborhood kids would run until we couldn’t run any more. We made up fun games (like Pine Cone War) and turned a disturbing shade of brown from being in the sun all day.

Every afternoon, the childlike tinkle of music announced the arrival of the ice cream truck, prompting Oscar-winning performances from all of us to goad our parents into throwing a couple bucks our way to stop the whining for a delicious, icy treat.

Ahh…such awesome memories!

Unfortunately, for several reasons – not least of which is geography – my sons will probably never experience an afternoon like that. Even if we lived in a suburb (Ground Zero for ice cream trucks), I seriously doubt there is anything on one of those trucks that would be safe for my boys.

So I do my best to keep treats around for Jed in the warmer weather; treats that will make him feel like he’s truly being “treated”.

This can be a bit of a challenge for me thanks to our many food issues. Unlike most mom’s, I can’t just buy a big ol’ box of popsicles and ice cream pops to have around for the inevitable “I’m hot and want a treat” moments! And almost all popsicle recipes are heavy on the sugar. No good for Jed!

So I got creative. Remember last summer, when I shared my Charming popsicles?

Yeah…those were delicious! And unfortunately for us, I now know what I did NOT know last summer: they are horrible for my Fructose Malabsorbative son!

I’m pleased to report, though, that I have managed to come up with five – FIVE! – delicious, potentially fructose-friendly popsicle recipes that are even healthier than the Charming Popsicles ever thought of being!

I’m only including photo directions for one flavor, as they all follow almost exactly the same methodology. The different recipe variations are all at the end of the post.

And, as always, consider what level of fructose tolerance you have before making these, and adjust the sweetener to whatever you can handle. If you need to use straight table sugar, you’ll need to make a simple syrup before adding it to the fruit and mixing. Simple syrup is simply one part water to two parts sugar; bring the water to a boil, add the sugar, stir until syrup consistency and then let cool.

Anyway, here’s what I did:

First I set up my food processor. Then I tossed in about 2 cups of berries (this is the Blackberry popsicle recipe). Fresh or frozen both work fine; if you’re using frozen, let them thaw for about ten minutes or so before processing. Just makes it easier.

I pureed it until it was as liquidy as I could get it, then I got out a bowl and a strainer. Some of these popsicles won’t require this step, but I’m a texture person and those little seeds in some berries would make me crazy…so I pressed the puree through a strainer until I just had blackberry ‘juice’ in a bowl.

Straining the puree

Straining the puree

Then I rinsed out the food processor and poured the fruit juice back in. To that I added 1 avocado, some lemon juice, and maple syrup. Then, as an afterthought, I tossed in a handful of baby spinach leaves.

Ready to process!

Ready to process!

A little more time in the food processor, and I had this:

Blackberry popsicles ready to pour!

Blackberry popsicles ready to pour!

A nice, thick, creamy popsicle liquid ready to pour into molds!

Last summer, I bought a motley assortment of popsicle molds for Jed (as you can see from the different popsicles in the picture). I’ve got  to look into buying some stainless steel ones to eliminate cross-contamination issues for Zac, but for now, the el cheapo plastic ones will have to do.

I poured the mix into the molds…

Poured...

Poured…

Stuck the handles in…

Ready to freeze!

Ready to freeze!

And threw them into the freezer!

Jed loves to help me make popsicles, but he doesn’t like the noise of the food processor. Every time I go to turn it on, he puts on his ear protectors. We got these so he could ride on the riding lawn mower with Darrel, but they get used more in the kitchen than anywhere else! It’s so cute!

Mommy, that's noisy!!

Mommy, that’s noisy!!

You don’t have to add avocado or banana to some of these recipes, necessarily (except for the chocolate – it IS necessary for that one!), but I found it made for a creamier, more ice cream-y texture with them added. Not to mention the nutritional value goes right through the roof!

Same for the spinach leaves; once it’s processed, you can hardly tell they’re there, but they really add a nice boost of nutrition. Next time I make these, I’m going to experiment with other powerhouse add-ins like chia and flax seeds. I bet they won’t make any difference in taste, but will make these even healthier!

And now you can see why I have no problems feeding these to Jed for breakfast!

Yummy Mommy!

Yummy Mommy!

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BLACKBERRY POPSICLES

– 2 cups blackberries (frozen or fresh)
– 1 avocado
– 2 T. maple syrup (or equivalent safe sweetener)
– 2 tsp. lemon juice
– handful baby spinach leaves

  1. Puree the berries in a food processor.
  2. Pour the puree through a fine mesh strainer into a bowl. You may need to use a spoon to press it through completely.
  3. Rinse the food processor bowl and pour the berry “juice” back in.
  4. Add the avocado, maple syrup, lemon juice and spinach leaves, and process until smooth.
  5. Pour into popsicle molds and freeze.

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RASPBERRY POPSICLES

– 2 cups raspberries (fresh or frozen)
– 1 avocado
– 1 banana
– 3-4 T. maple syrup
– 2 tsp. lemon juice
– handful spinach leaves

  1. Puree the berries in a food processor.
  2. Pour the puree through a fine mesh strainer into a bowl. You may need to use a spoon to press it through completely.
  3. Rinse the food processor bowl and pour the berry “juice” back in.
  4. Add the avocado, banana, maple syrup, lemon juice and spinach leaves, and process until smooth.
  5. Pour into popsicle molds and freeze.

*I don’t know why, but these didn’t come out well at all until I added the banana. Then they were just right! And maybe my raspberries were just incredibly tart, but they needed quite a bit more sweetener in order to avoid total lip puckerage.

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CHOCOLATE

– 1 avocado
– 1 banana
– 2 T. maple syrup
– 1/4-1/3 cup cocoa powder
– 1 tsp. lemon juice
– 1/2-1 c. non-dairy milk (we use almond)

  1. Put all the ingredients in a food processor.
  2. Process until smooth. Start with 1/2 c. of milk and add as needed. I needed the full 1 cup to make it the right consistency for a pourable popsicle.
  3. Pour into popsicle molds and freeze.

*In case you couldn’t tell, these are just the Vegan Chocolate Pudding in a frozen popsicle! I love that recipe!

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STRAWBERRY BANANA

– 1 cup strawberries (fresh or frozen)
– 3 bananas
– 2 T. maple syrup
– handful of baby spinach leaves
– 1/4-1/2 cup non-dairy milk (we use almond)

  1. Put all ingredients in a food processor and process until smooth. Start with 1/4 cup of milk and add as needed for pourable consistency.
  2. Pour into popsicle molds and freeze.

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CHOCOLATE STRAWBERRY

– 2 cups strawberries (fresh or frozen)
– 2 avocados
– 1/3 cup cocoa powder
– 2 T. maple syrup
– handful of baby spinach leaves
– 1/4-1/2 cup non-dairy milk (we use almond)

  1. Put all ingredients in food processor and process until smooth. Start with 1/4 cup of milk and add as needed for a pourable consistency.
  2. Pour into popsicle molds and freeze.

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Just a note about these popsicles: each recipe made about 8-10 popsicles. So if your molds only have 6 spots in it, you might have some leftover puree. You can simply pour this into a bowl and eat it with a spoon if you come upon that problem – and then you have a yummy sorbet/ice cream treat instead!

Enjoy a REALLY healthy treat this summer!

Do you have any awesome popsicle recipes? What add-ins would you use to boost the nutrition of these even more? Please share!

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This post shared with:

AllergyFreeWednesdays

and Real Food Wednesdays.

Guest Posting & Becoming the FBI

Last week was FAAW, as you all know. I had lots of things up on my blog for the occasion, and the internet was all abuzz with allergy awareness. It was glorious!

We have a local website, NWA Motherlode, that is a great website with resources for Mom’s in my area, blogs, tips, events, and great places to perform charitable work. The ladies of NWA Motherlode organized our area’s first ever “Mom Prom” earlier this month (thanks to Zac’s food issues, I wasn’t able to go) which looked like a ton of fun and raised money for a great organization.

I was thrilled to meet the Mama’s behind the computer a few months ago, and towards the end of FAAW realized – “Hey! Shannon and Gwen are awesome! Maybe they’d run a little piece about food allergies for FAAW to help the Mom’s in my area increase awareness!”

So I wrote it, sent it, and they agreed! (See, awesome!) Only, they couldn’t run it until this week, since I notified them so late in the week. TOTALLY my fault.

But when you’re talking food allergy awareness, is there ever a BAD time to spread the word? So even though FAAW is over, don’t stop your awareness efforts! It’s nice to have an organized campaign to spearhead our sharing, but it isn’t necessary. We can tell the world about food allergies any old time!

So click on over and read my little story at NWA Motherlode. And click around on the website, too – they may not be local for you, but there’s some really great stuff on the site!

__________

And for those of you who are wondering, I took Zac to the pediatrician yesterday. He tested negative for strep, but did have an inflamed, red, swollen throat with an ulcer. The doctor thinks he has some kind of viral sore throat condition, which would explain the fever, his nap and bedtime struggles, and his general clinginess and whininess over the last few days.

It does NOT necessarily explain the screaming fit from two nights ago, though. We thought about it and have decided that the screaming was likely an FPIES reaction to the sticker he chewed on, and combined with the other strange symptoms made us totally frantic.

With two simultaneous issues going on with him, I feel confident that “frantic” is just about the right reaction, don’t you?

Well, at least we have an explanation for all of it that makes sense. He’s doing very well now; last night we had NO screaming incidences and he’s been in much better spirits yesterday and so far this morning than he has for a few days prior.

Thanks for the support, advice and prayers! We all appreciate it so very much!

Now, come back tomorrow for new recipes that you are going to be amazed about! Beat the heat in a healthy way!!

A Little Night Terror

photo courtesy of chainat at http://www.freedigitalphotos,net I think we were visited by this person or a friend last night.

photo courtesy of chainat at http://www.freedigitalphotos.net
I think we were visited by this person or a friend last night.

Stick a fork in me, y’all, ’cause I’m done.

It’s been such a fun week here, why NOT cap it off with a little middle of the night terror-filled screaming for no apparent reason? Seems fitting, right?

Last night Zac fought going to sleep with all he had. Finally, at 10:40 p.m. I was able to get him to go to sleep. (We start our bedtime routine at 8:00 p.m. every night. Jed didn’t go down until 9:30 p.m. last night, either.) It was about 5 after 11 p.m. when I got up from nursing him, so, big sighs, whew – both kids down!

Now I can go clean the kitchen, hang their laundry, and there was something else I’d planned on doing that I have forgotten now…oh well. In other words, now that the kids are asleep, I can work until 1:00 a.m. Can I get an “amen”, Mama’s?

A mere 40 minutes after I got up from bed, Zac woke up SCREAMING.

Not crying, SCREAMING. I ran in to him, and his eyes were wide open, his body was as tense as a piano string, and he looked terrified! He was screaming with every ounce of energy he had and looked horrified by the situation.

I’ve never seen anything like it. Ever.

No position made him happy. It seemed like he wanted me to hold him, but he fought being held. He arched his back, threw himself forward, kicked his legs, flung his arms, and was almost impossible to keep a grip on. It didn’t make me think “seizure” in any way – it wasn’t uncontrolled – but the random, every-which-way movements were more like a seizure than a reflux flare.

Horizontal was the position that ticked him off the most, though. Somehow he would dig deep into the depths of his vocal skills and increase his decibel level by at least another 10% every time we tried to lay him down to try rubbing his belly or pumping his legs – no small feat!

I was terrified.

When I realized he was flat out refusing to nurse (this kid LOVES nursing) I woke Darrel up (yes, he slept through the start of this because he has been woken up at least 6 times a night since LAST Wednesday night thanks to Jed’s strep wake-ups and took a sleeping pill to ensure he’d get a good nights sleep last night) and said “HONEY! There’s something wrong!”

I passed Zac over to Darrel to be examined by Daddy and raced into action.

The diaper bag was packed. My computer was packed. Grabbed Zac’s medical files and ER letter for a reaction. Threw my wet bra into the dryer for a minute so I’d have a semi-dry bra to wear. Threw on jeans. Grabbed some bags of safe potato chips to take with.

Mama was ready for the ER.

Because while my instant Google searches for “baby screaming in pain belly hard as rock” brought back returns saying “Gas”, I am well-versed in how my kids operate. We are weird and rare. The odds of it being “gas” for my kiddos is slim, because gas is so normal. And my kids are not!

With FPIES in the picture, I didn’t know what it could be but didn’t want to be unprepared for a race to the ER.

Once again I went to my tribe on Facebook. A quick “Anyone still awake and on here please help!” plea and I suddenly had several women responding and one even exchanging personal messages with me to help Darrel and I figure out what was happening with Zac.

All of them confirmed that they had been told to take their babies to the ER if the screaming lasted for longer than 1-3 hours (depending on doctor). All of them brainstormed ideas of what it could be and what could help. All of them rallied to help me try and sort out what was making the World’s Happiest, Most Mellow Baby turn into a 20 pound muscular ball of fright and terror (and noise!).

Just as Darrel and I were about to make the call to load him into the car and head to the hospital, his screaming stopped…for about a minute. Then it started again, but it had a decided “crying” tone to it, as opposed to just screaming.

Then he stopped crying for about two minutes. Then he started again, and it was mostly crying with only a tinge of screaming thrown in.

Then Darrel rubbed his goatee on Zac’s head and hummed while swaying with him, and he quieted down! Snuggled in to Daddy’s shoulder and – though he looked miserable – was blessedly QUIET!!

Hmm…maybe no ER trip necessary?

We watched. He still would break out into cries on occasion but nothing like before. And some swaying and humming would console him.

Suddenly he started getting worked up again, and I thought “maybe?” so I offered him a boob. HE NURSED!!! In fact, he nursed like a dehydrated man in a desert.

So I took him in to the bed and laid him down. Within about 5 minutes, he was asleep.

Total Time of Mommy Terror: 1 hour, 30 minutes. With only about 15 minutes total of NOT having her eardrums blasted to oblivion with the SCREAMS of TERROR from her baby.

Not my most favorite hour and a half I’ve ever had, you know?

Especially since I still have no idea WHAT caused this!

After all the tribal brainstorming last night, I’m thinking it is one of three things:

  1. an FPIES reaction. We dug a sticker from my vacuum cleaner out of his mouth last night about 7:00 p.m. (seriously? He picked the sticker that says “do not return to retailer” off my vacuum cleaner and ate it!). We got it out before he ate any of it, but since this was not meant to be used by or around children, we have no idea what kind of ickies were on the sticker that he might have ingested with that brief mouth visit.
  2. Strep. It’s rare for babies to get strep, but he ran a HUGE fever all day on Monday, and his brother has strep. And, let’s face it, if it’s a rare possibility, then my ears perk up because that is the likely explanation for what’s happening to my kids. His fever had broken by yesterday morning, but it could still be related.
  3. Weather changes or teething. Several moms reported that their little ones would scream in pain when major weather systems moved into their area. We live right in the path of the storm system that wiped out Moore, OK, and have been having severe weather the last two days. And teething is always a possibility, though the reaction seems a bit extreme for teething pain.

In any event, I’m calling the pediatrician this morning to see what her input is about Strep. If he doesn’t have it, then the SCREAMING was something else entirely and I have no way of knowing if it will repeat on another night (joy), but I’d like to rule out strep if at all possible.

I feel like I’ve been run over by a truck this morning, Darrel looked about the same, but Zac seems perfectly fine!

Wow.

__________

Oh, and in case you don’t follow on Facebook, Monday I *did* call the pediatrician to get a compounded antibiotic for Jed. Turns out? Not only was the first doctor arrogant and gave us medicine with fructose in it that wigged Jed out, but THE ANTIBIOTIC HE GAVE US DOESN’T EVEN WORK ON STREP!!!

It took ten full hours of working with the pediatrician and the compounding lab, but we finally were able to get a safe antibiotic for Jed on Monday at closing. He took his first dose that night and it was the first night he slept through the night in 5 days! The next day was a marked improvement in behavior and every other symptom he had.

I’m so angry about that I could just spit nails. I polluted my sons body with an ingredient he cannot tolerate FOR NO REASON. I’m livid.

And in case you didn’t catch this, the whole day I was working on the prescription, Zac was running a fever. He got as high as 102.7 F at one point, and yes, we were thinking doctors would be necessary then, too.

Fortunately his fever broke before we needed to go.

But I’m just done in with all this medical mayhem this week.

Fingers crossed and prayers, please, that the SCREAMING was just a one time thing and we do NOT have to go through this regularly. My heart can’t take it.

And my ears would be grateful, too.

Not to mention I hate knowing my little boys are hurting.

Focus on Fructose

IMG_8145-1

Let’s take a moment to focus on fructose, shall we?

I’ve had many comments about Jed’s Fructose Malabsorption, about some of the ingredients I use in my recipes, and just general fructose “confusion” about what we’re doing and why we’re doing it.

So, I thought I would clarify a few things about Jed’s diet and fructose issues. (This will be especially useful for new readers who haven’t been reading the journey we’ve undertaken with Jed since September!)

We discovered Jed has FructMal based on some symptoms he had that were not explained by any of his other food allergies or intolerances: runny, loose, light-colored stool since the intro to solid foods, slow or non-existent weight and height gain, and frantic, ‘hyper’ behavior that was beyond normal 2 year old, but not ADHD.

Our first GI would not administer the hydrogen breath test because Jed was just barely 2 years old and the doctor said young children did not do well on the test. Apparently young children don’t follow instructions well (imagine that!) and can’t do the breathing the way the test requires.

I decided to removed as much fructose as I could from his diet to see if an elimination would prove the theory, but had a very hard time with that at first.

As anyone with Fructose Malabsorption (or HFI) knows, there is a TON of information out there about this condition and much of it contradicts! The primary reason for that is obvious: every FM person is different! Just like with FPIES, what works for one will not necessarily work for another.

So we were swinging in the dark.

I learned about Sue Shepherd and her amazing work with FODMAP’s down in Australia, but being in the US I saw that to buy her book would set us back a very pretty penny. At the time, we were not doing well financially (still aren’t, actually) and I *hoped* I could find enough answers that I wouldn’t need to outlay that kind of money for a book.

Along came a dear friend of mine, who works at the Mayo Clinic. She’s a dietician, and one of her co-workers spent the better part of two years tweaking the official Mayo Clinic Fructose Malabsorption “starter” diet. My friend knew I was struggling to feed Jed, so she printed it off the Mayo intra-net and mailed it to me, hoping it would help.

It did!

Darrel and I read it, and I realized that it was a very hybridized version of almost all the FM diets I had previously found online. It seemed to take the best of all of them and put them together in one place.

Dealing with FPIES, egg allergy, dairy intolerance, and now Fructose Malabsorption, well, I’ll take “simple” any day! All the help I can get, right?

So we’ve been using this Mayo Clinic diet as our jumping off point for Jed’s fructose issues. We dropped all the foods it said to avoid, and within a short time Jed was a Whole New Kid!

His speech BLOSSOMED.
His attitude was SWEET.
His sleeping was BETTER.
His tantrums were (almost) NON-EXISTENT.
His poop was NORMAL.

Hello, right path! Glad I found you! It was a joy to realize that the most unpleasant things about our son were NOT actually any real part of him – they were his food messing with him!

So then we began the trialing process; I pick a food off the “avoid” list, try it out on him in some way, and see if his body can tolerate it. Our dietician in Atlanta explained that FM was an intolerance, so he could, theoretically, tolerate foods that are high in fructose, but just in limited quantities or on an infrequent basis.

Trying to figure this out has been…FUN! (No, not really. Total sarcasm there.)

For example, coconut shreds sent him all wiggy. But straight, full-fat coconut milk seems just fine!

Unless I mix it with onion or heat it. (Not sure if it’s the onion addition or the heating that is the problem…we still have to parse that out. I’m leaning towards onion.)

Onions alone are fine for him. Garlic, though? It makes me hate life.

25 stalks of asparagus were a tad much for his body to handle…but 11 stalks made no noticeable difference whatsoever!

Maple syrup has fructose, but he is just fine with that in almost any quantity (so far as we can tell). But evaporated cane juice and straight table sugar? Oh, no. No, that’s just awful for him.

And so it goes. We keep trying things out and finding out what works for us and what doesn’t, and of course, my recipes will likely reflect that.

So I thought it would be helpful to tell you all my “starting point” on this diet, at least in terms of Veggies and Fruits, and then you can click the links for Jed’s Diet at the top of my page to see where we are on trials from there.

That way, if you see I have a recipe for, say, Blueberry Muffins, but you know blueberries, maple syrup and coconut milk have fructose, you’ll understand why I still call that recipe “Fructose Free” or “Fructose Friendly”.  For us, they are.

Only YOU know how you react, though! So I hope my recipes will still be beneficial to many – or even most – of you.  Just keep in mind you’ll have to evaluate whether what works for Jed will work for you, and probably have to tweak accordingly.

Which is totally awesome, by the way! Some of my best recipes came about because of tweaking! Never be scared of a tweak!!

(I’m having a strangely good time saying ‘tweak’ right now…yes, I am a little odd sometimes.)

So here’s a brief excerpt of the Mayo FM Diet – just the veggies and fruits. If you’d like the entire diet, you can contact the Mayo Clinic directly at their Patient Education center and see if you can request a copy. I don’t know if they’ll send it to you or not, but it can’t hurt to ask! (I hope they will!)

FRUITS TO EAT FRUITS TO AVOID
Apriots Apples
Avocado Cherries
Bananas Grapes
Blueberries Guava
Blackberries Mangos
Clementines Papaya
Cranberries Pears
Jackfruit Watermelon
Kiwi All unsweetened & sweetened fruit juice
Lemons All unsweetened & sweetened canned fruit
Limes All dried fruit
Oranges Fruit pastes, sauces & soups, such as:
Pineapples       BBQ Sauce
Plums       Chutney
Pomegranates       Relish
Raspberries       Plum Sauce
Rhubarb       Sweet & Sour Sauce
Strawberries       Tomato paste, sauce & soup, ketchup
Tangerines  
  Avoid the following if fructan intolerant:
  Cantaloupes
  Grapefruit
  Honeydew
  Nectarine
  Peaches
   
VEGETABLES TO EAT VEGETABLES TO AVOID
Beans, snap, green Asparagus
Broccoli* Brussels sprouts*
Carrots Cabbage*
Cauliflower* Cucumber*
Celery Jicama
Chives Okra, raw
Collard Greens Peas, green
Corn Zucchini
Eggplant  
Endive  
Kale  
Lettuce  
Mung beans Avoid the following if fructan intolerant:
Mushrooms  
Mustard greens Artichokes, globe
Olives Artichoke, Jerusalem or sunchoke
Peppers* Beets
Radishes* Chicory root
Spinach Chicory greens
Sweet potatos & Yams Dandelion greens
Swiss chard Garlic
Tomatos Leeks*
Turnip greens Onions, all kinds*
Watercress  
Winter squash  
   
*May be gas producing in some people  

In all fairness, we haven’t eaten ALL the foods on the “Foods to eat” list yet because of some of my prior reading that indicated they were highly problematic for a large number of people. And some of them we haven’t eaten because I simply have not yet learned how to prepare them! But we eat most of them, and Jed seems to handle them well. As he gets more vocal skills, he can better explain to me any physiological or mental effects he feels when he eats, and we can truly begin deciphering his tolerance levels.

For now, though, I have to feed and simultaneously diagnose a barely verbal small child, and that is a huge, very challenging undertaking (as evidenced by yesterday’s post). I have no choice but to observe his behavior, his development and his poo to decide whether we can eat a food or not.

So please understand that I have never – and will never – make the claim that my recipes will work 100% as-is for every FM or HFI person out there. It may seem that I am saying so when I write my recipes, but I am really just asserting that this recipe is fine for ONE FM person – my son.

Take what works from my recipes, and drop what doesn’t work, and have fun experimenting in the kitchen to heal yourself and keep yourself healthy! But I hope my recipes will at least give you a good starting point that will enable minimal tweaking (see, there’s that word again!) to create a delicious, nutritious dish!

Thanks for your understanding and patience! This is a tricky dietary road to navigate, and your comments and advice are always welcome and appreciated!

Why Do Kids Always Get Sick on Saturday?

 

photo courtesy of m_bartosh at http://freedigitalphoto.net

photo courtesy of m_bartosh at http://freedigitalphoto.net

It’s no secret I have a love/hate relationship with doctors. (See this, this, this, this and this for evidence.) I’d go so far as to say that if you are a doctor I have dealt directly with, there is only about a 5% chance that I have neutral feelings about you. The other 95% of you, I either love you (as in think you hung the moon, want to bear your children and give you big sloppy kisses) or hate you (as in hope you lose your license and maybe get an incurable case of crabs, oh, and frequent head lice).

I regret to inform you that this weekend I had yet another encounter with a doctor that made me so angry, so sick to my stomach, so disgusted, that my love/hate ratio has been skewed. Again.

And, as if I needed it, I was once again reminded that I – the college drop-out Flight Attendant – know far more than many doctors know about my children’s diseases.

__________

Let’s back up a bit, shall we?

Last Thursday night, Jed had a horrible nights sleep. He woke Darrel up frequently throughout the night with whimpering, moaning, and incessant tossing and turning.

On Friday Jed was whiny, irritable, emotional and a total pain all day long. That night he woke up 6 times throughout the night with screaming, and when he was asleep, he cried in his sleep, talked and mumbled, and was flat-out miserable.

I began to suspect that he was reacting to fructose; he had eaten some kamut earlier in the day, and he had eaten some other questionable fructose foods over the previous two days. Night wakings have not been one of his symptoms, but I wondered if they had become a new symptom.

So during one of his wake-ups I asked him if his tummy hurt. He said “Yes”. (Although it was more like “Waaahh, sob, moan, Yeeeessssss, waaaahhh, sob, moan!”) I asked him to point to exactly where his “owie” was, and he looked at me with an expression on his face that usually means he doesn’t quite know how to answer the question.

So I asked him “Do you just hurt everywhere? From your head to your toes?” And once again, the answer was “Yes”.

I took his temperature, and it was normal. I didn’t know what else to do, so we all just tried to get as much sleep as we could.

Saturday morning he woke up very late, ran up to me and greeted me with the words “Mama! Mouth hurt!”

So I asked to look at the boo-boo in his mouth, and he refused. He giggled and grinned and ran away from me. Then he came running back, asking for a popsicle. So I gave him a popsicle and he ate it while playing on the porch. (Wait until I get the recipe posted – you’ll understand why I’m totally cool with my kiddo eating popsicles for breakfast!)

After eating two popsicles, he refused all food offers we made for most of the day. He instead ate about a box and a half of his safe crackers.

By this point, my fellow FructMal Mama’s had responded to my query that yes, night wakings/night terrors are a common “fructosed” symptom. So I assumed that his bad behavior the day before, his nighttime trauma, and his desire for plain, boring food was simply due to being fructosed. It stunk, but there wasn’t much that any of us could do except ride it out.

Several times throughout the day, he pointed to his mouth and said “Mouth hurt”. And every time I tried to peek into his mouth, he giggled and ran away. He also pointed at random spots on his body and said “Boo-boo”, at one point cajoling me into bandaging four invisible boo-boo’s on his legs! (What is it with kids and band-aids, anyway?)

Finally, at about 5:30 p.m. he – once again – said “Mouth hurt” and I said “OK, kiddo – I’m going to look at your mouth this time!” I pinned him back to the chair, forced his mouth open and used my finger to press down on his tongue, expecting I would see something fairly harmless…like a spot where he’d bitten his tongue or a place where he’d scratched the inside of his mouth or something.

Instead, I said to Darrel, “Oh my God, we need to get him to a doctor NOW!”

His poor little throat was COVERED in pustules, and his tonsils were bright red and swollen!

(And yes, I feel guilty that I’d missed this all day, especially with him telling me about it.)

Did you catch that it was 5:30 p.m.? On a SATURDAY??

We really didn’t want to compound our medical bills with an ER visit, but we didn’t know where any urgent care centers were. So I went to Google, found one, and learned they were open until 8 p.m. So off we went.

They were all SO nice! The nurse was excellent with Jed; got him to weigh himself without any struggle, and even coaxed him into letting her swab his throat right away without batting an eye! I was seriously impressed.

Just a few minutes later, the swab came back as a definite positive for Strep Throat. Happy, happy, joy, joy.

Then the doctor came in to see us. He seemed nice; checked out Jed’s ears and talked with us a bit, just your normal, idle chit-chat with a doctor while you’re being examined. Then it was “Okay, well, he has strep. So I’ll call in a prescription for you. Just the standard amoxicillin, he’ll take…”

Screech! Not so fast, doc!

While I was googled for an urgent care center, I took the time to ask my fellow FructMal Mama’s for suggestions about medicines that were safe for Fructose Malabsorption. I know I can get anything compounded, but the compounding pharmacy is closed over the weekend and I needed to know what the least offensive options were for Jed.

One lady suggested compounding, or getting antibiotic shots. The shots would mean 3 shots to equal a 10 day dosage. We were fine with that.

So here’s how it went:

“Well, actually,” we interrupted him, “that’s not so easy. He has food issues, so regular amoxicillin isn’t good for him.”

“OK, what are his issues?” the doctor asked.

“Egg IgE, MPI, and Fructose Malabsorption.” we responded.

“OK, so he has to avoid any medicines with dairy and sugar.” the doctor said with a grin.

Darrel and I exchanged a look, but said “Yeah, basically. And egg.”

Darrel pointed out that we’d be very happy with just the plain powdered amoxicillin in the capsules, so we could dump out the powder and mix it with water. Jed’s used to taking icky tasting medicine and would actually like that – then he’d get to take a powdered medicine from a syringe just like his brother!

I also made a suggestion. “If you don’t mind, I asked some other moms of kids with FructMal what they would suggest in a situation like this, and they recommended…” and told him about the shots and compounding.

The doctor said “…and the compounding pharmacies are closed on the weekend.” He paused, got a thoughtful look on his face, and said, “Wait right here, I’m going to make a quick call.”

So we all waited, chatting with the nurse until the doctor came back.

“OK, I called the pharmacy and spoke with the pharmacist. She went over the ingredients and says the antibiotic I’m recommending is fructose-free.” reported the doctor.

And here is where we made our mistake. We assumed he had called in plain, powdered amoxicillin for Jed. We assumed that he had been diligent – after all, he’d called the pharmacy!

So we thanked him, thanked the nurses, paid the bill and left.

We drove straight to the pharmacy. We had to wait a bit, but when it was ready, Darrel noticed that this wasn’t a bottle of pills – it was liquid.

So he started a Q & A session with the pharmacist.

They dug out the ingredients list for this particular antibiotic, and no, in fact, it was NOT safe for a Fructose Malabsorbative person! Darrel asked the pharmacist why she didn’t tell the doctor this over the phone, and she told him “I tried to, but I barely started down the list of ingredients before he interrupted me saying ‘That’s fine, that’s good, thank you, bye!’ so I couldn’t tell him all of it!”

Um, yeah...NOT SAFE!!

Um, yeah…NOT SAFE!!

Now, here it is: 8:30 p.m. The urgent care clinic is closed (meaning we can’t get the prescription changed). This is the only pharmacy that we know of in town that is still open at this hour – and they close at 10 p.m. We could go to the ER to try and get a new prescription, but if, for some reason, the hospital doesn’t have the drugs to give us, we will not have a pharmacy that can give us medicine for Jed (and we’ll be out an additional $250).

Basically, we’re screwed.

An arrogant man who refused to listen to a pharmacist or the parents put us in the disturbing position of having to give our son a necessary medicine that will simultaneously make him sick.

And there was really nothing we could do about it.

So we took the medicine. I’ll call our pediatrician this morning and see if she will write us a prescription for the compounding lab, so hopefully we’ll only have to give him 4 doses of this horrible medicine. Hopefully, that won’t be enough to make him react.

Beyond that, I read the ingredients in this medicine and have to say, thanks to FPIES Eyes, there’s NO WAY I would ever willingly give this to my children!

When I highlighted the ingredients that were problematic for Jed in the previous picture, I thought I would also make another picture that highlighted the ingredients I found concerning in general…then realized it would be easier for me to highlight the ingredients I didn’t  have a problem with! See?

Are you kidding me?

Are you kidding me?

Food dyes. Natural flavorings. Methyl cellulose (corn). Artificial flavorings. Methylparaben. Are you freaking KIDDING ME?? They give this to CHILDREN??

Ugh.

SO. Lessons from this experience?

Even when my “gut instinct” alarm isn’t going off (the doctor was nice, comforting and didn’t set off any alarm bells – honest!) I need to push for total clarification of every single detail about my children’s medical issues to avoid ignorance becoming a danger.

No one knows how to take care of my children better than I do. No one. I am the expert in my children; I know what their issues are, I know how to find the information I need to know, and I know the places danger lies in our world.

No doctor, no matter how knowledgeable they may be, is as dedicated and well-versed in our particular issues as I am.

And I dropped the ball on this one. I’m supposed to be Mama-Bear, Medical Advocate Extraordinaire. I let down my guard for one medical encounter, and my son is now being hurt by the medicine that is supposed to help him.

Never. Again.

__________

Please say I’m not alone in this: tell us about an encounter you had with a well-meaning but uneducated doctor regarding your kids!

The Incredible, In-edible CORN

photo courtesy of anankkmi at http://www.freedigitalphotos.net

photo courtesy of anankkmi at http://www.freedigitalphotos.net

FAAW is nearing its completion.

I have seen some beautiful, amazing testimonies to the effects of food allergies on families, and learned some new food allergy facts and trivia (yes, no matter how far in the food allergy rabbit hole you’ve fallen, you still learn new things all the time!).

We’ve seen things about IgE (aka anaphylactic) allergies, non-IgE mediated allergies (aka FPIES) and even food intolerances that are not technically allergies, but still cause huge problems for the intolerant.

We’ve seen the “Top 8” plastered all over the internet to raise awareness of the most likely foods to trigger an allergic reaction. We’re all well versed in the dangers of dairy, soy, wheat, peanut, tree nuts, eggs, fish and shellfish by now.

But there’s something still missing. Something I haven’t heard a lot about.

So I’d like to take a moment to ask everyone to stop what you’re doing and look around you. Wherever you are, be it at home, at work, at a mall, or in your car at a red light (put down the phone already!) I want you to look at your surroundings.

Look hard.

I’ll bet you a trillion dollars (I would bet a million, but inflation, you know) that you are absolutely surrounded by a food that is a huge allergy for a growing number of people.

This food is a veritable spy; it is everywhere and in everything, but no one sees it.

It is almost impossible to convince people that this food can cause an allergic reaction. Even doctors will argue about it.

This food is ubiquitous. You cannot escape this food.

This food has some very powerful people in its corner. They lobby for it, nurture it, and turn a profit on it as a full time job.

What is this food?

CORN.

photo courtesy of kongsky at http://www.freedigitalphotos.net

photo courtesy of kongsky at http://www.freedigitalphotos.net

Oh, yes, I said corn.

Corn is a very sweet, tasty vegetable, but for many it can trigger hives, itching, welts and even full-blown anaphylaxis, and for many others it can cause migraines, stomach discomfort, vomiting, and myriad other symptoms.

I’m going to step right out and say it: to a corn-allergic or corn-intolerant person, corn is evil.

The traditional treatment for any allergy or intolerance is strict avoidance. Avoid the trigger, avoid the reaction – simple, right?

Easy enough for the Top 8; they are clearly labeled on nearly everything, and through years of awareness campaigns like FAAW people are growing more and more aware – read, accommodating – of Top 8 allergies and avoidance needs.

Not so with corn.

Corn is not labeled on anything. Furthermore, corn has a reputation as a wholesome, healthy, good-for-you, extremely useful food. It’s the harmless boy-next-door; it couldn’t possibly hurt anyone, right?

I’m still only in the early stages of learning about corn. Zac has shown us that corn is one of his triggers. How severe of a trigger, we do not yet know.

But it is severe enough to have caused 24 hours of vomiting. It is severe enough to cause endless days worth of blood in his stool. It is severe enough to break him out in eczema.

So I’m learning. And what I’m learning is frightening.

Let me SHOW you all the places you’ll find corn.

  • If you drink decaf tea or coffee, it becomes decaffeinated via a process that uses corn.
  • If you buy new towels, they have a corny coating on them that is a pain to remove.
  • Perfume has corn ingredients.
  • Water bottles – at least the eco-friendly ones – are made out of corn.
  • Honey from the grocery store is often “watered down” with corn syrup.
  • Crayons can have corn ingredients; if not in the crayon, then the paper wrapping.
  • Almost all paper is made with corn ingredients.
  • Fresh vegetables are often sprayed with ethylene (corn) to force ripening.
  • The soaker pad in the baskets of fresh fruits and veggies in the grocery store is made of corn.
  • Table salt often uses dextrose (corn-derived) to prevent clumping.
  • Almost all store-bought medicines have at least one – sometimes several – corn ingredients.
  • And probably a thousand or more everyday items contain corn…

Some people are so sensitive to corn, that simply walking into a movie theater is a life-threatening feat. The popcorn filtering through the air can be deadly.

photo courtesy of Grant Cochrane of http://www.freedigitalphotos.net

photo courtesy of Grant Cochrane of http://www.freedigitalphotos.net

‘Wow, that’s lousy,’ you may say. ‘But really, just do your best. If you get contaminated, just get your Epi-pen and go to the hospital; that’s what all the other seriously allergic people do when they react to, for example, dairy. Right?’

Wrong.

Going to the hospital can be deadly for a corn-allergic person. What do the doctors and nurses do for you, first thing, when you’re admitted? They put you on an IV solution of saline.

Which can be corn-derived.

photo courtesy of Bill Longsaw at http://www.freedigitalphotos.net

photo courtesy of Bill Longsaw at http://www.freedigitalphotos.net

And if you need to be on a glucose drip for some reason? Absolutely corn-derived! Not only that, but the paper dressing gowns, medical gloves, hand sanitizer, and almost every individual-use item that will be used on you in a hospital is made out of – you guessed it! – CORN.

Sigh…I’m only scratching the surface here, my friends. Like I said, I’m still learning.

Out of all the “food allergy people” I’ve met in this 3 year journey of ours, the corn-allergic people are the most resourceful, most thorough, most investigative* of any of them. They have to be.

It should not be that way.

I believe that we need to spend some of our food allergy awareness energy in raising awareness of the potential dangers of corn.

  • The “Top 8 Allergen” list should be increased to 9 items, and it should include Corn.
  • Corn should also be listed under the “This products contains”, “May contain”, and “Manufactured in a facility” labels.
  • The materials used in manufacturing the packaging of any item – food or non – should either be labeled on the package itself, or readily and easily available via direct company contact. This should include corn used to clean mechanical lines, dust plastic to prevent sticking, sprayed on the item, or any other possible source of corntamination.

Beyond those official, government necessary steps, the world at large should be made aware of corn and all its pros and cons. Most corn is GMO (genetically modified organisms) and that still, amazingly, is not required to have a label (though they are trying to fix that in Vermont – take that, California!).

Corn farmers receive huge government subsidies to continue growing corn; often at the expense of environmental health and in defiance of common sense. (Watch “King Corn” or visit their website for more info.)

Not to mention that the production of corn is directly associated with Monsanto, a company which has no regard for the laws of God and pays huge sums to control the laws of men. This is a company that financially destroys small farmers on a regular basis for fun. A company that thinks nothing of making a profit off untested food on experimental guinea pigs – humans.

When I think of it, I feel physically repulsed at the idea of consuming any corn.

And that is extremely frustrating, because corn is almost impossible to completely boycott.

As Americans, we should be able to boycott a product if we don’t like it. We should be able to avoid foods that can kill us. We should be able to take care of our primary interest – self-preservation – without fighting a daily uphill battle (at least when we aren’t living in a war zone, which we are not).

None of that is possible with corn.

So spread the word for FAAW: corn is an allergen – a deadly allergen – and this issue of corn must be addressed on two fronts. First, in the minds of the general population, and second, in the minds of Washington lawmakers.

I will continue to learn all I can – the hard way – to protect Zac. But I hope that with further awareness campaigns, he will have a much easier time protecting himself by the time he is an adult.

Please share this link! Share it so people will know about corn, and my son might have a fighting chance at an easier life in 20 years. Thank you!

*When I asked experienced corn-allergic people what questions I should ask of manufacturers to discover if the product was safe, I was told that I would first have to know HOW the product was manufactured to know what questions to ask. One resourceful lady informed me that she was building a dialogue with an Alaskan fisherman to learn what happens to salmon from the minute it is caught until it winds up on our table so she can figure out where corn gets added to salmon. Now THAT is some serious food investigation!

FAAW Video – See Zac in Action!

They say a picture is worth a thousand words…how much is a video worth?

This is my very first video making effort, and I’m sure anyone who knows anything about putting a video together will laugh at what I’ve done! But I don’t mind. This was fun to make, and I hope it does what I want it to do: convey the world of a Food Allergy Family to people who don’t struggle the same way!

If you think it does, would you please share this video as part of my FAAW outreach?

(And don’t worry – I may have let him meander around the play area, but he got a thorough hand and feet washing as soon as we left! Just in case, you know.)