OATS!

Oats CradleRockingMama.com

Saturday morning, Darrel and I sat over breakfast and discussed starting our next food trial for Zac.

The plan had been to trial salmon, but when I commented how shocked I was that Zac had shown no reactions to the oats in the lanolin, Darrel pointed out that since we’ve already inadvertently sort-of  started an oat trial, why shouldn’t we just make it official and get it over with?

Good point.

So we did.

Saturday I made a batch of oatmeal cookies and Zac loved them!

I loved the fact that for the first time in their lives, I served both my boys the same exact treat at the same time. For once, they could both eat off the same plate!

Such a normal, little thing, but such a huge, big deal for us.

Sunday morning, Darrel made oatmeal for the three men in my life for breakfast.

All three of them ate the same thing for breakfast.

Seriously mind-blowing for me. We’ve had to prepare three meals at every mealtime for so long now, this is just…overwhelming in its simplicity.

Unfortunately, neither Zac or Jed cared for bowls of oatmeal very much. Zac actually just lightly licked his spoon, though Jed did eat a few bites before asking to be excused.

Licking the Oatmeal CradleRockingMama.com

No matter; they both scarfed down the cookies later that day!

So, the big question: how is it going?

Honestly, I don’t know.

His poop has been sort of a mess; mushier and softer than usual, with some visible mucous. But it hasn’t been a lot of mucous, just a tad more than I typically see. And the weather has been changing; my head has been feeling the pressure and that typically can cause an increase in mucous production. So that could explain the mucous.

The texture, well…that could be just his body adjusting to a new food.

Or it could be the early signs of a reaction.

He’s also been an absolute PILL all weekend. LOTS of temper tantrums!

However, he’s been having more temper tantrums in general the last couple of weeks, even before we started the newest trial.

Since these weekend tantrums look and sound exactly like the fit pitching he’s been doing with such regularity for the last couple of weeks, it’s really hard to judge whether they’re more frequent or worse in severity since the oats started.

Honestly? There isn’t anything concrete to convince me he’s reacting.

But there isn’t anything concrete to convince me he’s not  reacting, either.

So it’s still in the early stages, and we’ll keep a close eye on things.

I really hope our safe-food-streak continues.

At speech therapy on Monday, Zac did pretty well. He said three words, which is huge for him!

The amusing part, though, was that his therapist revealed a little part of his personality that I knew about, but didn’t realize the full extent of.

Apparently, the only thing Zac wants to talk about during therapy is…Mommy.

When she tries to get him to talk about anyone or anything else, he just grunts “uhn-uhn” and shakes his head no. But when she asks about me, he opens his mouth, gets a big smile, and will actually say words and sounds in response.

I knew he was a “Mama’s Boy”, but…wow! That’s a serious Mama’s Boy!

On a personal note, I’m reaching out to my fellow moms on this one: do you ever go through phases where it seems like you’re just out of step with everything?

Where instead of bringing your “A” game to life, you’re constantly going “oh, yeah…we need to do this now. Oops!”

I’m there. It stinks.

I’m hoping it’s just that I’ve been working too much and some time at home will help solve the problem, but I wonder what YOU do to get your “A” game back.

Help!

Remembering the 11th

Remembering the 11th CradleRockingMama.com

Please read my September 11th experience before you read the rest of this.

This year is the first year I’ve had to work on the anniversary of September 11th in a very long time.

For the first time, it snuck up on me.

The attacks of 9/11/01 are a permanent part of my heart and soul. There isn’t a day of my life that isn’t influenced by that moment in some way. My whole life, when you get down to it, has been permanently altered by that day.

But life has gotten very busy for us this summer, and when it came time to bid for my September work schedule, I somehow just…missed making the connection.

That’s good. It means that finally, after over a decade, the sheer horror of that atrocious event is fading from my active mind.

It’s bad, though, because I never, ever want to forget. I never want to become as complacent as so many Americans seem to have become about that day.

Honestly, though, I don’t think that can ever happen for me.

At this moment, I can close my eyes and almost be magically transported back. I can re-live every moment of that day.

I can easily describe the weather that morning; the way the clouds looked, the temperature. I can tell you the sounds I heard, the conversations I had, the panicked numbness I muddled through.

I can also re-live the experience of surviving in the aftermath of the attacks. The black cloud that hung in the air over Manhattan for months, that I bore witness to every day I was at home. The fear of opening my mail, thanks to Anthrax. The subdued nervousness of every flight crew member and every passenger that traveled for almost a year after the attacks.

I can re-live the terror I felt one short month later when we had barely taken off in a 757 from Newark, heading to Los Angeles, and we learned that a plane had crashed in Jamaica Bay, NY. I can remember how each of the Flight Attendants working that flight with me took turns escaping to the lavatories to sob hysterically before composing ourselves and returning to the cabin to comfort the passengers – and keenly watch for any terrorists who would attack our flight, carrying corkscrews and other makeshift weapons in our apron pockets in fearful anticipation.

I remember all of the stories of all the people I knew, and what they experienced.

I remember a few months later, finding myself hiding under the bathroom sink in a hotel room, tears covering my face, with no memory of how I got there. All I remembered was watching TV and seeing yet another news report about September 11th, and suddenly everything going black.

Today, I still feel a sinking pit in my stomach when I remember.

I still cry.

So I won’t ever forget. I won’t ever be able to be who I was on September 10th, 2001 ever again.

And today, I’m flying on this momentous anniversary.

It’s going to be a hard day for me, as it will be a hard day for so many thousands of people who were permanently altered by the attacks.

On this day, I have no words to adequately describe how I feel.

All I want to say to the world is summed up in three things.

First, remember. Remember the many lives lost that day. Remember that this attack was, at it’s core, an attack on our Freedom and Liberty. Remember the innocent lives lost simply because they were there; people living in Freedom and Liberty. Fight for our Freedoms and our Liberty.

Even in our fear, we must not willingly give those things up for the appearance of safety.

Second, hug your children. Kiss your spouse. Tell your loved ones how you feel.

Never let them doubt they matter to you.

Third, and maybe the most  important thing I want to say:

Pray. Pray for America. Pray for the lost lives. Pray for the survivors.

Just pray.

What Do We Trial Next?

What Do We Trial Next  CradleRockingMama.com

All FPIES parents eventually have to ask themselves the all-important question: What do we trial next?

It’s an important, vexxing, terrifying question.

Early on, Darrel and I came up with a list of foods we wanted to trial. We picked highly nutritious food to get the most bang for our buck, and Zac reacted to all of them. Broccoli, carrots, swiss chard…all no good.

We compiled a new list, and eventually Zac started passing foods off our second list.

And now here we are.

Now we’ve learned that Zac not only has to pass FPIES food trials, but must also deal with Histamine Intolerance and Fructose Malabsorption. Considering his mother and his brother also deal with Salicylate Sensitivity, it’s a decent bet that he’ll also have issues with that, too.

Suddenly finding foods to trial is harder than ever.

For families only dealing with FPIES, the best way to decide what foods to trial is fairly straight-forward, though subject to personal preference.

I’m sort of “thinking out loud” right now, so let me just share my opinion on how to find foods to trial on an FPIES kiddo.  

First, take in to consideration what foods your child has reacted to. If their early reactions were to grains, you would be justified in your decision to hold off on any grain trials for a while. If their reactions were to veggies or fruits, likewise, you’d be wise to hold off on any veggies or fruits until you have at least a few trials under your belt.

Then, it’s smart to consult the surveys that have been taken. There’s one very good survey a brilliant FPIES Mama put together that reveals, through data, which foods tend to be successful passes for FPIES kiddos, and which foods are generally more problematic. (The original is here, and a compilation of the data is here.)

The caveat, as always, is that every child is different. Some kiddos will react to generally “easy passes”, and some will be totally fine with “typically tricky” foods (Zac passed goat milk and eggs, both semi-tricky FPIES foods, as an example). Still, it’s a good place to start making your personal list.

The last consideration is a combination of nutritional value and versatility. If there is a choice between trialing two similar foods, and one is clearly nutritionally more complete than the other, then it would be a good idea to trial the powerhouse food first. With FPIES, the kiddos have such limited diets that their food must fill as many vitamin and mineral slots as possible, since their needs won’t be met through variety.

Versatility is important, too; also due to lack of variety, foods like quinoa (which function as a flour substitute, an oat-like flake substitute, and a rice-like grain substitute) are preferred.

Balancing all those things with your own personal food preferences will easily net you a ten or more food item list to start your early food trials.

For us, it’s gotten more complicated.

I think we’re honestly at the point where it’s worth it for us to trial our known reaction foods to determine if Zac truly has outgrown FPIES. Proceeding with our current restrictions – trying to find foods that will be safe for FPIES, Histamine, Fructose and Salicylates – is so restrictive as to be maddening and almost impossible.

We have salmon in our freezer; salmon purchased from a source that catches and immediately preps and flash-freezes the fish right on the boat so the histamine content is almost nil. Having an additional histamine-safe protein for us would alleviate some of the strain on our limited chicken supply, and potentially open up a beef trial on Zac.

If I can eat pork, chicken and salmon, we can risk trialing beef on Zac because if he reacts I will still have plenty of protein sources for my diet. Adding beef to Zac’s diet would be AWESOME because we can much more cheaply and easily procure beef.

Other than the salmon, though, I really feel it’s time to move on to our scarier foods: rice, oats, and – gulp – corn.

I’m scared of all three, but encouraged at the same time. This summer Zac has snatched pieces of Jed’s rice crackers off the floor and eaten them with no reactions. He also ate almost an entire corn chip – with no reaction.

And I just discovered this week that the bottle of lanolin I’ve been using while pumping milk for him at work has a new ingredient: oat.

He’s been drinking that milk with no reactions; two years ago, he reacted for a day to the minute amount of oat in my Aveeno hand cream!

If all goes well, and Zac has no reactions to rice, oats, and corn, Darrel and I will be 99% sure that he has finally, completely outgrown FPIES.

I’m not sure how long it will take for us to gain that extra 1% of confidence. Maybe another year with no new reactions? But for now, I’d be thrilled with 99% confidence in FPIES being history!

Without FPIES hanging over our heads, we will be able to lump Zac in with Jed in the world of eating. It’s a subtle thing, but it is huge.

For Jed, our mindset is “he can eat anything except…”

For Zac, our mindset is “he can eat nothing but…”

The former is much easier to live with than the latter, by far.

We probably won’t completely abandon all traditional FPIES food trial protocols immediately; probably we’ll adjust them a bit to fit the new reality. Instead of a single food for nearly 2 weeks of trialing with a built in break, we’ll probably do a single food for a few days of trialing with no break. That’s pretty much how we do trials for Jed, now.

And we won’t be nearly as cautious about the sourcing of all our foods. In fact, we may decide to trial more easily obtained versions of some of our special foods before truly gaining our 99% confidence that FPIES is gone. Example: regular store bought bananas instead of the shipped-from-Florida bananas.

Whatever happens, there is one thing I DO know for sure: I will continue to do my dead-level best to avoid GMO’s and pesticides in our foods. 

That means we will still be incredibly limited in our ability to eat out, and I will still be preparing a lot of our food from scratch at home.

But it will still be so much easier than what we’ve been doing that I am downright tingly at the thought!

Much of this post was simply ordering my thoughts on the subject, so thanks for indulging. Now I’m curious, though:  for those of you who handle multiple food issues, how do you decide what to trial?

Sea Salt is Safe (and Miscellaneous Thoughts)

Sea Salt is Safe and Miscellaneous Thoughts CradleRockingMama.com

You know what is not fun? When you have to work the last week of August and the first two weeks of September, and life suddenly feels like “all work and no play”.

That’s been my dilemma, and why I’ve been incredibly patchy on posting lately. There’s just too much to do at home, and not enough time at home to do it all! Something had to give, and unfortunately, writing was the biggest thing to go.

Until I became so overwhelmed that I had to stop, I didn’t fully realize how much daily writing served as a cathartic, mind-calming exercise for me. Whether I publish it or not, it is quite clear to me that I need to write something every day.

Anyway, enough of that: I have good news to share! 

Last Friday, we declared sea salt a safe food! 

This is a big deal! Not only is it Zac’s 11th safe food, but it’s the very first “overlap” food; the first food I currently consume that he has trialed and can safely eat. Whew!

The little munchkin loves his salt, too! When he is served any food now, he immediately takes it to the kitchen counter where the salt is kept and points to it, demanding we salt his food.

We’d intended to immediately launch in to another food trial, but the very day salt became safe, Zac decided to get me all worked up. 

That morning, he vomited. A lot. 

It wasn’t profuse FPIES vomiting, but it was a very large, cover the kitchen floor kind of spew.

Not comforting!

The night before he had refused any dinner, and while he slept well, he woke in a very cranky, unhappy mood.

The previous day he had speech therapy, and had eaten great until about 4 hours after we left the office. Friday (the day he vomited), he was supposed to have another speech therapy session to make up for the missed one on Labor Day.

I sent a message to his therapist saying that he had vomited, and I didn’t know if it was a food reaction or a stomach bug…should we stay away or go ahead and come?

She responded that it was up to me, but that another of her patients had called out sick for the day because of unexpected vomiting.

That WAS comforting! If another little kiddo was sick, then the odds were good that Zac had picked up a stomach bug at therapy the day before. It fit the timeline, after all, so I crossed my fingers that he was simply “normal kid sick” and not FPIES reactive.

After the vomit, he seemed much better. He perked up and behaved perfectly normally from then on.

His appetite wasn’t very good, and stayed iffy for a few days, but he had no signs that would indicate an FPIES reaction.

Stomach bugs are terrible, but they’re so much better than an FPIES reaction! 

Still, I hate it when he looks like this:

Sick Zac CradleRockingMama.com

Poor little guy.

I had to leave for work on Monday, the first day I would have been ready to trial a new food. Even thought we suspect he’s outgrowing FPIES and Darrel is growing impatient to trial more foods more quickly, I’m not comfortable, yet, with starting trials when I’m gone.

Mores specifically, I’m not comfortable starting food trials when the BOOBIES are gone. Zac likes to comfort nurse when he’s reacting, and on the off chance that the new food causes a reaction it would be best for both of us if we were together.

So the food trial is delayed until Friday. Bummer.

In other random bits of life over the past couple of weeks, I called to order more bananas for Zac, only to learn that our supplier closes down for two months every year! Ack!

They won’t reopen until November 5th, and we cannot go without bananas that long.

So I ordered a lot of bananas. 

A LOT.

Instead of my usual 20 pound order, I went a little crazy with “OMG we’ll run out” fear and ordered 100 pounds. 

I forgot to take a photo of a full box, because Darrel and I were working so quickly to freeze those suckers before they went bad, but here’s a partial box:

Partial Box of Bananas CradleRockingMama.com

That’s about 3/8ths of a full box.

We got 3 full boxes just like this. Yikes!

Here’s what about 30 pounds worth of banana peels looks like, too, just for fun:

Big Box of Banana Peels CradleRockingMama.com

I don’t think we’ll run out of bananas before November 5th!

It’s well established by this point that Jed doesn’t like me leaving for work. One thing I’ve done to make it better for him is to start bringing him a little gift when I come back.

Since I don’t want give him toys every time, I always bring him a little book. Less spoiling that way, and books are fabulous any time, right?

Last week when I gave him his book gift, he was thrilled to see it was a Clifford the Big Red Dog coloring and activity book. We went through the book from beginning to end right away, with me asking him to complete the activities, and him telling me stories about each of the coloring pages.

I had to stop and take video of one particular page, though, and thought I’d share it with you. Just because it’s totally cute and we can all use a little giggle, right?

Here’s what Jed thinks “whales” are called:

Blow-hole fish. Too. Cute.

How he learned the name “blow-hole” but missed the name “whale”, I’ll never know!

Oh, and even though he gets a book and not a toy, he has made it quite clear that he doesn’t think it’s a proper gift unless it is wrapped. He almost completely rejected the book two trips ago because I simply handed it to him from my suitcase!

So now I have to hide wrapping paper and tape in the trunk and wrap the book before I come home.

The things we do for our kids, right?

How have things been in your neck of the woods?

Flying High

Flying High CradleRockingMama.com

Hope you had a fabulous Labor Day weekend!

I took the day off from blogging because I was working. That’s okay, though! Other than suddenly being required to be at work a little more than I’d like, my family and I are flying high! (At least, for the moment.)

As reported, Zac passed sweet potatos with flying colors, and the first week of the sea salt trial proceeded with no concerning symptoms at all!

He’s sleeping more at night, and eating more foods because they taste so much yummier with a little salt added.

Things for Mr. Zac are going great! 

Now for the interesting part. Let’s talk salicylates.

Remember last week when I shared that the Fructose Malabsorption parents advised me to look in to amine or salicylate sensitivity for Jed?

I have not had as much time to research that as I would like, thanks to flying so much, but I have begun the process.

After an initial research “once-over”, I must say that my instinct says at least Jed and I suffer with salicylate sensitivity in our family.

Oh, why do I think *I* suffer from it, too?

Because one day at work last week I ate sweet potato for the first time in over two years. It was delicious! And an hour later I got a mild headache with some brain fog, and severe stomach cramping.

Sweet potatos are high in salicylates. 

As for Jed, he has so many of the salicylate sensitivity symptoms it just isn’t even funny!

We’ve had his speech therapist do an informal ADHD evaluation for him before, because he had so many ADHD symptoms (she determined he wasn’t actually ADHD). He has become increasingly defiant, so much so that I wouldn’t be surprised if he could get an Oppositional Defiant Disorder diagnosis. He wakes frequently at night, screaming, and often grinds his teeth overnight. He reports frequent bad dreams. I can’t tell you the times I’ve heard him scream “Don’t do that! It makes me SO ANGRY!”

This is one of the best descriptions of salicylate sensitivity I’ve found. Reading this, I see “Jed” written all over it.

Another interesting tidbit: salicylates are basically a naturally occurring food chemical. When either natural or man-made salicylates are present in perfumes and cleaning products, airborne exposure can cause many of the same symptoms as when salicylates are ingested!

My Mom and I both cannot walk down the housecleaning aisle in a grocery store, or through the perfume department at a department store, without instantly getting a splitting, “make me hate the world” headache that lasts all day.

I haven’t been able to wear my own perfume for the last decade, because it gives me such a bad headache.

On the plane, when people are especially…um…stinky…in the lavatories, fellow Flight Attendants will often spray perfume-y air freshening sprays to mask the scent.

I’d rather smell the poop and farts; those air freshener sprays give me an instant headache and mean I have to go to the other end of the plane for at least 20 minutes until the initial blast fades.

So, yeah.

In addition to FPIES, Fructose Malabsorption, Histamine Intolerance and traditional IgE allergies, we now get to add Salicylate Sensitivity to our list of “food-caused illnesses”. 

Yippee, y’all. 

I don’t exactly have a game plan in place for the next step of this process. So far, Zac doesn’t seem too terribly affected by salicylates. It probably wouldn’t be a bad idea, though, to progress with FPIES food trials from here on out of foods that are safe for all things: fructose, histamine, and sals.

It also seems clear that I need to put Jed on a NEW elimination diet…I just don’t know what that diet will entail, yet. 

Remember, I’m still in the early research days, yet.

With all this new, inconvenient news to deal with, why am I still titling this post “Flying High”?

Because no matter what life throws at us, Darrel and I are handling it all a lot better since we did such good work on our marriage!

I can’t tell you how big a difference that has made in all aspects of our lives! It really does affect everything if your marriage is rocky. I’m so happy we got our act together when we did…learning about the salicylate sensitivity would have sunk me, emotionally, had we not straightened things out.

As it is, I’m starting to accept the reality that there will never be a “light at the end of the tunnel” for us. There won’t even be an “end of the tunnel”!

In the beginning, we had MSPI and IgE allergies to deal with, both of which can easily be outgrown in children. Then came FPIES, which is also typically outgrown.

Without realizing it, I latched on to the idea of an “end” to this madness happening for us someday. Our approach was to do what was necessary to survive until…

Now, with Fructose Malabsorption in me and the boys, Histamine Intolerance in Zac, and Salicylate Sensitivity in me and Jed (and maybe Zac, too), the truth is clear to see: this will never end.

The way to truly progress for us is to find a way to manage our particular dietary needs with minimal life restrictions.

In other words, now that it seems as though FPIES is starting to fade away, we need to stop being shut-ins so much…even if we’re still going to be severely restricted with our dietary needs.

How am I going to make that happen?

I have no idea. 

But it’s where we need to move towards now.

Oh, and here’s a cute little story to share!

The boys have been on a “Clifford the Big Red Dog” kick lately. The other day, they came up to me with bowls from the cabinet, asking for water.

I shrugged and gave them some water.

They put the bowls down, and did then did this:

Pretending to Be Puppy Doggies CradleRockingMama.com

Yup.

They pretended to be Puppy Doggies and lapped at bowls of water.

They also licked me. A lot.

That was weird. 

But God bless imaginative kiddos, right? They had so much fun pretending to be doggies for a day!

Have you also discovered you have food issues that will never end? What are your best tips for expanding your life while restricting your diet? 

Oh, and have your kids ever play-acted like the boys did? Please share the story! 

How We Saved Our Marriage (Part 3)

How We Saved Our Marriage Part 3 CradleRockingMama.com

Read Part 1 and Part 2 of “How We Saved Our Marriage”.

After our Serious Talk, Darrel and I felt a lot more optimistic about the state of our marriage.

In behavior, nothing had yet changed, but simply being on the same page again, simply communicating clearly with each other injected a spirit of hope into our lives that we hadn’t felt in a long time. 

I left for work the morning after our Serious Talk and epiphany, which was actually perfect since that gave us some distance to sit and work on our homework assignments.

We realized that showing each other that we loved each other had been easy when we were alone. With the kiddos around, our lives had changed. We couldn’t have 100% of our focus on each other any longer (even without chronic health issues), and our personal expectations and needs had changed, as well.

So for our first homework assignment, we each had to sit down and write out the things we needed to hear and see from the other person in order to feel loved. 

This goes back a “5 Love Languages“-type approach. We realized that neither of us had actually stopped doing things to show our love for each other; with the demands of our life being so much more demanding, though, we needed to prioritize to make sure that the things we did for each other would get the most “love bang” for the their buck!

I had the additional homework assignment of writing out my priorities for housekeeping. 

Darrel, as I said, is not a mind reader, and he agreed that having a list printed and displayed would help make him aware of what I wanted done, and ensure that anything he DID around the house would be off my list. That would ensure the house operated more smoothly, and I would feel gratitude for his participation and loved by him (turns out? “Acts of service” is one of my “love languages”!).

In the end, I created 4 lists for our wall: daily tasks, weekly tasks, never-ending tasks, and a “honey-do” list.

I printed them out, put them in some cheap frames I had laying around (that I spray painted to be pretty), and hung them up. We use a dry erase marker to check off tasks as completed.

Our Chore Charts CradleRockingMama.com

It seems so simple, right? Could a conversation and some homework assignments really make a major difference in our relationship?

YES.

The morning I flew home from work, Darrel sent me a text saying he’d had a hard time sleeping that night, and instead of getting up and playing video games or watching TV, he’d taken advantage of his unexpected insomnia to scrub the bathtub out for me.

He’d heard me mention that I was especially sore and achy after this work trip, and thought I might appreciate a long, hot soak when I got home, you see!

Y’all, I can’t tell you the last time Darrel made a gesture like that on his own! Driving home from the airport that morning, I felt like I was floating!

And I enjoyed a “kids-free bath tub soak” that was just what the doctor ordered.

Darrel’s birthday was last week, and I surprised him with a date. I arranged for my parents to watch the kids overnight, and showed up at Darrel’s office before he left for the day. We ate dinner at his desk, then went to a place that has mini-golf and arcade games (and other activities) and played for a couple of hours before going home and getting some cuddle time without kids interfering.

Our Date Night CradleRockingMama.com

I’ll be honest – neither Darrel or I have been able to check off every item on my daily or weekly lists at the end of every day or week. However, more of those jobs are getting done than ever had before, and now I’m not anxious about the lack of completion.

If the job didn’t get done that day or week, I know, now, that it was because we had too much to do and couldn’t get to it, rather than “I’ve worked my tail off and he’s not helping”.

We’re both working off the list, and that makes it possible for me to not feel upset when the list doesn’t end.

Darrel has left love notes out for me to find at unexpected moments, which always make me smile and feel “twitterpated” (you’ve seen Bambi, right?).

We’re back to seeing eye-to-eye on all things. No more feeling like the other person “doesn’t get it” or is being stubborn and willful.

We’re more casually affectionate toward each other. More random hand-holding, side hugs, quick pecks, and sitting side by side on the couch.

The biggest benefit, though, is in Darrel’s demeanor.

I know you’ll think I’m exaggerating, but he looks younger now! He’s lighter and more pleasant in everything; more patient with the kids, smiling more, laughing more, finding more humor in things. He’s just…happier in all aspects of his life.

Turns out, Darrel can handle anything that life throws at him, as long as he confidently has me in his corner.

Darrel says the same demeanor change is there for me, too. That I seem happier and calmer, as well.

Apparently, I can handle anything life throws at me, too, as long as I know Darrel is in my corner.

We’re a damn good team, y’all. We make it possible for each other to function at our best…as long as we are together in our hearts.

__________

Now, all marriages are different, and while I shared this story because I thought it could help somebody, I realize it won’t help everyone.

However, having been in a marriage that ended, and in one that is still going strong, I can say with total honesty: as long as both of you WANT to make the marriage work, you CAN make it work. There is always hope!

Maybe your epiphany will look different than ours. Maybe your homework assignments will be completely unrelated to ours. Maybe the change will be slower.

But it can be done.

For your kids, but mostly for your own soul, if you are in a marriage that is in a rough place, I sincerely hope you’ll reach out and have a conversation with your spouse.

If both of you are willing to accept responsibility for your own actions and do what needs doing, you can have your Honeymoon marriage back and life will feel better all around.

I know it seems hard to do when things are rough, but it helps to remember why you married your spouse before you start the conversation. 

Here’s a tip to help in that process: before you sit down to talk to your spouse, grab some quiet, alone time by yourself. (If you have to hide in a closet to do it, so be it.) Close your eyes, and start with the first day you met your spouse.

Force yourself to remember every little thing you liked about the person. Think about their smile, their good qualities. Think about the things your spouse did that made you feel like the most important person in the world. Think about the times your spouse has “gone to bat” for you; defended you and your family. Think about the sweet, loving things your spouse has done.

If you’re like me, your brain will automatically start throwing in “Yeah, but…” thoughts.

FIGHT THEM.

Focus on the Good. 

A little bit of time with that, and you may not be madly in love with your spouse again, but your heart will probably be softened enough to ease some of the stings from the recent disconnect you’ve experienced.

Your heart and mind will remember: I married this person for a reason. I love this person. I can sit and love this person in my conversation today, offering grace and understanding (even if I disagree). This person is important to me, and we need to figure out how to make sure we show that to each other.

It works, y’all. I did that, and it made it a LOT easier to listen to the hurtful things Darrel said in our first conversation. It made it possible to not immediately jump on the defensive. It made it possible to temporarily ignore the sadness and remember the love.

Showing forgiveness, grace, and understanding to him made it possible for him to show the same things back to me.

And we saved our marriage.

I don’t think I have all the answers about marriage. I don’t assume what I’ve said here will work for everyone.

I only hope that this story might give someone some hope, some encouragement, and maybe an idea of a place to start.

Let’s not let FPIES (or parenthood in general) trash our marriages.

Let’s fight for them. 

How We Saved Our Marriage (Part 2)

How We Saved Our Marriage Part 2 CradleRockingMama.com

Please read Part 1 of this story.

So here’s the scene: I’m full-on, 100% ticked off at Darrel for his real and imagined transgressions. I decide we need to have a Serious Talk.

That’s code for “I need to let Darrel know, in no uncertain terms, exactly how he’s ticked me off and what he needs to do to fix this.”

Fortunately, I’m not 16 years old any more, and I have acquired some tact and wisdom in the intervening years.

Also, I love Darrel. As mad as I was, at my core, I know we make a great team and have tons of love and respect for each other.

It was just…really  hard to tap in to that at the moment.

So I prayed. I prayed that God would take over this conversation and help me say the right things.

Most importantly, I prayed God would STOP me from saying the wrong things.

What’s that old saying? “You have one mouth, but two ears for a reason.” Or something like that.

So I started the Serious Talk with a question instead of an accusation. “What’s going on with you?”

And he answered.

Oh, did he answer. 

I won’t lie. He said some fairly hurtful things. He said some things I disagreed with 100%. He said some things that instantly – if I hadn’t prayed and handed control of the conversation over to God – would have made me jump out of my chair screaming “Bulls***!”

But I didn’t do or say anything. I waited. I listened.

Y’all…it was hard. 

When he was done, I spoke my piece. I told him how I saw things. How HE had done wrong. And I called BS on some things – though in a fairly tactful manner.

We went back and forth for a while, never seeming to get any closer, but at least not getting further apart.

Then, suddenly, the epiphany.

Do you want to know our big problem that caused the Serious Talk?

From my point of view, it was his tendency to not help out more around the house. I’m overwhelmed! Cooking non-stop, preserving foods, doing food research, raising the kids, nursing 3-5 hours a day, plus having to drop everything and go to work (for which I bring in a decent paycheck, thankyouverymuch – no “well, you don’t work for pay” argument here)…it’s a little much at times.

So when he comes home from work and barely engages in the housework at all, benefiting from my hard work while not contributing more than his paycheck, well, it started off just being irritating, but by the time we had our Serious Talk…it was infuriating!

So I’m leaning forward, holding his hand, trying to explain that I need more help. He interrupts me to defend himself. “I DO things around the house!” He listed off all the things he does.

The whole time I’m thinking in my head, “Yeah, but…” and suddenly the epiphany hit.

He DOES do stuff at home. He really isn’t  a total slacker in the housework department.

He just does stuff I DON’T CARE ABOUT

“Honey, have I ever told you the things I actually want you to do to help around the house?” I asked him.

“Not really. Well, no. Not at all.” he replied.

DING DING DING DING

Ladies and gentlemen! We have a “eureka” moment!

It takes two to tango. In disagreements it is exceedingly rare for one party to be completely innocent and the other party to be 100% wrong.

Even knowing that, though, I had not been able to discern where *I* had been at fault in our particular rough patch.

Here was my answer.

Darrel, like ALL men, is not a mind reader.

How can he properly help me around the house when he has no idea of my personal priorities for home upkeep?

He can’t. Simple as that.

So I’ll sit and stew over his “lack of help” – even if he’s doing “stuff” around the house, and he’ll work up resentment over my lack of appreciation for all that he’s doing. (Well, until he just stops doing anything at all, because, as Darrel put it, “why bother?”)

And we’ll layer resentment upon resentment until we no longer can stand the sight of each other…and for what?

For a lack of clear communication.

Now, some may argue that a man should just KNOW what to do around the house. That’s pretty much the thought I had been operating under.

The problem with that is easy to see, if you step back for a moment.

What if this particular man was not raised to know how to keep a house? Lots of mothers don’t properly impress upon their sons true housekeeping skills, so they grow to be men who don’t know how to keep a house.

However, even if your mother-in-law did an excellent job teaching her son housekeeping, what are the odds that her  priorities and your  priorities are exactly the same?

Yeah, that’s what I thought, too.

Now, you may be reading this and rolling your eyes, writing me off as a drama queen. “Pshaw…her marriage didn’t need saving! This is piddly stuff! Not at all like what *I* have to deal with!”

Don’t be so hasty!

Did I mention I’ve been through a divorce? As a consequence, I’ve talked to a lot of experts about marriage over the years (my criteria? 30+ years of marriage and still happy to be married!) and read a library worth of marriage books, and do you know what I learned from all of that research?

Unmet expectations can break a marriage faster than anything else.

If your expectations aren’t met, you build resentment. If you build resentment, you stop building open lines of communication. If you stop communicating, you stop feeling connected. If you don’t feel connected, you stop caring.

You stop caring, and your marriage is, well, not necessarily over, but certainly in a really bad place.

And you get unmet expectations from a lack of clear communication.

So this may sound like Darrel and I were having a minor disagreement about division of labor, but it cut more to the core than that.

It had made me cry. It had made me feel completely alone. It had made me wonder with utter despair if this was to be my life for the next 50 years. We had stopped seeing eye-to-eye on many things.

That’s a lot more than just a minor disagreement over division of labor, right?

You can imagine how stunned I was to discover that Darrel had felt all those things, too! (Well, I don’t know if he’d cried about it. Probably not. I cry more than he does.)

Our “eureka” moment had revealed two people who desperately loved each other, and were both drowning in resentment and sorrow. Two people who badly wanted to “be” like we had been in the beginning, but had lost our way and didn’t know how to get back.

So we made a plan. 

We gave ourselves some homework assignments. 

Since this is already pretty long, check back to find out what our homework assignments were, and how it worked out!

Have you ever struggled with a lack of clear communication in your marriage? How did you overcome it?

How We Saved Our Marriage (Part 1)

How We Saved Our Marriage Part 1 CradleRockingMama.com

Last week I mentioned that Darrel and I have had to do some serious marital work lately, so I’m going to take a slight detour from the world of FPIES and Fructose Malabsorption and share that story.

I’ve debated about sharing this for two reasons. One, because it’s not directly related to food issues, and two, because it’s very personal and private.

With Darrel’s permission and agreement, though, I decided to share because I think some people can benefit from hearing this story, and in a way, it can  trace back to food issues (at least partially).

If you’re married, you surely know that all marriages have ups and downs, ebbs and flows.

That’s part of those pesky vows we make on our wedding day. “In good times and bad, in sickness and in health.”

ALL marriages go through times of great connection and passion, and times where you almost feel more like roommates who share the same name.

So, in my humble opinion, all marriages require work at some point. It takes effort to remain committed during times when your relationship…well…sucks.

Add to a normal marriage the strains of a chronic illness (or two, or three), and you’ve got a recipe for marital disintegration.

If you’ve read this blog for any length of time, you know I’m a proponent of the “bucket theory”. Usually this applies to tolerance levels of trigger foods, but it actually can apply to much more.

I’ve read relationship books that refer to this theory as a “bank account”; the general idea is that in any relationship, we make “love” deposits into the other persons “bank account”, and on bad days (or bad times) make withdrawals.

I like to keep things streamlined in my own head, so I prefer to think of it as “filling my husband’s bucket”.

If I’m pretty good at keeping his bucket full of lovey-dovey, warm fuzzy feelings for me, then on my bad days (or bad stretches), when I’m being nothing but an irritating nag, there’s a pretty deep well of love in his heart to balance out any draining I’m doing.

Of course, this works in reverse, too. Darrel has to keep my bucket pretty full so on days when I’m picking up his laundry from all over the bathroom floor (5 feet from the laundry hamper), I don’t decide I hate him.

When Darrel and I met, we had an intense connection. For those unfamiliar with the story, you should read it.

Some people say that “opposites attract”. It’s true; they do.

But they don’t often have the ability to stay together for the long haul.

Darrel and I are more of the opinion that it is the similarities that bring true closeness.

Differences add spice and interest to a relationship, but if you don’t have some very important core issues in common, the foundation will never be firm enough to withstand those rough patches.

From the very beginning, Darrel and I realized we had ALL the core values in common. Even minor things were completely simpatico between us.

And we still had enough differences to keep a little spice and interest!

Suffice it to say, our relationship had a HUGE, very full bucket of love and respect to draw on during these last two FPIES years.

I commented in our anniversary post a year and a half ago and again on our 5 year anniversary that I loved the fact that Darrel understood I needed to give 85% of myself to the boys right now, putting him last. That we both knew that one day, we could again put each other and our marriage in its proper place as the top priority in our lives, and were only back-burnering it temporarily due to the kids food issues.

That truly was always the plan. And we were confident that we had enough love and good-will deposited in each others buckets to survive until that day came.

Here’s where it gets tricky. When do you know you can start shifting the priorities around?

When dealing with a chronic issue like FPIES that has put your marriage last, when do you start to put your marriage first again?

I think we both sort of thought it would be when Zac grew out of FPIES. We’d never really defined the benchmarks for priority shuffling we were looking for.

This April, when we discovered goat milk is safe for Zac, we suddenly had the “FPIES out” we needed. Goat milk, while not a complete replacement for my breast milk, allowed us to occasionally take advantage of the grandparent baby-sitting service and spend time together.

Only, we never did.

While we’d never actually discussed when we were going to start putting some effort back in to our marriage, I think we both recognized that goat milk was the right time to start making some effort.

Since neither one of us made any efforts in that way, we both – without realizing it – started growing resentful and angry.

Now, I titled this post “How We Saved Our Marriage”, but I can promise you that Darrel and I were never bad enough to talk divorce, or even counseling. So some might think I’m being a tad over-dramatic in the title.

But I don’t really think so.

While we hadn’t trashed our marriage so badly that we were about to end it, we were in the beginning stages of habits, patterns, and thoughts that would put us directly on the path of marital destruction.

When you get a hole in the side of your boat, is it better to patch it right away? Or wait until you’re halfway – or completely – submerged before addressing the issue? Either way, you save the boat, right?

One simply has far fewer long term consequences and clean-up involved.

So yes, Darrel and I were heading down a bad path.

Sometime in the last few weeks, it came to a head. We suddenly realized what we were doing, and recognized that we really, really needed to do something about it.

We needed to figure out how to fix “us” so we would have an “us” in ten more years.

We needed to save our marriage. 

And we did. 

How we did it, though, is not something that can be summarized too quickly, and this post is already quite long. So stay tuned for the rest of the story. (Nothing like a cliff-hanger, right?)

Before I go on with what we did to fix things, I’d like to know: do other parents sometimes feel like their marriage has been thrown under the FPIES bus? 

Salt Shaking

Salt Shaking CradleRockingMama.com

This weekend, Zac reached another milestone: sweet potatos are safe!!

I. Am. Ecstatic!

Sweet potatos are SO yummy and nutritious! After slightly over a week of sweet potatos, Zac’s weekly weigh in was a stupendous 28 pounds!!

Plus, this week he’s done his usual “new food developmental leap”. He’s trying to talk more. I know I’ve said that he’s babbled more in the past, but this is different. He’s actually attempting to use words and sounds to interactively communicate with us! Before, it was just an increase in babbling with an occasional word thrown in.

This is huge!

He’s been more energetic, playful and rambunctious, even swatting back at his brother when Jed gets a little too boisterous.

Jed, understandably, is not a fan of that particular developmental boon.

With a new food under our belts, we were ready to jump right in to the next food trial.

I’ve been chomping at the bit to trial spaghetti squash and butternut squash. They’re both coming in to season now, and they would both be a fantastic addition to his diet (and mine).

Darrel, however, finally pushed hard for the trial he’s  wanted to do for months: salt.

It isn’t a bad idea; salt makes food taste SO much better, and it’s essential to life. I just wanted to trial actual foods instead of condiments during the summer months when fresh produce is so readily available.

Darrel pointed out, though, that we’ve had a hard time getting him to eat some of his safe foods, but salt might make them all more appetizing. (Cucumbers are delicious…but they’re far better with a little salt sprinkled on top, right?)

Having salt in our food arsenal might make future food trials easier. Right now, I mostly have to hide new foods in other foods for Zac because he gets picky and turns up his nose at many of his safe foods.

For instance, I outlined the trouble we’ve had getting him to eat sweet potato for the trial. I finally found the way to get him to eat more sweet potato than I could imagine: sweet potato ice cream! He’ll scarf down 2 cups of that in one sitting and be a happy little guy!

It works, but it would be very nice to be able to just serve him his foods without resorting to cleverness and trickery.

Maybe salt can make that happen.

So Saturday night we served him his chicken for dinner, but this time we sprinkled some salt on it.

It went great! No problems at all!

The next day I added 1 tsp. of salt to a batch of cookies I made for him. Obviously these aren’t sweet, dessert cookies; they came out more like a savory dinner bread. But it worked, and he ate them.

Every food we can, we shake some salt on for flavoring.

Fingers crossed it continues to go well!

As for Mr. Jed, well, he’s had a bit of a tricky week.

I’ve been making the Quinoa Breakfast Bake for him for ages, and he’s never had a problem with it at all. Last Monday, he begged me for a “black cake” – Jed-speak for Chocolate Cake – so I added some cocoa powder to the breakfast bake and made him his requested black cake.

It was all he wanted to eat for two days!

For two days, he was also a miserable human being to be around.

He had absolutely zero self-control; tantrums and screaming fits over the mildest of inconveniences. He grew increasingly aggressive, too, hitting me and Zac and screaming at me “I don’t like people! I don’t like anything!”

I thought I’d lose my mind. When he gets like this, it’s clearly a food reaction of some kind so I try very hard to be patient and gentle in my approach to him. Certainly I correct his behavior and follow through with consequences and punishments if necessary, but I try to remember: this isn’t Jed.

This is Jed on drugs.

It’s just that in our case, the drugs are his food.

But y’all, it is so. hard. to not lose my cool completely when my older son suddenly goes off on a rage and does something horrible to me or his brother!

Well, as is typical for him, he bounced back a day and a half after the last ingestion and was typical, charming, wonderful Jed again.

In the meantime, I had found some maple syrup candies at the health food co-op that I happily bought for him.

It’s the first store-bought candy he’s ever been able to eat!

We decided to allocate it as a reward for completing all his chores for the day. One piece of candy for earning all 6 stars.

Hey, it’s cheaper than buying a new train every week!

And it worked! He was trying to finish all his chores before noon so he could get another piece of candy. Very cute.

Unfortunately, all week he was just…difficult. Not nearly as horrible as the Monday/Tuesday “black cake” debacle, but just stubborn, willful, argumentative, and combative.

Yesterday morning he found my maple syrup candy hiding place and ate an entire package – 6 pieces – at one time. Little sneak!

At first I was just upset that he’d disobeyed me. I understand the temptation; it’s hard for kids to control themselves around candy, after all. So I wasn’t furious, just upset.

Later, though, I was frustrated and hurt. Within hours of eating the candy, he turned into the maniac that visited us on Monday and Tuesday.

He refused to do his chores. He screamed at everything. He flung his body around and angrily exclaimed that he “hated everything and everyone”.

This is NOT normal for a typically happy 4 year old, y’all!

I went to the Fructose Malabsorption Parents group on FB for help. Is it possible, I wondered, that the cooking process of the cocoa powder and maple syrup made them more “fructose-y”? He’s eaten both with no problems before, but always they were room temperature or cold.

The parents there suggested that his issues sounded more like an amine or salicylate intolerance.

Sigh.

Seriously?

Isn’t it ever possible to get a break? We feel confident we’re finally outgrowing FPIES, but now we get to delve into another bizarre food issue?

One step forward, one step back.

I’m getting tired of the food intolerance waltz.

But I’m so relieved to know that Jed truly is a wonderful child…except when his food is messing with him. Knowing what sort of amazing person exists behind the food attitude makes me want to fight even more to find the answers to help him.

Have you dealt with amine or salicylate issues before? What are your go-to resources for help?

How to Keep A Food & Symptom Journal

How to Keep a Food and Symptom Journal CradleRockingMama.com

More frequently than I’d like to see, new parents post on the FPIES message boards.

It’s almost always the same basic introduction message: “My child was just diagnosed. I feel completely overwhelmed! What do I do now?!”

Every single time, the first piece of advice given is to start a food and symptom journal. 

We’ve kept one on both our kiddos for over 4 years now, and I have to say that food and symptom tracking is invaluable data for any parent tasked with keeping a food allergic/intolerant child safe.

However, many folks new to the food allergy/food intolerance world have asked – both on the boards and specifically to me – how exactly they are supposed to keep a food and symptom journal! It seems so overwhelming at first. They wonder what they’re supposed to write down, what format it should be in, and how detailed they need to be.

Today I’m going to clear the air on the subject, and share with you exactly how to keep a food and symptom journal.

Ready?

The best, most perfect food and symptom journal is the one that works for you. 

The end.

(Just kidding.)

Seriously, though…when it comes to keeping track of your child’s food intake and symptoms, the only thing that matters is what makes sense for you, and therefore, what you will actually use to collect the data. The actual format or method is immaterial. 

It’s sort of like a calendar. Some people are totally techno-phobic and must have a paper calendar system, while others are technophiles and keep everything logged into some app or program.

Both are perfectly fine. It’s all about figuring out what works best for you.

Keep in mind that you may not be the only person responsible for keeping records on your child. Your spouse, parents, or baby-sitters may also need to use the food and symptom journal. Consider accessibility to all responsible parties when making your choice.

Here are some suggestions to get you started. I haven’t used all of them, but am recommending ones that I’ve either used myself or heard other FPIES parents report highly about.

Tech Food & Symptom Journals

  • Google Calendar. Lots of FPIES families report using Google Calendar for their food and symptom journal. It’s apparently very easy to set Google calendar up to record specific symptoms and food intake. I’ve never used it so I can’t tell you how to do it, but this has always earned a “thumbs up” rating from other FPIES parents. One big plus to this is that it can be accessed online, so you can easily pull the data and organize it in the  middle of a doctors appointment.
  • Apps. There are a few smartphone apps out there that can help you keep track of food intake and symptoms. One that is recommended is mySymptoms Food and Symptoms Tracker. This one looks promising to me! I use my phone for almost everything; however, for us it wouldn’t be practical since I travel for work and my parents watch the kids when I’m gone. If I didn’t travel, though, I would probably give this a try. It has many of the same benefits as Google Calendar, but all conveniently located in one app.
  • Spreadsheets. For some very tech savvy people, they’ve created their own spreadsheets and databases to record food intake and symptoms. Honestly, I do not know how they did it, but the ones who have done so are very happy with the results! If you’re especially talented in this field, you could consider doing this.

Paper & Pen Food & Symptom Journals

  • Worksheets. You can find food & symptom journal templates at both the IAFFPE and the FPIES Foundation. Look them over, see if one seems to fit your thinking and record keeping style, print them out and give them a shot. OR…
  • Spiral notebook. Just a blank spiral or composition notebook that you fill with the data you find pertinent. This is the method I use for most things.

If you go the old-fashioned, blank notebook method, I’ll share how I use ours and you can use that as a starting point for your own methodology.

Since I have two kids to keep track of, I use two facing pages per day. One side is Jed, the other is Zac.

I write the date in the upper left hand corner, then the kiddos name at the top of each page.

After that, it’s just a timeline! Here’s a sample of one of Zac’s baseline day entries:

7:30 a.m. – woke up
7:40 a.m. – wet diaper
8:00 a.m. – ate b/q/e/c breakfast bake, drank 2 glasses gm
9:30 a.m. – poopy diaper – perfect!
10:00 a.m. – snacked on q/e/c/a cookies – 16, drank 1 glass gm
11:45 a.m. – napped, woke at 1:25 p.m.
1:30 p.m. – wet diaper
1:45 p.m. – ate q/e/c/a cookies – 5
3:00 p.m. – ate b/a/gm popsicles – 3
5:30 p.m. – poopy diaper – perfect!
6:00 p.m. – ate chicken – 1/2 c. (4 oz.), quinoa – 1 c., drank 1 glass gm
7:00 p.m. – ate dried cucumber slices – 13
8:15 p.m. – asleep

Then at the bottom I write anything pertinent about the day. Example: “Today was a great day! Didn’t fight me for naps, behaved well, perfect poops, think we’re ready to start our next food trial!”

For us, this makes sense. B=banana, GM=goat milk, A=apricot, E=egg, Q=quinoa. Since he has such a limited diet and I often adjust the recipes as I make them, this is all I need to know.

Of course, things look very different on accidental ingestion days, or on food trial days.

Then his log might more resemble this:

7:30 a.m. – woke up
7:40 a.m. – wet diaper
8:00 a.m. – ate b/q/e/c breakfast bake, drank 2 glasses gm
9:30 a.m. – poopy diaper – very good, but a little mucousy; good color and consistency
10:00 a.m. – snacked on q/e/c/a cookies – 16, drank 1 glass gm
11:45 a.m. – napped, woke at 1:25 p.m.
1:30 p.m. – wet diaper
1:45 p.m. – ate q/e/c/a cookies – 5
3:00 p.m. – ate b/a/gm popsicles – 3
**4:00 p.m. – ate a bite of one of Jed’s rice crackers – GRRR!**
5:30 p.m. – poopy diaper – perfect! (miracle!)
6:00 p.m. – ate broccoli – 3 stalks (approx. 1/3 c.), chicken – 1/2 c. (4 oz.), drank 1 glass gm
7:00 p.m. – ate dried cucumber slices – 13
9:35 p.m. – asleep – fought sleep pretty hard; fussed and thrashed over an hour but finally calmed and went to sleep

My notes under that day might read: “Day 3 of broccoli and it has been going pretty well. Some mucous in the poop. Reaction? Body adjusting? Don’t know yet. Stinker grabbed a broken bit of cracker off the floor while Jed was eating. I HATE ACCIDENTAL INGESTIONS! But things have been going well enough that we decided to keep going and just observe for now. Hopefully it won’t be enough to cause a reaction to confuse the food trial. Concerned about fighting sleep at night. Not normal for him. Will watch to see what he does overnight and tomorrow. Hopefully it’s just the rice cracker and nothing more.”

__________

All this is fictional, but fairly accurate for a typical food and symptom entry for Zac.

I don’t write down nursing on the paper log, simply because I don’t often have the notebook with me when I actually nurse him. Every nursing session is recorded in an app I have on my phone.

Since I’m the only one who nurses him, that works well for us. Everything other than nursing is recorded in the notebook, so anyone can write down the other data there.

Using the app for nursing makes it easy for me to cross-check nursing session numbers and length of time, since the phone keeps an accurate time-log of how long he actually nurses.

During food trials, I’ll sometimes even grab the number of nursing sessions and total time nursed from the app and write in in the food journal book. (He normally nurses 3.5-4 hours per day; if he nurses for 7 or 8 hours on a food trial day, that is concerning, since that could be a sign of comfort nursing.)

I’ll often write something like “Broccoli: Day 3” at the top of the page, too, to make it easier to flip through the book to find food trial data.

I usually include any activities we do, such as going to the park, playing in the sandbox, or coloring with beeswax crayons…just in case. Such things can prove useful when you have an unexplained reaction.

If he’s especially cranky or fussy, I note that in my comments – unless there’s a specific tantrum he has, which would get noted in the timeline. This often helps me determine if he’s having a reaction or doing a typical baby thing like teething.

As you can see, there are lots of options for keeping track of food intake and reaction symptoms. You may decide, like us, to use a combination of record keeping for reasons that best suit your purposes. 

Whatever way you go, though, be as detailed as you need to be. Write down everything you can think of at first. Quantity of food, any unusual behavior or potential reaction signs you see, any activities that are atypical for you, and times and dates are vital. Anything else, like my daily summary, is icing on the data keeping cake.

If you have any tips or questions about food and symptom journals, please share them! I’m sure this isn’t a comprehensive list, and I’ll be happy to include anything that you can think of or fill in any blanks I may have left.

How do you prefer to keep your food journal?