Back in January, our new dietician had a Fructose Free Vitamin for us to give to Mr. Charm. This new vitamin is a powder and the instructions on the can say to mix the powder with a thick liquid, like yogurt or pudding. Houston, we have a problem! I haven’t … Continue reading
Do you know one of the worst things about FPIES? It renders you completely helpless. Impotent. Yesterday I changed 8 bloody, mucousy, smelly diapers for Mr. Happy. He screamed in pain immediately after pooping each time; by the end of the day, he was screaming in pain on the … Continue reading
Two weeks ago, I finally got off my duff and made a Very Important Phone Call. MedicAlert. One of the other FPIES Mamas had recently reminded us all to do so, after she had a near accident one day. It reminded her of the time that her family was … Continue reading
Dearest Sweet Boys, I love you SO much. And I love how you love me. Really, it’s absolutely wonderful how you want to be near me, right there with me, doing exactly what I’m doing, all the time. The way you both want to be held constantly and snuggle with … Continue reading
It’s been a little “heavy” around here for the last couple of days, so I thought I’d lighten things up a bit. Sometime last year, the Geek and I were discussing all the random things we’ve said since becoming parents that we NEVER thought we would say. Not so much … Continue reading
Today is Rare Disease Day. This is a worldwide initiative to bring greater awareness to those who suffer with rare diseases. Rare Disease Day in the United States is sponsored by NORD (National Organization for Rare Disorders) and Rare Disease Day Worldwide is sponsored by Eurodis (Rare Diseases Europe). … Continue reading
In the same vein as my FPIES Eyes post from yesterday, last fall I was reading on the Food Renegade website and found this interesting article: Your Extra-Virgin Olive Oil Is Fake. Well, hell. All we USE is olive oil. For our Food Allergic children. So if they’re cutting the … Continue reading
Over the weekend, one of the other FPIES Mama’s on the boards mentioned taking her children to the circus. She had received special permission to bring food for her FPIES kiddo, but her kids really really really wanted cotton candy! Fortunately, she remembered to check the ingredients first, which was … Continue reading
When I left on maternity leave, the Geek and I knew that we could afford to live on just his income…as long as nothing crazy happened. Hel-lo! If you’ve been reading this blog, you know that crazy came and moved IN! And our crazy is also crazy expensive: even with … Continue reading
I’ve got a great “Sunday Brunch” recipe to kick off the weekend! One thing that’s been missing in our FPIES/Elimination Diet/Fructose avoidance world is ‘bready’ items…waffles, bread, pancakes, cupcakes, cookies, etc. I’ve been experimenting, but it’s hard to make suitable replacements when you’ve had to eliminate so many standard baking … Continue reading
