FPIES is such a mysterious syndrome; the best education I’ve received about it has been from reading on the internet. These are some of the best resources I’ve found.
FPIES Resource Sites
The FPIES Foundation
My FPIES File Cabinet
International Association for Food Protein Enterocolitis
A good explanation of FPIES can be found here: Southwest Allergy
FPIES Social Media Sites
FPIES & Mudpies: Our Boys, Our Journey, Our New World…
Jacky Boy: A Growing Boy With FPIES
Livvy With FPIES
My Little Pie With FPIES
What’s Eating You?
Busy Hands Happy Tummies
Our Slice Of FPIES