Beginnings

Every FPIES family has a diagnosis story.  This is ours.

A Little Backstory

Hospitalized

A Fun Helicopter Ride

In The New Hospital, First Day

Second Day in the New Hospital

Both kids in the hospital!

Infant/Toddler Unit

Released

Learning a New Way to Cook, and Learning to Swallow My Pride

FPIES!

 

 

5 Responses to Beginnings

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  4. Julie says:

    I’m so glad I found this and you. I have suspected MCAS but it is difficult to get allergy treatment in the uk. I have found a specialist but she’s expensive so im saving up to see her. Feeling rough today as have reacted to grapes which I haven’t tried for a long time. I react to so many things sometimes it’s hard to recall them all. I only learned of this condition recently although I knew something was very wrong. Could I ask how you managed to find a specialist in the USA. Would you mind sharing the name of your specialist? I’m feeling overwhelmed as new food are coming on board and being crossed off the list of what I can eat all the time.
    Julie x

    • Carrie says:

      Julie, I’m so sorry I haven’t responded sooner. By now I’m sure you have already gotten help, but just in case, my specialist was Dr. Lawrence Afrin. He was at the Mayo Clinic but now is based out of Rochester, NY. His waiting list is CRAZY long, so if you want to go see him, call now and wait a year or two.

      He actually wrote the book on MCAD, titled “Never Bet Against Occam”.

      I know it’s overwhelming. I wish I could be more help. Definitely read his book, and don’t stop searching until you find the answers for you! Hugs!

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