Yesterday and today brought three more diapers I wanted guaiac-ed, so this afternoon I drove the kiddos the 50 minute, 35 mile drive to our pediatricians office. They tested positive. Not even ‘trace’ – just flat-out, full-fledged “positive” (which is a negative as far as I’m concerned). Combine that with … Continue reading
Yesterday Mr. Happy had two suspicious diapers. They were mucousy, and sort of, maybe looked like a little tiny bit of blood…but I wasn’t sure. Since we want to start nursing him again this weekend, I’d really like to know what his little body is doing before we start so … Continue reading
Mr. Happy had a rough day. He wanted to be held. But only in certain positions, thank you! He ‘snacked’ all day. Wouldn’t drink a full bottle at all! Just an ounce at a time, but every single hour. It was straight up comfort feeding. He napped a ton. More … Continue reading
As a busy Mama of two active boys, smack dab in the middle of house construction, busy learning about this new chronic condition my son(s) have, I don’t often have the chance to pamper myself. So it was a special treat last week sometime when I pulled out an emery … Continue reading
Mr. Happy seemed to be doing better on the Elecare last week. He had a few days of Happy Baby – no clinginess, no vomit, very little spit up, doing great! I thought it was just the transition to elemental formulas, and that he had pushed through to a new … Continue reading
I nursed Mr. Happy three times. Then he started reacting. So I stopped. Bummer for both of us. However, I knew my system wasn’t completely cleaned out, so it’s not really a surprise. I had just hoped that it was cleaned out enough that he would react only as badly … Continue reading
The Geek read my posts from yesterday, and so this morning, he let me sleep in. Until 1:00 P.M., y’all! Sometimes that man knows me better than I know myself, because my mood is decidedly more upbeat today than it was yesterday. Exhaustion can drain you of everything, even good … Continue reading
This morning I called both the pediatric Allergist and the GI doctor. I wanted to tell them about Mr. Happy’s increasing reaction to the Neocate, and our experiment this weekend with dilution. The GI was in labs all day, so his nurse (who was barely comprehendible) took a message and … Continue reading
Last week was stressful, as I’ve written. The diagnosis of FPIES has been tough to bear so far, just in the fact that there are no easy solutions to this problem. The more I read – the more I learn – the more scared I get about what we may … Continue reading
Today we had a follow-up appointment with the allergist. I was nervous, because I’d done as much reading as I possibly could in the previous 24 hours, and it appears to be quite common, at least, from the moms who report their experience on message board support groups for FPIES, … Continue reading
