I Hate Food Intolerances

I Hate Food Intolerances CradleRockingMama.com

I’m going to say something that will probably really raise the hackles of Food Allergy Mama’s everywhere: in a straight comparison, I love food allergies and I hate food intolerances. 

Of course I’d rather not deal with ANY of them, but let’s face it: allergies are easy in comparison. This is a problem food? Avoid it! Problem solved!

Before anyone hits the comment button with vitriol in their hearts, understand that I have kids with IgE allergies, non-IgE allergies AND food intolerances. I know how hard it is to deal with allergies. I’m not being flippant here. It’s very challenging to avoid allergens, and true IgE allergies have immediate life-threatening responses, so yes, food allergies are horrible. 

But more difficult than a food allergy by far is this murky world of food intolerances my family is wading in deeper by the day.

How can you avoid a problem food when there are no tests for a reaction, and every list you find of “safe” or “unsafe” foods contradicts?

I’ve written about fructose before; how every list I found said something different, often contradicting each other. We’ve unwittingly fed Jed foods that he has been perfectly fine with since the beginning that I later found out were almost universally problematic for other FructMal kiddos!

We got lucky; my friend sent us the diet we are currently following and it has been very good to us. We’ve had few problems with the safe foods on that list, and Jed has been doing extraordinarily better the last year and a half.

Now we’re in the world of probable histamine intolerance with Zac, and it is just as confusing and frustrating as FructMal!

Every list is different, contradicting the others. Then when I talk with other histamine mom’s, they report that their kid can eat certain foods that are listed as “absolutely avoid” just fine, but have problems with foods that are on the “safe to eat” side of the column.

It’s absolutely maddening!

This came to a head two days ago when we declared bananas a safe food and set about determining our next food trial.

Since my garden hasn’t come in yet, and we have nothing else “food” to trial, we decided to give the maple syrup we found a shot.

The timing was impeccable: just as I’d sat a plate of Quinoa Egg Bread in front of Zac with a ramekin of maple syrup to dip them in, Darrel came back from his Mom’s house with a quart of fresh strawberries from my step-father-in-laws garden.

Turns out, he never sprays or dusts his strawberries with anything – so they’re completely organic, totally in season, and absolutely FREE. 

HEL-LO!

But…I just started the maple syrup trial! Ack!

Guess what, though, y’all. Zac HATED maple syrup!

He ate swiss chard and broccoli with more gusto than maple syrup! Seriously??

If he managed to get more than a drop of maple syrup into his mouth, then put a squeeze box in my hands and call me a monkey. He pushed his plate away and refused to eat anything for dinner.

So maybe we could just forget we ever gave him the maple syrup and move on to strawberries?

Except…I thought I remembered reading that strawberries were on the avoid list for histamine.

I don’t intend to avoid all histamine foods forever, but since right now he’s only got FIVE safe foods, and two of them are definite histamine liberators/high histamine foods (pork and egg), and one is on the maybe list (bananas), I’d like to get a few more low histamine foods in his diet before pursuing other potentially histamine wonking foods.

So I double checked. And yes, strawberries are on the avoid list.

In fact, according to my well-histamine-versed fellow mama, they’re a REALLY wonky food. According to her allergist, they can cause IgE reactions in people – even when the person is not IgE to strawberries at all!

They just are that darned good at liberating histamine in the cells of the body. 

They’re not only a high histamine food, they’re also a histamine liberator. Double whammy!

You’d think that would be enough to convince us that strawberries are a definite RUN – RUN FAR AWAY food, right?

Wrong.

I’d cross-referenced the best histamine list I’ve found with the fructose list I have, and this is what I found were potentially safe foods to trial for Zac:

  • Apricots
  • Blueberries
  • Blackberries
  • Cranberries
  • Pomegranates
  • Broccoli
  • Carrots
  • Cauliflower
  • Celery
  • Corn
  • Potatos
  • Radishes
  • Millet

Yeah. Overwhelming list there, I tell ya.

When I shared this with my histamine brilliant friend, though, she informed me that, well…actually…

  • the berries are actually moderately high in histamine
  • carrots are tricky and seem to cause lots of problems for folks with histamine intolerance
  • stone fruits are also moderate in histamine

What does that leave me with for foods that are LOW in both fructose and histamine?

  • Apricots
  • Broccoli
  • Cauliflower
  • Celery
  • Corn
  • Potatos
  • Radishes
  • Millet

Potatos are out because I’m eating them and can’t afford to lose them.

Corn is probably out. (That’s a long story I’ll share later.)

So that leaves me with these potential foods to trial:

  • Apricots
  • Broccoli
  • Cauliflower
  • Celery
  • Radishes
  • Millet

RIGHT. 

Call me uninspired.

Radishes aren’t easy to find right now. I’ve already had a hard time finding broccoli and cauliflower that are not sprayed with something, plus he had bloody poop from his broccoli trial last fall. We don’t really need millet right now, since quinoa is so awesome. Celery will probably be a challenge to find, too. And I have no idea where to find apricots.

So as crazy as it might seem, we’re going to shoot for the long shot and give strawberries a try. 

Hey, it worked for goat milk, right?

We’ll see. But it’s a crying shame to turn our backs on organic, abundant, free strawberries simply because they *might* be a problem.

After all, ANY food *might* be a problem, right? Whatever food we trial has to pass the FPIES, FructMal and Histamine Intolerance “tests” before it could be safe!

Sort of seems like the deck is stacked against anything being safe, right?

We’ve had FOUR food passes in a row, though, and I would really like our “winning streak” to continue. So just thinking about giving Zac strawberries made me a little nauseous.

I’ll do it anyway this morning. 

But I’ll start researching where to find safe apricots and cauliflower, too.

Just in case.

What’s the most insane food you’ve ever trialed for your kiddo? And if you don’t mind, say a little prayer for Zac this morning?

Quinoa Eggbread

Quinoa Egg Bread CradleRockingMama.com

Once egg was safe, I took my basic Quinoa Drop recipe and tweaked it.

The result is a very yummy, very filling bread-type finger food that Zac just loves!

I’ve made these into flatbreads, and I’ve also not  smoothed them out on the cookie sheet and left them mounded for a more “biscuit” type presentation, and both work equally well.

Try it both ways to see how you like it!

These are great for trialing baked-in eggs when you have limited safe foods to work with, and since they work so well as a bread, it’s great for trialing spreads like peanut or sunbutter, too.

Start by cracking two eggs into your blender. Turn it on for just a few seconds to mix the eggs a bit.

Eggs in blender CradleRockingMama.com

Now that goat milk is safe, I also add a little goat milk to the blender. If you don’t have a safe milk, you can just use water.

Eggs and Milk in blender CradleRockingMama.com

Then add 1 1/2 cups of quinoa.

Process until smooth.

Quinoa, eggs and milk in blender CradleRockingMama.com

Basic Batter CradleRockingMama.com

Then dump in another cup of quinoa and mix it in by hand.

Extra quinoa added CradleRockingMama.com

The result should be very thick and spoon-able.

Everything Mixed together CradleRockingMama.com

Line a cookie sheet with parchment paper. Using a large spoon, scoop out dollops of the mixture onto the sheet.

Use the spoon to flatten them out a bit if you want, or leave them mounded for a sort-of biscuit.

Laid out on tray CradleRockingMama.com

Bake for half an hour, flip, bake for another 5-10 minutes and voila! Quinoa Eggbread!

After baking CradleRockingMama.com

These really do resemble a pita-style bread, but I don’t know that I’d use them for a sandwich. They’re very dense! Again, though, with some of these basic “food-trial recipes”, I struggled with what to call them. ‘Bread’ seemed the closest fit.

Finished Quinoa Egg Bread CradleRockingMama.com

Still, it’s a very good two (or three) ingredient finger food for the kiddos. Zac loves when I make these! He insists on grabbing one in each hand and stuffing his face. He’ll eat a full tray of them every day…sometimes I even have to make a second batch!

Here they are in biscuit form

Here they are in biscuit form

If you have any spices to add or veggies you could shred and add, that would certainly make these even better. Let me know if you make any tweaks that work!

Quinoa Eggbread
 
Prep time
Cook time
Total time
 
These quinoa and egg treats are perfect for trialing a food, or for a healthy snack to have around for your non-allergic kiddos!
Author:
Recipe type: quinoa, finger food, food trial food, snack
Serves: 1 dozen
Ingredients
  • 2½ c. cooked quinoa
  • 2 eggs
  • ⅓-1/2 c. milk
Instructions
  1. Preheat your oven to 375 degrees F.
  2. Put 2 eggs and ⅓ c. of milk in the blender and blend until well mixed.
  3. Add 1½ c. of cooked quinoa, and process until smooth. You may need to add some more milk if it needs it.
  4. Add another 1 c. of cooked quinoa and mix it together by hand.
  5. Spoon onto a parchment lined cookie sheet and smooth them out with a spoon, if desired.
  6. Bake for 30 minutes; flip. Bake for an additional 5-10 minutes.
  7. Let cool and enjoy your healthy treat!

Quinoa Drops

Quinoa Drops Recipe CradleRockingMama.com

Welcome to “Quinoa Week”!

Recently it seems a lot of FPIES Mama’s have been finding luck with quinoa as a safe food for their kiddos. Since then, I’ve been asked to share any “simple” quinoa recipes I have, and I understood the need. When trialing single ingredients at a time, it’s sometimes difficult to find ways to present the food.

Once quinoa was a safe food for us, I began experimenting with ways to make it for Zac.

It was a bit of a challenge to create recipes using only water and quinoa! That’s all he had as safe foods at the time, and there’s just not a lot of options there!

Some of the things I’ve created that were huge hits for Zac were very difficult to describe. Is it a tortilla? A sopapilla? A flatbread?

I never posted those recipes because of their unusual nature.

Thanks to the request for more recipes, though, I’m going to do my best.

This is one I’ve been making for at least six months. Darrel and I have always called it “tortillas”, but it really isn’t a tortilla at all.

Trying to come up with a name for it for the purpose of sharing it, we settled on “quinoa drops”.

It’s simple, filling, and pretty tasty even as plain as it is!

I’m sure if you could add some fruit or veggie purees, or maybe even shredded meat, it would work just as well. If you try that, let me know how it comes out, okay?

Take a cup of cooked quinoa and add it to your blender.

Quinoa in Blender CradleRockingMama.com

Pour in 1/2 cup of water. Process.

Depending on the moisture content of the quinoa, sometimes I only need 1/2 cup of water. Sometimes I need more.

I look for a batter that is thick but still pourable. Think thick pancake batter texture.

Blended Quinoa CradleRockingMama.com

Scoop or pour it into twelve little circles on a parchment lined cookie sheet, and bake.

Dropped in tray CradleRockingMama.com

These usually puff up quite a bit while baking. The inside is cooked, but still moist. Some people may not like that. Zac doesn’t have a problem with it at all!

I’ve tried poking them with a fork, flipping them, peeling them in half and baking the two halves separately, and basically, they still come out with a moist center!

After being baked for 30 minutes...

After being baked for 30 minutes…

You can avoid some of this “inner moistness” if you make much smaller little drops; 24 on a tray instead of 12. Frankly, for me? I do too much cooking every day to put that much energy into it when Zac obviously doesn’t have a problem with them as-is!

Flipped and baked another 15 minutes...

Flipped and baked another 15 minutes…

This isn’t a typical “Oh, you must add this to your family recipe book” recipe; it has potential with other additions to be a good snack food, but as it is, its real purpose is as a “food trial” recipe.

That has its use, though, so feel free to take this and run with it! If you come up with any additions or variations that rock, please share!

Finished!

Finished!

(And in a pinch, it CAN work as a sandwich bread substitute for lightweight things. Like a smear of sunbutter or jelly, or part of an egg.)

Mini Egg Sandwiches!

Mini Egg Sandwiches!

Enjoy your food trial Quinoa Drops!

Quinoa Drops
 
Prep time
Cook time
Total time
 
These little quinoa drops are a perfect finger food, and a perfect food trial food! They work well eaten plain or spread with something lightweight.
Author:
Recipe type: quinoa, finger food, snack
Serves: 1 dozen
Ingredients
  • 1 c. cooked quinoa
  • ½ c. water or milk
Instructions
  1. Pre-heat the oven to 375 degrees F.
  2. Put the quinoa and water in a blender.
  3. Process until smooth.
  4. Add more water as needed; it needs to be a thick pancake batter consistency.
  5. Spoon or pour onto a parchment lined cookie sheet.
  6. Bake for 30 minutes; flip the drops over and bake for another 15 minutes.
  7. Enjoy your easy snack!

Exploding Boobies, Broken Planes, and a 3 Year Old With a Flashlight

Exploding Boobies, Broken Planes, and a 3 year old with a Flashlight CradleRockingMama.com

Thursday we resumed the banana trial for Zac, and it went so well I decided I could go to work over the weekend.

I found a trip to work on Saturday that was quick and “easy”, but worth a decent amount of money.

I thought I’d share with you how the weekend went for us, as this weekend is one of those weekends that makes me wonder how I’ve endured being a Flight Attendant as long as I have!

FRIDAY
5:30 p.m. (CST)

I saw that my flight to Newark (the flight I needed to take to commute to work) was listed as “on schedule”…but the aircraft operating the flight still hadn’t left from Chicago!

This is when things get tricky: if the aircraft isn’t there, yet, obviously the flight can’t be “on schedule”. If they haven’t updated the flight information yet, that means that there is a 50/50 chance that the flight will go delayed, or be cancelled.

So I held off on picking up the trip on Saturday, because the last thing I wanted was to have to call in sick for a trip I picked up special because my commuting flight to get there cancelled at the last second!

I decided to go to the airport in time for the regular departure time, anyway, just in case they managed to do an equipment swap. Kissed the babies, kissed the hubs, and off I went.

8:00p.m. (CST)

The gate agents made an announcement: the airplane had left Chicago, and our flight would now be leaving at about 9:30p.m.

So I picked up the assignment for Saturday and sat in the airport to pay bills while I waited.

9:30p.m. (CST)

We boarded the plane, and were in the air very quickly. I settled in to try and sleep.

I couldn’t.

Apparently my body has changed, and no longer am I able to fall asleep the second I sit down on a plane. I managed to get about an hour long nap with frequent wake-ups on the flight.

Bummer.

SATURDAY
1:30 a.m. (EST)

We landed in Newark.

Everyone zombie-walked off the plane, and I chatted with a fellow Flight Attendant who lives in my area and works as a German speaker. We approached the Airlink train to take us over to Terminal C, and saw the area was gated off.

The Airlink was broken. We could wait for a bus, or we could walk.

Even though it’s almost a mile, we decided to walk.

2:15 a.m. (EST)

I said good-bye to my new friend, headed through the security checkpoint, and slowly made my way to the opposite end of the terminal to our crew room.

3:30 a.m. (EST)

After pumping, taking care of my food, and changing clothes, I wandered around the crew room until I finally found a single unoccupied chair I could sleep in.

Working in the dark, as quietly as I could so as to not disturb the other sleeping crew members, I got settled in to sleep. It took me a while to get comfortable enough to sleep. I finally drifted off a little after 4:00 a.m.

6:00 a.m. (EST)

My alarms went off. As tired as I was, I snoozed for a bit, but was up and going at 6:20 a.m. I gave myself a spit-bath in the sink in the bathroom, pumped, did my hair and makeup, and dressed for work.

Then I went to the microwaves and heated up my breakfast. I ate as much as I could before I had to head off to my plane.

8:05 a.m. (EST)

At the plane, waiting to board. Our aircraft came in from an international destination, so we had to sit and wait for it to clear customs. About ten minutes later we got the all-clear and boarded. We took the time to get to know each other; this was the first time I’d met any of my crew members.

We did our pre-flight checks and boarded the passengers. Amazingly enough, the door closed on time and we were on our way.

It was a lovely flight to Los Angeles. I only pumped once on the way, though, so by the time we landed I was in definite need of a pumping!

12:15 p.m. (PST)

Landed in LA. Realized Felicity Huffman had been on our flight when I told her “Goodbye”.

12:45 p.m. (PST)

Arrived at the hotel room. I called Darrel and chatted for a bit. Blessedly pumped to relieve pressure.

Darrel had a photo shoot scheduled for that afternoon, so he was about to take the boys to my parents house. We got off the phone so he could pack and load the car, and I watched a little HGTV and finished eating the food I’d heated up on the plane and taken with me to the hotel.

2:30p.m. (PST)

Turns out Darrel’s model bailed on him at the last minute. So his photo shoot cancelled and Mom and Dad graciously said they would keep the boys overnight so Darrel could have an evening of peace, quiet, and maybe some decent sleep.

Talked to Mom on the phone. Even though a small cold snap had moved through and it was too cold for swimming, both boys had already managed to climb into the pool while fully clothed and refused to go inside.

Chuckling over her predicament, I said goodnight to everyone, gave myself a quick pump and headed to sleep.

3:00p.m. (PST)

I fell asleep.

8:00p.m. (PST)

Wakeup calls and alarms went off. A few short minutes later, I got a phone call from Mom. When I answered, it was Jed on the phone, telling me some convoluted story that I didn’t really understand.

Finally Mom got on the phone and translated: Jed didn’t want to stay at her house, he wanted to go home to HIS house, and he wanted me to tell Grandma to give him a flashlight so he could walk home alone.

Because apparently, he could walk the 45 minute drive all by himself, at night, as long as he had a flashlight! (Kids crack me up!)

Then he excitedly told me about “taking off the green ring”, but that he couldn’t take off the orange ring because he didn’t have it with him. I guess the Travel Chain really works!

It dawned on me suddenly and I asked, “Why is he still awake? It’s after ten at night!” and that’s when Mom said he was just fighting going to sleep, and that’s what the flashlight thing was all about. So I told him he would have to stay there, and would not be getting a flashlight, that I loved him and would see him the next afternoon, and to GO TO SLEEP.

We hung up, I started heating up some food, and pumped.

A quick boat shower, new makeup, pack up the bags, and headed downstairs.

9:55p.m. (PST)

On the van to the airport.

10:05p.m. (PST)

At the airport. We went through security and had to then wait, as our aircraft was late arriving from Dulles. We were supposed to be on board at 10:25p.m., but weren’t able to board until almost 10:40p.m.

After cleaning and catering had finished their jobs, we boarded the flight. Unfortunately, because of the late arriving aircraft, we weren’t able to close the door on time. Still, it was a pretty good turnaround considering our time limitations.

11:40p.m. (PST)

Closed the aircraft door and pushed off the gate.

SUNDAY
12:00a.m. (PST)

We took off.

12:15a.m. (PST)

The pilots called us. One of our engines was overheating, so we were returning to LA. Prepare the cabin for landing.

Really, this is no big deal. Things break, right? But landing an aircraft fully loaded with enough fuel for a trans-continental flight is more…tricky…than landing after you’ve burned off that fuel (basic physics, here, based on weight), so while we weren’t preparing for an emergency, the Flight Attendants knew we had to be “on the ball” and be mentally ready for anything that might happen.

Immediately the questions started: “What’s going to happen to my connecting flight?”. “Are we going to crash?”. “Can I get off the plane when we land?”. etc.

We had no answers for any of these questions. We didn’t know anything more than what we’d told the passengers! Most were fairly understanding that once we arrived at the gate, maintenance would look at the engine and tell us what was going to happen next, and we would tell them when we knew, though, so it wasn’t too bad.

12:40a.m. (PST)

Arrived back at the gate in LA.

Maintenance came on board, talked to the pilots, checked out the engine, and the rest of us sat in the airplane and waited.

For me, I started to feel a bit anxious. I’d last pumped almost 4 hours ago. I’d planned on being able to pump RIGHT ABOUT NOW during the flight, and obviously that wasn’t going to happen. With everyone awake and milling about, there was no where I could go to pump, and the boobies felt like they were about to explode!

1:15 a.m. (PST)

Maintenance made the call: the aircraft was toast. They’d be able to fix it, but it would take all night. Everyone get off the plane.

The gate agents scrambled; the last thing they needed was a full 200+ passengers stranded because of a broken airplane. Thanks to the wildfires in California, there were NO hotel rooms available, and because this was an “airline fault” problem, they would have to find accommodations for these passengers.

They were heavily  invested in finding us another aircraft in the middle of the night.

And they succeeded!

We were told to gather our belongings and head over to another gate. Our new airplane would be arriving in about twenty minutes.

I took that opportunity to grab a ground supervisor and ask if there was a family bathroom somewhere in the airport I could go do a quick pump before boarding the next flight.

There wasn’t; at least not one open to the public. But they had a private bathroom for unaccompanied minors that he could let me use.

So as the last passenger headed off the plane, the ground supervisor led me in the opposite direction of my crew where he unlocked the special bathroom for me.

1:45a.m. (PST)

I did the “World’s Fastest Pump”, cleaned up, re-loaded things back into my suitcase, and literally RAN through the airport to the new gate, just certain that they would be waiting for me in order to board the plane.

Instead, I arrived at the gate area to see everyone – including the crew – just sitting around, playing on their phones and computers.

It was twenty minutes later, but there was no plane yet.

So I sat down and got out MY computer. Obviously, we weren’t going to be on time arriving in Newark, and I needed to see what the flight options were for me to be able to fly home the next day.

While I was looking at my flight options, the pilots quietly shared some info with the Flight Attendants. They were in danger of “timing out”. That simply means that if we didn’t get into the air soon, they would be unable to take off because taking off would mean they would fly longer than the FAA allows pilots to be on duty for.

And there was still no airplane at the gate.

The passengers didn’t know it, but the race was on.

2:15a.m. (PST)

A ground agent came over the Flight Attendants, yelling at us because the plane was there and WHY WEREN’T WE ON BOARD?

Um, maybe because no one TOLD us the plane was here? Chill out, dude!

So we went to the plane…and had to wait before we could board since the cleaners and catering were blocking the doorway.

Finally, we boarded the plane, did our work in record time and started boarding the passengers – again.

We were still racing to take off before the pilots timed out, and we hadn’t seen them board the plane. The Flight Attendants were all getting a little nervous.

I was getting more nervous! Aside from the unpleasantness of being on a plane surrounded by over 200 people seriously ticked off that their flight had been cancelled, there was the “food” factor.

IF this flight cancelled, they would send us back to the hotel. We would probably either deadhead or work a flight later in the day to get back to Newark. Depending on how late that new flight arrived in Newark, I may not be able to go home until Monday morning.

And I only had enough food with me to last until mid-day on Sunday.

What would I eat if they cancelled this flight?

Just as my anxiety reached its apex, the pilots came on the plane.

We still weren’t in the clear; if we didn’t get “wheels up” by 3:10a.m., they’d have to return to the gate and cancel the flight.

2:50a.m. (PST)

We closed the cabin door.

That’s when we saw the video system on the new plane was broken. So we did a manual safety demo (the one where the Flight Attendants actually put on the life vest and such).

We were taxiing to take off, but still waiting for a flight plan from ATC.

Y’all, the Flight Attendants were on pins and needles – especially me!

3:06a.m. (PST)

We took off.

We made the cut-off for pilot time-out by FOUR minutes. Whew!

Actual text messages I sent my family in the middle of the night. Don't you wish you were related to a flight attendant?

Actual text messages I sent my family in the middle of the night. Don’t you wish you were related to a flight attendant?

10:30a.m. (EST)

We landed in Newark. Having pilots who were tired and about to time out, working an already seriously delayed flight, means they kicked some tires and lit some fires and shaved off over half an hour of our flight time!

10:40a.m. (EST)

Arrived at the gate. Waited. A few minutes later we got a message from the tower: our jetway was broken. We had to go to a new gate.

10:55a.m. (EST)

We got to a new gate, opened the door, and said good-bye to the folks we’d just spent the last ten hours with. One nice thing about these sorts of situations is that when the crew does their job properly and keeps everyone informed and takes good care of them, that when people leave the plane they’re very friendly. After all, look what we’ve all been through together! It’s like a whole plane-load of new friends.

One of my crew members was scheduled to work at 5:00 p.m. that night, and she’d been pay protected and removed from that trip. Another one was supposed to work the flight back to LA that night, and she’d been moved to a later flight and would travel as a dead-head Flight Attendant (meaning she’d just sit in a seat instead of working, but would be paid as if she were working). So for two of us, this worked out really well!

I still didn’t know when or how I would get home, though.

11:15a.m. (EST)

I said good-bye to my crew and headed off to find a computer. A quick search later, and I saw the best option for me was to head off through Chicago.

There was a flight at 1:00p.m. (EST) to Chicago, but it showed no open seats. With any luck, some unfortunate folks wouldn’t make the flight and I’d get a seat.

I listed for the flight, pumped, and headed to the gate.

12:45p.m. (EST)

Turns out, TEN unfortunate folks didn’t make the flight and ten of us non-revs got seats!

I settled in, called Darrel and Mom, and tried to sleep on the plane. Again, I couldn’t. I got about a 45 minute nap.

2:10p.m. (CST)

We landed in Chicago. I pumped again, then meandered over to my next flight, stopping at a bookstore along the way and picking up a cheap little “early reader” book as a gift for Jed.

3:20p.m. (CST)

We boarded the flight home. Again, I tried to sleep, but couldn’t. I got about a 5 minute nap right before we landed.

5:15p.m. (CST)

I walked off the plane into my home airport, absolutely, utterly exhausted.

Do I look as tired as I feel?  I'm in awe of the Flight Attendants who always look fresh-faced and energetic. I think I need more makeup.

Do I look as tired as I feel? I’m in awe of the Flight Attendants who always look fresh-faced and energetic. I think I need more makeup.

6:30p.m. (CST)

49 hours after I’d left the house, I walked back in the front door. Jed had fallen asleep in the car on the way home from Grandma’s house and was passed out on the couch. Zac was in the kitchen, and when he saw me, he didn’t show much reaction at first.

Fifteen minutes after I’d gotten home, though, it was all about Mommy.

He spent most of the next three hours attached to my boobies; sometimes nursing, sometimes just being happy I was home.

Every time I sat down, I started to fall asleep. I had to take a shower before I crawled into bed, though, because I reeked of airplane funk.

After I washed the weekend off of me, I crawled in to bed and slept until 8:00a.m. this morning.

By 11:00am. today, I was so tired I couldn’t think straight, and fell asleep putting Zac down for a nap.

I slept so hard, both boys got up and made huge messes before I woke and realized what they were doing!

That would be EGG on my sofa, and STYROFOAM all over my floor. Seriously, kiddos??

That would be EGG on my sofa, and STYROFOAM all over my floor. Seriously, kiddos??

And that, my friends, is how our weekend went. My weekend was just full of flying fun. Sadly, this experience is relatively normal for a Flight Attendant. Sure, most flights go off without a hitch, but when you spend as much time traveling as we do, you increase your odds of being in scenarios that don’t go as planned.

It’s just a part of my job, but it is exhausting.

And you want to know the best part? We were still only paid for the times when the aircraft door was closed! So all that sitting around, waiting, in the airport, or sitting on the plane with the door open, waiting, was done completely for free from the Flight Crew’s point of view.

Oy. So sad.

Darrel didn’t get his photo shoot, which was disappointing, but he did get some decent, uninterrupted sleep and cleaned up the house quite a bit.

The boys had a great time at Grandma and PopPop’s, and fought coming home. Zac’s doing well on the banana, but we’re still giving it a few days before we declare it a pass thanks to some random allergy rings he’s gotten off and on since we started the banana trial.

If you’ve made it this far, thanks for reading this long, convoluted story. If I were more rested and thinking more clearly, I probably could have made this a lot more interesting to read.

But it was so interesting to experience, it was the only thing I could think of to share with you!

My life is certainly not boring, I’ll give it that. 

And now I know I need to bring at least an extra full days worth of food with me when I go to work. I never want to be in that position again!

Oh, but in sad news, our next shipment of bananas won’t arrive until Thursday…and we only have enough for one more serving for Zac.

I have a feeling some tantrums are heading our way Tuesday and Wednesday!

How was your weekend? 

FAAW Frugal Friday – Grocery Shopping With Food Allergies

FAAW Frugal Friday - Grocery Shopping With Food Allergies CradleRockingMama.com

Today’s Frugal Friday post is a little different than normal. Instead of offering a frugal tip, today I’m hoping to bring awareness of the costs of food allergies to NON-food allergic families. 

Grocery shopping with food allergies is not for the faint of heart, you see. 

Food allergy families are already aware of these problems, but may find this a useful post to share with friends and family who don’t quite understand why you’re so financially strapped all the time.

Here, in a nutshell, is why food allergy families often struggle with money:

WE HAVE TO EAT.

Not only do we have the myriad medical costs that often pile up, but our average grocery bill would make and extreme coupon-er immediately pass out in shock!

This week gave me a perfect example to share with you all: Spaghetti Noodles.

I found Ancient Harvest corn/quinoa spaghetti noodles on sale at my health food co-op. Their sale price was $2.35 per box. Normally they’re 90 cents more! I bought a case of them, which entitled me to a 10% discount.

Total price per box? $2.11, down from the normal price of $3.25 per box. That’s a great savings!

However…

Back in our pre-food allergy days, when I was a frugal housewife attempting to drop our monthly grocery costs to under $300 (I laugh, now), I could buy plain old wheat spaghetti noodles for $1 per bag.

So even with my excellent savings, I’m still spending over twice as much for spaghetti noodles as a typical non-food allergic family would have to spend.

Let me also break down a little bit of our absolute monthly necessities.

Zac  and I are on very restrictive diets; him more so than me. For all our restrictions, though, that doesn’t make our costs any less. In fact, it costs more to feed the two of us than it does to feed Darrel and Jed in any given month!

Quinoa

We consume roughly a case and a half of quinoa per month. That’s 18 boxes. As of this writing, Amazon has a case of quinoa seeds for $52.68. However, I’ve paid as much as $66 for a single case before, even on Amazon. That breaks down to $4.39-$5.50 per box, or $79.02-$99.00 per month. Remember, these boxes are only 12 ounces each, too.

Compare that to your typical, plain white rice, which can cost as little as $2.50 for TWO POUNDS.

Beef

Beef is a considerable expense for us. We just bought another cow and picked it up from the butcher. My in-laws give us a deal on the costs of the cows, thankfully, and this cow cost us $1,000. The butchering fee was $195. We netted 350 pounds of meat. That breaks down to a mere $3.41 per pound – which is FAR cheaper than could be found in the grocery store on a normal day.

However, we consume at least 3 cows per year, which means that every month, our beef costs average out to $298.75. Just for the beef.

Water

Some families choose to drink bottled water. Most families drink tap water, generally speaking. Sometimes they throw a filter on the tap, or buy a filter pitcher and call it done. We can’t. We have to use a specific brand of bottled water for safety. No tap water option for us!

Fortunately, we can buy it at the Dollar Tree, but even at $1/gallon, it adds up. Considering we consume 45-55 gallons in a month, that’s an additional $45-55 out of our budget.

Potatos

Last year, according to my health food co-op (who keep records on such things), I consumed 600 pounds of potatos. Since I know I purchased additional bags of potatos at other grocery stores, I think it’s fair to say that my actual potato consumption was probably closer to 700 pounds. That’s just about one case of 50 pounds per month.

Each case costs between $35-60, depending on time of year and seasonality. Let’s split the difference and say that each month I spend $47.50 on potatos.

Olive Oil

In order to make sure we’re getting pure olive oil that hasn’t been cut with other things, we order olive oil directly from Lucero. Since we use huge quantities of olive oil and that is the only safe oil I currently have (aside from tallow), we order in bulk.

Each 2.5 gallon container of olive oil lasts us approximately 2 months, and costs us $130 (with shipping, etc.) That’s $65 per month in olive oil costs.

Goat Milk

Our goat milk costs are reasonsable, actually, at $6 per gallon. Regular, horrible milk at the grocery store is $4-5 per gallon, so the direct price isn’t too high. However, I do have to drive 65 miles one way to pick it up.

Based on my SUV’s gas mileage, that means that in addition to the $54 we spend every month in milk costs, our goat milk costs us an additional $57 in fuel expenses for procurement. That’s $111 per month!

Total for goat milk per gallon with fuel factored in: $12.34.

Eggs

Originally my parents and I agreed that they would pay the same amount they were already paying for chicken feed, and I would pay the difference for the special, corn & soy free chicken feed we are now feeding their chickens.

As parents are wont to do, however, my folks have been kind enough to pay for all the chicken feed expenses since we began the experiment.

So far, their chickens have been eating $53.60 in feed per month. They recently enlarged their brood, however, and the new chickens are hungry! Next month the costs will increase to probably around $160.80 to keep all the chickens fed and happy. (Apparently, these chickens are fond of eating every bug and grub they can find, but still want to eat the feed, too. Hungry birds!)

Still, at $53.60 per month, that makes each dozen (based on 11.5 dozen per month) $4.66. Our family has been taking 6-8 dozen per month, so on an average of 7 dozen our egg costs should be $32.62 monthly.

(Thanks, Mom and Dad!)

MONTHLY TALLY

Quinoa

$89.01

Beef

$298.75

Water

$50

Potatos

$47.50

Olive Oil

$65.00

Goat Milk

$111.00

Eggs

$32.62

TOTAL

$693.88

That doesn’t count for the costs of Zac’s pork, or the (hopefully soon) monthly costs of the bananas. It also doesn’t factor in the costs of the special salt we have to use, or ANY of the foods we feed Darrel and Jed. While, yes, Darrel and Jed eat some of these foods, too, they mostly eat other things.

I still have to buy those other things in addition to the $693.88 per month it takes just to feed me and my not-quite-2-year-old. 

And there is no couponing, no specials, no special grocery store savings games I can play to reduce this food budget.

To quote an overused phrase: It simply is what it is.

And this, dear readers, is why grocery shopping with food allergies is so expensive, so UN-frugal.

We have no choice but to buy the foods and brands that are safe for us, at whatever price it is marked. The lack of options means a lack of PRICE options, as well. 

For this Food Allergy Awareness Week, I hope this post sharing the true “cost” of food allergies in terms of Grocery Shopping will help non-Food Allergic families understand the process of living with food allergies a bit more.

At the very least, I hope other food allergy families will see that they’re not alone in exorbitant food prices.

If there is any tip to be had in today’s post at all, it is simply this: don’t stress about food costs, food allergy families. Use your frugal tips in other places in your life.

In the end, the high costs of our foods and our constant diligence have kept both our kids out of the hospital for almost two years. What’s the phrase? “Pay your doctor, or pay your farmer.”

Yup.

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What’s your most expensive monthly grocery cost as a food allergy family?

FAAW: We Were Robbed

We Were Robbed A Food Allergy Awareness Week Re-Post CradleRockingMama.com

One thing that many non-food allergic families don’t often understand is the way food allergies restrict your life.

It’s not something you consciously think about, but occasionally it hits you in the face just HOW much your life has been changed by the existence of food allergies.

For FAAW, I decided to re-run a post I wrote shortly after our FPIES diagnosis that clearly shows my own recognition of the life altering aspect of our new reality. It’s pretty dark in tone, but don’t worry – I don’t feel this negatively all the time!

This, however, was a day when food allergies made me face some things I hadn’t recognized before, and it was a bit staggering for me. I think it might help convey the isolation and fear of food allergies for those who have never lived it.

WE WERE ROBBED (originally posted Sept. 28, 2012)

…but not the way you think.

I’m sorry; I don’t typically post twice in one day but this is something I have to get off my chest.

We live WAY out in the country.  Technically, our house isn’t even a part of the nearest town, a hamlet of only 76 people.  We are very isolated.  It’s lovely, but it can be lonely, as you might imagine.

So community get togethers in our county seat, at our church, at our lodge are incredibly important to this social butterfly in order to keep from going stir crazy.

Today I had to take the kiddos in to our county seat to deal with some boring stuff: property taxes, vehicle registration, picking up checks at WIC.  On our way out of town I saw that our local bank had set up tables, chairs and tents in a parking lot and seemed to be full of folks gathered around, eating.

This weekend, apparently, is Homecoming weekend at the High School.  So the whole town is celebrating.

Except us.  

We can’t go.

There’s FOOD there.  

And “food” is my new four-letter word.  

I’m so MAD.  ANGRY.  FRUSTRATED.  IRRITATED.  And terribly SAD for my family.  We have been robbed of one of the bedrocks of community…the sharing of a meal.  I don’t know how long it will be before we can start participating in things like this again, but I foresee many heartbreaking  moments in the future where I must tell my kids “No” after they see a festive gathering like that and ask to go.

Things like 4th of July BBQ’s, parade’s, Homecoming weekend, Christmas Festival’s, Thanksgiving, Halloween…one of the first things that comes to mind when thinking of these things is, what? FOOD.  Is it worth it to risk sending my child to the ER so we can wander around a festival of some kind?

We’ve been robbed of fully engaging in life.

What’s worse is that I had no idea this weekend was a town celebration.  We’ve cut ourselves off so completely I am entirely out of the loop.  We’ve even been avoiding church; our church is jam-packed with good, Southern, God-fearing women that think potlucks where the tables are about to collapse from delicious, dairy and egg filled food are the next best thing to Heaven.  Breaking bread is a great tradition in our faith…what are you supposed to do when the bread will break you?  So, we don’t go.

And because Mr. Happy hasn’t had his shots yet and CANNOT get his shots yet because he’s been reacting for so long and his immune system is weakened, I’m terrified to let him get into close proximity to so many varied people.

We’ve been robbed of gathering with our spiritual community.

I ran into a lady from our church today at the WIC office, and she was genuinely happy to see us all.  She asked how we were doing, and after hearing a little of our story shared with me that she’s been praying for us, and that she understood why we hadn’t been to church for a while.

Then she put me on the spot: “Is there anything I can do to help you?”

Well, yeah!  There’s a ton of things I need done!  But right then?  I couldn’t think of a single stinking one of them.

I’ve spent the better part of the last two and a half years doing pretty much everything on my own, with only my husband as a supporter.  These food issues of my kiddos are the kind of thing that really, not much can be done to help with.  She who does the cooking must ensure the food is safe; if I don’t verify every ingredient myself, we risk the ER.  It’s easy to see why I’ve slowly, without realizing, taken on every burden myself to the point that when faced with a gracious offer, I had no idea how to accept it.

So, I was honest.  I told her “I could really use some help.  But I’m so used to doing everything on my own I have no idea what I could suggest you or anyone do for me.”

She gave me a look of compassion, patted my arm, and said “If you just want to get together to talk sometime, let me know.  Do you like walking?  We’ll go walking and talking some nice day.”

I thought my heart was going to break from the kindness and empathy I was experiencing.

We’ve been robbed of the purpose of community: helping others and being helped when needed.

I paid bills last night.  Finally, all the medical bills we’ve accumulated have passed through insurance and are the finalized amount we owe.  So, I paid everything – regular monthly bills and the hospital expenses accrued since Mr. Happy was born.

I drained our savings.  We’re in the hole next month, and every month for the foreseeable future.  I actually am not sure how we’ll pay our bills next month.

We only JUST finished paying off the medical bills that were accumulated from Mr. Charm’s first year of life (last half of 2010 through the first few months of 2011) in March!  The majority of our married life has been spent digging our way out of a medically induced financial mess, all due to our kids food issues.

We’ve been robbed financially.  

People who knew me in my emotionally turbulent youth might not believe this, but I’ve grown into a woman who truly does not like to spend every waking moment angry and irritated. I try to look to the future and not get mired down in the things I can’t change.

So far, with Mr. Charm’s MPI and egg allergy (and who knows what else) and Mr. Happy’s FPIES and dairy allergy, I’ve been holding on pretty well.  I’m not wasting my time raging “Why us?  Why THEM?”  I’m not bemoaning the ways our lives have changed.  I’ve just accepted what IS and moved on to how to handle our truth.

Except for today.  Today it hit me hard.  Knowing our bank accounts are drained, knowing my children will only ever be able to enjoy a friendly food-oriented gathering when they’re school age (if then), realizing how much these medical conditions have segregated us from the community on which we should be relying…today, I’m (insert foul language – be creative)  off at just exactly WHAT ALL my kids, my husband and I have been robbed of.

FPIES, MPI, food allergies…they’re the thieves that have stolen such huge parts of our lives.  And I hate every single bloody one of them.  

I Still Have FPIES Eyes

I Still Have FPIES Eyes CradleRockingMama.com

Long-time readers, you’re probably bored with this post by now, but because I have received such positive feedback on it, I’m re-posting it in honor of FAAW (Food Allergy Awareness Week).

Just like I did last year

Think of this as the “It’s A Wonderful Life” of my little food allergy world! It’ll come back every year for a visit.

HOWEVER! At the last minute I had a big discovery that proved that I am STILL looking at the world through “FPIES Eyes” – and that I can never, ever stop doing so. 

I mentioned that Jed has been really difficult to handle lately, and that he’s had a strange appetite and some other “fructose-y” symptoms. I had no idea where it had come from; everything he’s eaten in the last few days are foods that we’ve always regarded as safe for him.

Then I got out my FPIES Eyes and looked a little closer…

Five out of the last six days, Jed has eaten waffles or pancakes. For these particular breakfast treats, I didn’t make them from scratch. I made them from a mix. Cherrybrook Kitchen Pancake & Waffle Mix, to be exact.

Now, on the website, it says it contains evaporated cane juice, which we already know is a problem for Jed. But the box in my kitchen says ‘cane sugar’ instead. He’s been fine with sugar in limited amounts, so I assumed this was safe for him.

Au contraire…

To begin, the amount of sugar in this may be just a tad more than he can tolerate, which is possible and an easy answer to the question of why he’s been having such a bad week.

But further down on the list, I see this: “All-natural Vanilla Flavor”.

This far along in my food allergy journey, when I see any variation of “Natural Flavor” my alarm bells go off!

I’ll wrap up this little update (and FPIES Eyes confirmation), since the original post is so long. Go read what the Food Babe has to say about natural flavors. There could be anything in that little, innocuous looking ingredient! MSG, gluten, and beaver secretions can all hide in “natural flavors”.

Maybe it’s not so much the cane sugar that is the problem. Maybe it’s the natural vanilla flavor. Or the combination of the two.

Either way, Cherrybrook Kitchen Pancakes are no longer allowed in my home. With luck, I’ll have my Jed “back” soon.

So now, without further ado, the post that explains how Food Allergy Mama’s look at the world: with FPIES Eyes! (Orginally posted on February 26, 2013)

__________

Over the weekend, one of the other FPIES Mama’s on the boards mentioned taking her children to the circus.  She had received special permission to bring food for her FPIES kiddo, but her kids really really really wanted cotton candy!

Fortunately, she remembered to check the ingredients first, which was very good.  Turns out this particular cotton candy had SOY in it.

SOY.  In COTTON CANDY.  

Why the heck do you need soy in what is basically fluffy sugar?

She was properly horrified, and those of us who read her comment were in complete agreement: why do they have to put such junk in our foods?

I made a return comment about Burger King French Fries, basically saying that they are “safe” for Mr. Charm to eat (dairy, soy, fructose free) but that, after reading the ingredients with “FPIES Eyes”, I was horrified to feed them to my children.

The other Mama’s “got it” right away, but I realized…the world at large may not understand what I mean when I say “FPIES Eyes”.  So, I thought I would explain it.

Prior to becoming an FPIES Mama, the most I ever heard anyone say about “reading food labels” was counting calories, carbs, protein or sodium.  So, using my example of Burger King French Fries, let’s look at the label.  From Burger King’s own website:

Medium French Fry

Calories                    410
Protein                      4g
Carbohydrates       58g
Sugar                        0g
Fat                             18g
Saturated Fat         3g
Trans Fat                0g
Cholesterol             0mg
Sodium                   570mg

Not really great, right?  But I’ve read worse labels in my life.  It’s about what you’d expect of a fast food french fry, right?

So here comes Mr. Charm into my life, with his dairy/soy intolerance and egg allergy.  Suddenly, I had to learn to read a little more closely.

No longer is the chart on the wall of the Burger King enough; now, before I even leave my house, I have to actually download the Burger King pdf for “nutrition”.

This is actually a fairly well-done nutrition guide; over on the right hand side, you’ll see a nifty little column titled “Allergens”.   In that column, you’ll see lovely letters; for example, MWES.  Translated, that means that particular food has Milk, Wheat, Egg, and Soy in it.

Pretty easy, right?  Just scroll through the menu until you can find things that DON’T have your particular allergen, and you’re good to go, right?

Not so fast, Kemosabe.  If you look at the listing for the Hamburger, you’ll see that is says WS Allergens are present.  That’s Wheat and Soy.  So…is the wheat and soy in the burger, or the bun?  Or both?  Now I have to email the company to ask.  

In addition, there’s the cross-contamination issue.  Burger King offers Onion Rings and Mozzarella Sticks, both of which are deep-fried.  According to Burger King, they both contain Milk and Wheat, and the Mozzarella Sticks also have Egg and Soy.  Are they deep-fried in the same fryer as the French Fries?  Because if they are, well, the fries are not safe for Mr. Charm any more.  This question is best left to the individual restaurant, generally, because each location can tell you if they have a dedicated fryer for their fries or not.

Are you mentally exhausted yet?  Because I have had to do this for every fast food or regular restaurant experience we’ve had for the last two and a half years.  ALL meals outside of the house were planned with this much foresight.  

I had it pretty well under control; after two years of research, I had memorized all the restaurants and the individual items Mr. Charm could eat at those locations.  Eating out wasn’t a challenge any more.

Then came Mr. Happy and FPIES.  Now, looking at food through “FPIES Eyes”, I have found eating out to be a HUGE challenge again.

Let’s return to that pdf of Burger King nutrition, shall we?

Thanks to the way FPIES works in Mr. Happy’s little body, I have to know every single ingredient in the food he eats.  (Hell, sometimes I have to know every single ingredient his food ate when it was alive!)  So let’s scroll down further in that pdf until you see the “ingredients” list.

Straight from their pdf, here is what is in Burger King’s French Fries:

“FRENCH FRIES (Fried): Potatoes, Soybean Oil or Canola and Palm Oil, Modified Potato Starch, Rice Flour, Potato Dextrin, Salt, Leavening (Disodium Dihydrogen Pyrophosphate, Sodium Bicarbonate), Dextrose, Xanthan Gum, Sodium Acid Pyrophosphate added to preserve natural color”

*

*

*

Say what???

ALL of that is in French Fries??

Wait, you may ask yourself, aren’t french fries just potatos fried with a little salt thrown on them?

Why yes, as a matter of fact, you are correct!  Unless you’re a fast food joint.  Then French Fries are “Potatoes, Soybean Oil or Canola and Palm Oil, Modified Potato Starch, Rice Flour, Potato Dextrin, Salt, Leavening (Disodium Dihydrogen Pyrophosphate, Sodium Bicarbonate), Dextrose, Xanthan Gum, Sodium Acid Pyrophosphate added to preserve natural color.”

OK, so let’s look at this list with “FPIES Eyes”.  If you haven’t already just turned away in horror, stay with me while I break this down.  There’s a great book called “A Consumer’s Dictionary of Food Additives” by Ruth Winter.  I broke out my copy and used it to decipher the ingredients in Burger King French Fries:

  • Potatos – straight forward.  If potatos are a safe food for your kiddo, you’re good to go.
  • Soybean Oil OR Canola and Palm Oil – Wait a sec – didn’t their allergen list say NONE for allergens?  How is that possible if they ‘may’ use soybean oil in their fries?  Soy is a top 8 allergen!  Hmm…though, other than that little misleading tidbit, this is straight-forward.  If your kiddo is safe with soybean, canola or palm oils, you’re good to go.
  • Modified Potato Starch – to quote from the book: “Ordinary starch that has been altered chemically to modify such properties as thickening or jelling.  Babies have difficulty digesting starch in its original form.  Modified starch is used in baby food on the theory that it is easier to digest.  Questions about safety have arisen because babies do not have the resistance of adults to chemicals.  Among chemicals used to modify starch are propylene oxide, succinic anhydride, 1-ocetnyl succinic anhydride, aluminum sulfate, and sodium hydroxide.  On the FDA top priority list for reevaluation since 1980.  Nothing new reported by the FDA since.”  OK, OK, wait…do we want to flip through the book and look up all the chemicals used to jack with our potato starch, or do we want to call this a big fat “NO”, and move on?  Well, depends on how restrictive your child’s diet is.  You may have the luxury of being able to say “Next!” but you may be so desperate for a food your baby can eat that you’re willing to feed them something that has been modified by something that likely causes an increased risk of cancer (propylene oxide).  Ahem.  Moving on…
  • Rice Flour – DING DING DING!  We have a major FPIES no-no here!  Rice is one of the top FPIES trigger foods; aside from that, why on EARTH do you need to add RICE to a french fry??
  • Potato Dextrin – In the book, there is no listing under “potato dextrin”, however, there is a listing for “Dextrin”: “British Gum. Starch Gum. White or yellow powder produced from starch and used as a foam stabilizer for beer, a diluting additive for dry extracts and pills, in polishing cereals, for preparing emulsions, and in matches, fireworks, and explosives.  May cause an allergic reaction.”  Um…sounds delicious, doesn’t it!
  • Salt – This is sort of straight-forward.  Salt is salt, right?  WRONG.  If you have a “corn-sensitive” FPIES kiddo, this might be a problem, because ordinary iodized table salt contains dextrose, which is often corn-derived.  So, maybe.
  • Leavening (Disodium Dihydrogen Pyrophosphate,  Sodium Bicarbonate) – Ms. Winter has no listing for Disodium Dihydrogen Pyrophosphate, but she does have a listing for Disodium Pyrophosphate: “An emulsifier and texturizer used to decrease the loss of fluid from a compound.”  Sodium Bicarbonate, of course, is Baking Soda.  So, the first is kind of icky sounding, though generally regarded as safe, and the second is innocuous.  However, I repeat the question: why is this necessary in a french fry??
  • Dextrose – CORN SYRUP.  No problems with corn?  You’re good to go.  Problems with corn?  NO.
  • Xanthan Gum – A FAM (Food Allergy Mama) or FPIES Mama is well versed in xanthan gum: it’s one of the two ways you can make baked goods that seem like normal, gluten-filled baked goods!  However, xanthan gum, while generally regarded as safe, is derived from corn.  So, again, corn okay? No problem.  Corn bad?  NO.
  • Sodium Acid Pyrophosphate – “A white mass or free-flowing powder used as a buffer.  It is a slow-acting acid constituent of a leavening mixture for self-rising and prepared cakes, doughnuts, waffles, muffins, cupcakes, and other types of flours and mixes.  Also used in canned tuna fish.  The U.S. Department of Agriculture has proposed that SAP be added to hot dogs and other sausages to accelerate the development of a rose-red color, thus cutting production time by some 25 to 40 percent.  It is related to phosphoric acid, which is sometimes used as a gastric acidifier.  Generally Regarded As Safe.”  Um, yeah.  Generally regarded as safe.  And it sounds DELICIOUS, too!!!

THAT, my friends, is what you learn about Burger King French Fries when you’re looking at food through “FPIES Eyes”.  

For comparison, follow this link for MY recipe and ingredient list for French Fries!

(And people wonder why I say that even after (God willing) Mr. Happy outgrows FPIES, I’m STILL going to make nearly all of our food from scratch at home.  Puh-lease!)

Anyway, THAT is what “FPIES Eyes” are.  They are the eyes that look at the smallest, most inconsequential ingredient in a food with a critical, evaluating appraisal.  They are the eyes that investigate the packaging of the food that our kiddos eat, wondering if it could have leeched something into the food.

And don’t EVEN get me started on the art supplies…non-toxic is just code for “poison my FPIES baby”!  (Non-toxic means corn and soy derived, generally, which are high up on the list of FPIES triggers.)

Fellow FPIES/FA Mamas, did I explain this well for our non-FPIES/FA friends?  Let me know if I left anything out!

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In honor of FAAW, would you please share this post everywhere you possibly can? Looking at the world through FPIES Eyes is an entirely new way to look at the world, and this will really help others see what FPIES Families go through every day. There’s no better way to build awareness than letting others see through our eyes!!

Thank you!

Food Allergy Awareness Week 2014

Food Allergy Awareness Week 2014 CradleRockingMama.com My return to work last week was a huge adjustment for me and my family. Trying to balance Zac’s needs with our financial needs is a tricky tightrope to walk.

One very positive thing came from returning to work, though: ADVOCACY.

On any given day at work, I am placed in close proximity to an average of 300 people. Of those 300, I generally get the chance to converse in some depth with no less than ten of them. On a good day, I may get a decent conversation going with as many as thirty total strangers. (Why yes, they DO look for friendly people to be Flight Attendants!)

Why is that a good thing?

Well, when your life is strictly regimented by the demands of FPIES and other food allergies and intolerances, it is an absolute given that at some point, those subjects will come up in the conversation! I try not to just blurt out our difficulties; it’s too “victim-ish”…too…earnest  to suit my personality.

But when someone sees me cleaning my breast pump equipment and kindly asks “How old is your baby?”, I’m honest and tell them “Almost two years old.” THAT gets a lot of gasps and “OMG why are you still nursing?!” (I don’t go into the WHO recommendations on nursing; Americans are squeamish about extended breastfeeding in general, and I have bigger fish to fry – so to speak!)

When someone mentions a food intolerance of their own, it easily lends itself to mentioning our own issues. Likewise when a fellow co-worker offers me a bite to eat or invites me to join them in a meal on downtime.

I didn’t intend to talk about FPIES, Fructose Malabsorption, Histamine Intolerance, and IgE’s and Epi-pens with every single person I spoke with while at work last week…but in the end, I did. It’s a small thing, but that is another 45 or so people who now know about FPIES that had never heard of it before.

With any luck, those 45 people will remember what I told them, and be able to help someone they meet along the way who talks about their childs horrible reactions to foods. They’ll be able to tell their friend, family member, acquaintance, or random stranger “You know, I talked to a lady one time who told me about her sons food issues. It sounds a lot like what you’re dealing with. What was it called again…something PIES.”

Hey, it’s not perfect, but it’s something to put into a Google search engine. And maybe it’s enough to help a struggling family find some answers before their child spends too much time in the ER.

Food Allergy Awareness, FPIES Awareness, well, it’s sort of a “pay it forward” kind of deal. 

The more people who know, the more people will be helped.  The FPIES Foundation is advancing the concept of “Be the Voice” to bring awareness to FPIES during Food Allergy Awareness Week

We all have a voice to use. Whether it is through large numbers of random stranger encounters at work, through social media, at our schools or offices, or some other means, we ALL have the ability to use our voices for FPIES and Food Allergy Awareness.

This week, I’d like to encourage everyone to use their voices for this fantastic cause.

It’s not hard! Really! You don’t have to be a social butterfly or an especially gregarious person for this challenge. (Of course, if you are, that’s fantastic!)

If you aren’t comfortable striking up conversations with people to spread awareness, focus on your strengths.

Are you a whiz at Facebook and Twitter? Great! Share links and stories this week!

Do you have a large circle of friends that you’ve ignored since your FPIES diagnosis? Invite them out for coffee and share your story!

Still so shy you can’t speak up? Wear a T-shirt from the FPIES Foundation that says it all for you!

Just don’t have time for all these conversations? Take some fliers down to your pediatricians office and ask to leave them out for other patients to peruse. (For that matter, take the fliers anywhere – bulletin boards at work, grocery stores, convenience stores, etc. You never know who will let you put some fliers out for awareness raising!)

Planning your kiddos birthday party? Consider asking for donations to be made to the FPIES Foundation in lieu of gifts. 

Of course, if you’re especially ambitious, you could actually put together a full-on awareness raising/fund raising event. It doesn’t have to happen this week; awareness and fund raising can happen any time!

There are a million little ways you can use your voice this week.

SHOP
Buy a Bravelet to wear.
Buy awareness raising gear from the FPIES Foundation’s shop.
Buy an “I Have FPIES Eyes” t-shirt from my Zazzle shop. (10% to the FPIES Foundation this month!)

FLIERS
Print something from the FPIES Foundation’s Flier Page.

SOCIAL MEDIA
Change your profile picture for the week.
Change your banner picture for the week.
Share links.
Share videos.

I’ll even make it somewhat easy for you: “Like” my Facebook page and “Follow” my posts. This week I’ll share lots of links and awareness raising info that you can simply “share” – without having to seek it out!

This week is just one week of the year. You are just one person.

But it’s amazing what one person can accomplish in one week.

Let’s all work together this week to spread the word about FPIES and Food Allergies!

Every purchase made at my Zazzle Shop and Etsy Shop through the month of May will contribute 10% to the FPIES Foundation.

A Light at the End of the Tunnel

A Light at the End of the Tunnel CradleRockingMama.com

I hope everyone had a wonderful Mother’s Day weekend!

Our banana trial is in full swing and going extraordinarily well! Not only is he showing no negative reaction signs whatsoever, but so far there isn’t a possible way to present bananas to Zac that he doesn’t like.

He’ll wolf down whole bananas in minutes. Frozen whole bananas? Awesome. Dehydrated banana chips? Screams for them. Banana ice cream? “Wow, Mommy! You really DO love me!”

It’s going so well, we’re beginning the three day break a day early. Thursday we’ll reintroduce, and if that goes well Zac will have his FIFTH FOOD!

I’m a little surprised things are going so well, actually, considering that last week during the trial we had LOTS of accidental ingestions. 

Thursday Jed left a pork rind on the floor that I didn’t notice. Zac picked it up, of course, and I wound up yanking it out of his mouth. I know he took a bite of it, but I’m not positive that he ate any of it. Pork is a safe food, of course, but I don’t know what kind of salt was used on this bag of pork rinds, and I don’t know what these pigs were fed, so I still wouldn’t feed them to Zac at this point in time.

The very next day, Jed left some smoked salmon on his plate at the table and before I could clean it up Zac decided to help himself. I didn’t see him eat any, but he looked as if he were swallowing something when I found him.

I asked him if he’d eaten any of Jed’s salmon and he said “Uh huh!” I’m still not 100% sure he actually ate it, but two things make it likely he did: one is that he’s very good about answering ‘yes’ or ‘no’ questions, and the second thing is that he had hiccups about an hour later.

He hasn’t had hiccups in a while, certainly not during the banana trial; usually it’s a sign of something not sitting well in his body.

Then Saturday he ate a potato chip. Once again, Jed left his bag of potato chips ON THE FLOOR (he knows better) and Zac helped himself. This time we KNOW he ate some; there was a bite taken out of the chip, and the remaining chip Darrel dug out of his mouth was moist from being sucked on.

Other than the hiccups after salmon he has had NO signs of a reaction to any of these foods! 

It’s actually enough to make Darrel and I wonder if he isn’t – perhaps – beginning to outgrow FPIES. 

I hate the idea of getting excited too soon, and I am absolutely not  saying he has outgrown FPIES. Just that he might, maybe, possibly, hopefully, be in the beginning stages of outgrowing it.

Darrel and I are speculating that with corn being his most sensitive trigger, by keeping him so completely corn-free we may be allowing his body time to heal and strengthen. So maybe, just maybe, there’s a light at the end of the tunnel?

Darrel is all for going full steam ahead on food trials, dropping our cautious “ten days on, three days off, seven days off” routine down to a “three days on, three days off, two days on” trial schedule.

I’ll admit I want to do it, too. But there’s a part of me that hesitates. I hate the idea of having to backtrack. If we move too fast, we might miss some chronic sign of a problem. After all, it took us several months to see that pork is FPIES safe but causes histamine problems in him!

So I don’t know where we’ll go next or how fast we’ll go.

It feels sort of like I imagine a prisoner might feel when told he’s up for parole. There’s a glimmer of hope, but you don’t want to get too excited, too soon, because there’s always the chance that those hopes will be dashed. 

For his part, Jed has been…off, lately.

He barely ate most of this weekend, and when he did eat, it was almost only bananas and potato chips. I served him delicious, healthy meals, and he refused almost every time to eat more than a few bites. But he would beg for potato chips and bananas.

I. Don’t. Get it.

He pooped on the potty Sunday afternoon, and if I didn’t know better I’d say it was a full-on fructose poop: light-colored, loose, sticky, nasty. Looking over his food journal, though, I see nothing that could cause this.

Bananas could, theoretically, be a fructose problem, but he’s been eating bananas his entire life and has never previously shown any signs of not tolerating them. They’re one of the first “maybe” fructose foods we ascertained was perfectly fine for him. So I’m at a loss.

Could the world be so cruel as to make Jed intolerant of bananas JUST as we’re discovering they are (almost certainly) SAFE for Zac?

I asked him if his tummy hurt, and he said that no, it didn’t. But why else would a child want to eat such bland foods unless his tummy felt ‘off’ somehow?

He’s also been very argumentative and belligerent the last few days.

I’m at my wits end about Jed. I don’t know what to make of any of this. Is it normal for his age behavior? Is it a food intolerance? Did he get too much sun this weekend and just feels icky in general? If it is a food problem, which food is the problem?

I don’t know. I’m getting tired of playing food detective.

The only thing I know for certain right now is that we’re about to get really strict with Jed about food. The “Rules” have been in place for months now, and this week he broke them every chance he got. Since he’s been SO GOOD about stray food around Zac so far, Darrel and I weren’t paying close enough attention and Zac seized his opportunity.

Thank goodness there have been no adverse affects from this, but I don’t want to chance it in the future.

__________

In broader news than my family, this week is Food Allergy Awareness Week. I’m not actively kicking off much today, since I wanted to give a banana trial update, but stay tuned for Awareness raising posts this week!

What’s your best way to raise awareness of food allergies?

Happy Mother’s Day! (When I Look at my Belly Button, I Think of You)

Happy Mother's Day When I Look at my Belly Button I Think of You Mom CradleRockingMama.com

In honor of Mother’s Day this weekend, I think we should all talk about belly buttons.

Yes, belly buttons.

A few weeks ago I was in the shower (with the boys, of course, because it’s against the law for mothers to do anything alone) and I had a sudden realization about their cute little belly buttons: they are a tangible, permanent physical reminder that at one point in time, my boys were physically attached to me.

For almost a year, they grew in my belly as I quivered with anticipation at the hope and joy of my future child. I felt them kick and roll inside me; my body fed them every single thing they needed to grow from almost nothing into a whole baby.

Part of my body and soul fed into the little baby growing inside me, and even when they came ripping their way into the world at large and the cord connecting us was snipped, I never stopped feeding my body and soul into their little selves.

I’m a mother. Giving of myself to them will never end.

But once they’re outside of your body, learning to walk and talk, run, play, sing songs and scream at you “NO!”, it’s harder to recognize how Mama’s still funnel their hearts, souls and bodies into those little angel-monsters.

Except for one thing: the belly button.

It sits there, quietly on their tummy, doing not much of anything day in and day out. But it is a reminder that from the moment they were conceived, their lives and mine became intrinsically linked.

Oh, sure, they will grow up into men someday. They will move out of our home, build families of their own, and I will be here with Darrel, watching their lives from a distance (though hopefully not too great a distance!).

The cutting of the cord at their birth is also symbolic, you see. Eventually, to be healthy and happy, they must separate from me to a certain extent.

But that little belly button tells the truth: no matter how much they separate and grow, they were once a part of me.

And in my heart and soul, they always will be.

I will always be willing to give my last breath for them.

While I sat there with the water streaming over me, getting all choked up about my two little boys cute little belly buttons and what they mean to me, it suddenly dawned on me: I have a belly button, too!

I was struck a little speechless as the awareness washed over me.

MY Mom loves me that way, too. MY Mom felt exactly the way I feel about my boys – but about ME. I don’t think I ever really “got” that before.

Even more? We ALL have belly buttons.

I know there are far too many children out there who grow up without mothers, or with mothers who really stink at the job. I know there are children who were raised by loving mothers that adopted them, and therefore had nothing to do with their own belly buttons (except symbolically).

But on this Mother’s Day, I wanted to remind myself, and share with those of you who either HAVE Belly Button Mama’s or ARE Belly Button Mama’s (or both): consider the belly button and all it symbolizes.

Mother’s are amazing for a million and one things, but the most amazing thing about Mother’s is the depth and breadth of their love.

For me, I will not look at a belly button without thinking about the love of a Mother to her Child ever again.

Who knew those little innies and outies could be so poignant?

I’m going to take a moment to publicly share something with my own Mother.

Mom? Happy Mother’s Day!
When I look at my belly button, I think of you.
Thanks for everything. I love you!

To all my Mama readers, I hope you have a wonderful day of respect, honor, and love.

Go blow on some of those cute little belly buttons and get some giggles from your sweet angel-monsters!

HAPPY BELLY BUTTON DAY!

What’s your favorite “Belly Button Mama” experience? What are you doing for Mother’s Day?