Everything looks better after a good night’s sleep, you know? I don’t think there’s any way I can possibly THANK YOU ALL for the outpouring of support and encouragement we received yesterday. It means the world to me. Seeing how many people are “in our corner” and praying for my … Continue reading →
Earlier this week I wrote about FPIES Children With NO Safe Foods, asking for your help in spreading the story to help these children. Y’all were awesome! I hear there was a boost in Facebook “Likes” on Michael’s page, and I know several of you shared his link. Thank you! (And if … Continue reading →
Take a trip into your imagination for a minute… You are the mother (or father) of a precious little boy. He’s adorable! The light of your life. You can’t believe how lucky you are to be his parent. You snuggle with him, lovingly bathe him, tickle him and cover him … Continue reading →
Tuesday this week we met with the dietician. I honestly didn’t have high hopes, as – aside from one friend who is a knowledgeable dietician (and fellow FPIES Mama) – our experiences with dieticians has been lackluster. In this case, I was pleasantly thrilled! This lady knew about my kids … Continue reading →
After meeting up with the grandparents (my Mom and the Geek’s Dad) and Mr. Charm, we left to go find some food for me to eat. We were quickly interrupted by a phone call from the allergists office asking if we were okay and where we were. I was a … Continue reading →
This morning I called both the pediatric Allergist and the GI doctor. I wanted to tell them about Mr. Happy’s increasing reaction to the Neocate, and our experiment this weekend with dilution. The GI was in labs all day, so his nurse (who was barely comprehendible) took a message and … Continue reading →
The hospital gave us 2 cans of Neocate and the remaining pre-mixed formula they had ready for Mr. Happy when we left the hospital. This only provided, by my estimation, enough food for Mr. Happy to last until Monday or Tuesday of the following week. Not a lot of time … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)