Before my impromptu craft fair hiatus, I left our regularly scheduled posting with a cliff-hanger: Zac had an ear infection last week that required another round of Rocephin shots. Obviously, this is not great news; at the same time, though, I admit to being a little excited. After our last … Continue reading →
Today we are supposed to be in Atlanta, having follow up appointments with our GI and Allergist. We are not in Atlanta. We cancelled the appointments. It was REALLY hard to make this decision. Darrel and I spend our lives trying to make sure our kiddos have the very best … Continue reading →
On Monday I talked about Zac’s ongoing FPIES reactions, and how he’s had some “unidentifiable somethings that LOOK like they might be food, but really, I don’t know” in his diaper that were our only clue as to what might be causing his current acute/chronic reactions. And we really did … Continue reading →
Last Tuesday, we loaded up and drove to meet with our – hopefully – new gastroenterologist. This doctor had been highly recommended to us, and I hoped very much that he would actually be a contributing part of my boys health care. As with any new doctor, there was a … Continue reading →
Yesterday we had our first appointments with the Atlanta specialists. Coming here was a good decision. I have so much to say about how it went and what I learned, but I don’t have a computer and it is far too much to type on an iPhone. So I’ll just … Continue reading →
Back in December, I mentioned that we were going to Travel For Medical Care. Next Tuesday is our Big Day. We will see a new GI and a new Allergist on Tuesday, and hopefully get an appointment with the nutritionist they both use. We picked doctors in Atlanta, mostly because … Continue reading →
I took Mr. Charm to the GI on Monday, Oct. 15th. The doctor wouldn’t give us the hydrogen breath test, but did other tests to ‘rule things out’. We were told we would be called with the results. They didn’t call. I finally called the doctor on Friday, the 26th … Continue reading →
(I’m going to apologize in advance…this post is rather long and disjointed, but for all my editing efforts I can’t seem to improve it. I’m still exhausted from Monday and seriously irritated and confused, and this is the best I can do. Thanks for sticking with me!) Riddle me this: … Continue reading →
Last week I posted about my new suspicion that Mr. Charm may have fructose malabsorption, and my determination to have him tested for the condition. The day before that post ran, I called our pediatrician to ask what needed to be done to order the test. I spoke with a … Continue reading →
Today was a bad day for me. We stuck with the diet; it’s already starting to occur to me just how monotonous this is going to get, but I’ll stick with it. I don’t know how to begin to describe why this day was bad. Lots of little things just added … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)