Red Letter Day (How Even Experienced FPIES Parents Screw Up)

I feel sick to my stomach right now. I had a post all ready to go for this morning, but then this happened and now it’s all I can think about. Yesterday I wanted to finally take the time to try and make quinoa in a way I would like … Continue reading

Living With FPIES

By now you have probably read enough to know that living with FPIES is not always easy. There’s the constant worry, the high costs of food, the specialists appointments, the vomit, the diarrhea, the lethargy, the fear…but today’s post isn’t about any of that. No, today I just thought I’d … Continue reading

Bad Words. Bad Words. Very Very VERY Bad Words.

Sorry in advance, but this is going to be a long, sad post. Back in June we started a quinoa trial. We planned to pull the quinoa for three days and resume the trial to see if he reacted, and on the final day of the first stage of the … Continue reading

Little Boy Blues

It’s been a while since I really just wrote about what is happening with the boys, so here’s the latest: Jed is doing well on our Fructose Malabsorption diet, and we’re trialing him on different foods to see how he handles them.  So far, we’ve tried coconut shreds, coconut milk, … Continue reading