I Don’t Know What To Do

It was another long night with Zac. At the end of yesterdays post I wrote about Zac’s sudden weird eye swelling late Sunday night/early Monday morning. So yesterday I spent a TON of hours on the phone with pharmacists and doctors. Both boys are now scheduled to see the allergist … Continue reading

What Do We Trial Next?

All FPIES parents eventually have to ask themselves the all-important question: What do we trial next? It’s an important, vexxing, terrifying question. Early on, Darrel and I came up with a list of foods we wanted to trial. We picked highly nutritious food to get the most bang for our … Continue reading

Flying High

Hope you had a fabulous Labor Day weekend! I took the day off from blogging because I was working. That’s okay, though! Other than suddenly being required to be at work a little more than I’d like, my family and I are flying high! (At least, for the moment.) As … Continue reading

How We Saved Our Marriage (Part 3)

Read Part 1 and Part 2 of “How We Saved Our Marriage”. After our Serious Talk, Darrel and I felt a lot more optimistic about the state of our marriage. In behavior, nothing had yet changed, but simply being on the same page again, simply communicating clearly with each other … Continue reading

How We Saved Our Marriage (Part 2)

Please read Part 1 of this story. So here’s the scene: I’m full-on, 100% ticked off at Darrel for his real and imagined transgressions. I decide we need to have a Serious Talk. That’s code for “I need to let Darrel know, in no uncertain terms, exactly how he’s ticked me … Continue reading

How We Saved Our Marriage (Part 1)

Last week I mentioned that Darrel and I have had to do some serious marital work lately, so I’m going to take a slight detour from the world of FPIES and Fructose Malabsorption and share that story. I’ve debated about sharing this for two reasons. One, because it’s not directly related … Continue reading

How to Keep A Food & Symptom Journal

More frequently than I’d like to see, new parents post on the FPIES message boards. It’s almost always the same basic introduction message: “My child was just diagnosed. I feel completely overwhelmed! What do I do now?!” Every single time, the first piece of advice given is to start a food and … Continue reading

We Love Chicken

As of Sunday, CHICKEN IS SAFE!! We LOVE chicken! And chicken loves Zac! He weighed in at 27.2 pounds at his Sunday morning weigh-in; not only the highest weight he’s ever achieved, but a full 1.2 pounds heavier than before we started the chicken trial. Guess this child needs a … Continue reading

FPIES Changed My Parenting Rules

When I was pregnant with Jed, I was super  nervous and excited. I wanted to read everything I could about my growing baby, so I signed up for the BabyCenter weekly pregnancy emails. You know the ones…”your baby is the size of a kumquat and is doing _______”. What it … Continue reading

Open Highways

Well. There’s not much to report about the boys at the moment; Zac seems to have finally finished teething so apricots resume today. He’s also doing well in speech therapy, finally trying to say actual words! So far he’s attempted to say “bottle” (ba ba), “splash” (lah), and “brother” (bubba). … Continue reading