Shelving Sunflower

Would you like to take a trip into an FPIES parents brain for a bit? Good. Then let me share with you what Darrel and I have been thinking and doing the last few days. We started Zac on sunflower products Thursday a week ago. We’ve been using Spectrum sunflower oil … Continue reading

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I know you’re all on pins and needles, anxiously awaiting news of how the sunbutter trial is going for Zac. (Right?) Well, so far, so good. Sort of. With caveats. Ready for a story? About a month ago, a lovely young lady from our church began advertising for a fund-raiser. … Continue reading

How Living With A Rare Disease Kept Me From Participating in Rare Disease Day 2014

Today is Rare Disease Day. It’s kind of a big deal in my circles; a day to raise awareness for all people who live with a condition that is little known and little understood. I had some plans, y’all! There were things I was going to do today to celebrate … Continue reading