Today we are supposed to be in Atlanta, having follow up appointments with our GI and Allergist. We are not in Atlanta. We cancelled the appointments. It was REALLY hard to make this decision. Darrel and I spend our lives trying to make sure our kiddos have the very best … Continue reading
I woke up in the morning to discover that sometime in the night, Mr. Happy had decided that he no longer needed to be on oxygen. He had pulled the canula out of his nose and it was over his head like a headband. The nurse saw this while I … Continue reading
For some reason, I woke at 6:15 a.m. and couldn’t go back to sleep. So I got up, pumped and dumped, cleaned the pump equipment and was heading into the shower at 7:15 a.m. when Mom called me. She immediately asked me if I was awake, as sometimes when she … Continue reading
We woke up to find Mr. Happy sleeping on a wedge pillow. Apparently sometime during the night the nurses and doctor decided to elevate him to perhaps help his breathing. We talked with the dayshift crew and find out the plan for the day. They decided they wanted to rule out anything … Continue reading
We were taken straight to the Intermediate Care Ward, which is the middle ground area between the regular ITU (Infant/Toddler Unit) and the PICU (Pediatric ICU). The nurses, doctors and therapists were immediately tending to Mr. Happy, but one nurse took the time to provide us with pillows and blankets, … Continue reading
Almost immediately upon arrival in our room they sent respiratory therapists in to begin therapy, which involved nebulizer treatments and chest beating. He didn’t seem to mind. They had prevented me from nursing him because they were afraid he would aspirate the milk and make his pneumonia worse. I finally … Continue reading
Wednesday morning, Mr. Happy didn’t eat his usual way at 3:00 and 5:00 a.m. He only nibbled. At 6:15 a.m. he woke up screaming and wouldn’t stop. At 7:00 a.m., I took him to the living room and found he would only calm down in a few select upright positions. … Continue reading
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)
