A Letter to My Boys

Dearest Sweet Boys, I love you SO much.  And I love  how you love me.  Really, it’s absolutely wonderful how you want to be near me, right there with me, doing exactly what I’m doing, all the time.  The way you both want to be held constantly and snuggle with … Continue reading

Why You Don’t Let an FPIES Kid Eat Kitty Litter

Scene:  Mr. Charm is down for his afternoon nap.  Mr. Happy is crawling around in the kitchen and dining room while I clean up the kitchen.  I’m talking to my Mom on the phone. (It’s important to know that during construction last summer, we put the kitty litter boxes under … Continue reading

What Is An FPIES Kids First Food?

ICE.  Of course! We aren’t quite ready to start Mr. Happy on solid foods yet, but there is concern in the FPIES world that if you have to wait too long to begin feeding your child, feeding issues raise their ugly little heads. There are physical problems that come up: … Continue reading

Our New Team – The Dietician

Tuesday this week we met with the dietician.  I honestly didn’t have high hopes, as – aside from one friend who is a knowledgeable dietician (and fellow FPIES Mama) – our experiences with dieticians has been lackluster. In this case, I was pleasantly thrilled!  This lady knew about my kids … Continue reading

The Poop Collection Conundrum

Definition of Conundrum: “an intricate and difficult problem.” Did I mention the sheer volume of tests the GI ordered for Mr. Happy and Mr. Charm? Did you catch that they are STOOL samples? I wasn’t too concerned…I’ve collected LOTS of poop from my kiddos over the last two and a … Continue reading

Our New Team – The Allergist

After meeting up with the grandparents (my Mom and the Geek’s Dad) and Mr. Charm, we left to go find some food for me to eat.  We were quickly interrupted by a phone call from the allergists office asking if we were okay and where we were. I was a … Continue reading

The Blood Draw (for our New Team)

We left Dr. G’s office and the grandparents took Mr. Charm to get some lunch while I took Mr. Happy for his blood draw. Poor little guy had 16mL of blood drawn!  Ouch! He really does have tough veins to draw from.  It’s a new experience for me: I’m basically … Continue reading

Our New Team – The Gastroenterologist

Last Tuesday, we loaded up and drove to meet with our – hopefully – new gastroenterologist. This doctor had been highly recommended to us, and I hoped very much that he would actually be a contributing part of my boys health care. As with any new doctor, there was a … Continue reading

Baltic Amber

Mr. Happy is now in the unpleasant position of not having any pain relieving medicines he can take. Ibuprofen was a major fail; acetaminophen might  eventually pass, but it showed fail signs when we tried it a few weeks ago. Our compounding pharmacists are waiting to hear back from their … Continue reading

Georgia Bound

Back in December, I mentioned that we were going to Travel For Medical Care.  Next Tuesday is our Big Day.  We will see a new GI and a new Allergist on Tuesday, and hopefully get an appointment with the nutritionist they both use. We picked doctors in Atlanta, mostly because … Continue reading