FPIES is Making Me P.C.

Well, sort of.   See, I’ve never been a terribly PC sort of person.  I’m too blunt, too “tell it like it is”.  It’s never my intention to hurt anyone; in fact, I view it as a sign of respect to not tip-toe around the truth with “delicate phrasing”.  I … Continue reading

Zac’s Probiotic Trial: Update II

Sorry this is so late today; I didn’t get a chance to use the computer all weekend and today was wicked busy! SO…as I left it last week we were wondering about the corn in the probiotics and weren’t sure if Zac was handling them well or not. Monday I … Continue reading

Tribal Beats

Last week, I wrote an article about thriving as the parent of special needs.  In it, I talked about “finding your tribe”; a group of people in the same situation as you that you can share, commiserate and celebrate with.  I said they would make your life better, even if you never … Continue reading

The Trials Have Begun! – and “How to Toddler-Proof Your Hotel Room Door”

Thursday night last week, I received a distressing phone call.  My grandmother had been taken to the hospital, and my aunt was told that “it didn’t look good” and that she should “call the family in”. As it was late, the kids were asleep, and Darrel and I were both … Continue reading

FPIES and Nature Apparently Don’t Mix

On Monday I talked about Zac’s ongoing FPIES reactions, and how he’s had some “unidentifiable somethings that LOOK like they might be food, but really, I don’t know” in his diaper that were our only clue as to what might be causing his current acute/chronic reactions. And we really did … Continue reading

Easter Basket for My Allergic Kiddos

Jed is seriously allergic to eggs.  He’s also intolerant to dairy.  He also has issues with fructose – meaning most sweeteners are no good for him. Well, that just shoots Easter goodies right out of the water!  No hard-boiled, dyed Easter Eggs, no gigantic chocolate bunnies, no jelly beans or … Continue reading

Little Boy Blues

It’s been a while since I really just wrote about what is happening with the boys, so here’s the latest: Jed is doing well on our Fructose Malabsorption diet, and we’re trialing him on different foods to see how he handles them.  So far, we’ve tried coconut shreds, coconut milk, … Continue reading

FPIES Hope

Sunday night was a bad one, y’all.   Despite our new Food Protocols, at 6:00 p.m. on Sunday night Mr. Happy found a piece of breakfast sausage on the dining room floor and put it in his mouth. I immediately started swiping, while he gagged and coughed around my finger. … Continue reading

Helpless

Do you know one of the worst things about FPIES? It renders you completely helpless.   Impotent. Yesterday I changed 8 bloody, mucousy, smelly diapers for Mr. Happy.  He screamed in pain immediately after pooping each time; by the end of the day, he was screaming in pain on the … Continue reading