Mr. Happy needs some blood drawn for a few tests the allergist wants run, so I took him to the local (won’t say the name) to have it done. She absolutely tortured my baby! She told me to sit holding him in my lap. Then she tried the right arm, … Continue reading
Today was the first day of our whole family elimination diet. I think I jumped into this before I was ready… When I arrived in the kitchen this morning to make breakfast, I realized the only pineapple we had was in the little tubs. Okay, no problem, those will be … Continue reading
Today we had a follow-up appointment with the allergist. I was nervous, because I’d done as much reading as I possibly could in the previous 24 hours, and it appears to be quite common, at least, from the moms who report their experience on message board support groups for FPIES, … Continue reading
Bright and early on Wednesday we had a follow-up appointment with the pediatric gastroenterologist. This is the same doctor from the hospital; he apparently also has hours a few times a week in a town closer to us. God Bless him! When Mr. Charm needed a pediatric GI doctor, we … Continue reading
I woke up in the morning to discover that sometime in the night, Mr. Happy had decided that he no longer needed to be on oxygen. He had pulled the canula out of his nose and it was over his head like a headband. The nurse saw this while I … Continue reading
For some reason, I woke at 6:15 a.m. and couldn’t go back to sleep. So I got up, pumped and dumped, cleaned the pump equipment and was heading into the shower at 7:15 a.m. when Mom called me. She immediately asked me if I was awake, as sometimes when she … Continue reading
We woke up to find Mr. Happy sleeping on a wedge pillow. Apparently sometime during the night the nurses and doctor decided to elevate him to perhaps help his breathing. We talked with the dayshift crew and find out the plan for the day. They decided they wanted to rule out anything … Continue reading
We were taken straight to the Intermediate Care Ward, which is the middle ground area between the regular ITU (Infant/Toddler Unit) and the PICU (Pediatric ICU). The nurses, doctors and therapists were immediately tending to Mr. Happy, but one nurse took the time to provide us with pillows and blankets, … Continue reading
Wednesday morning, Mr. Happy didn’t eat his usual way at 3:00 and 5:00 a.m. He only nibbled. At 6:15 a.m. he woke up screaming and wouldn’t stop. At 7:00 a.m., I took him to the living room and found he would only calm down in a few select upright positions. … Continue reading
It was the best of times, it was…the best of times! I was pregnant with my first, long-awaited, child. Any first time mother will know how terrified I felt at the prospect of being responsible for another human being, and how thrilled I was to finally become a Mother. Mr. … Continue reading
