Histamine Intolerance Too?

Last week I was inspired to try something new for Zac. On one of the message boards, someone had mentioned making meringue and piping it into shapes for a safe Easter “cookie” for their FPIES kiddo, and that sounded intriguing to me. We don’t have sugar or vanilla as safe … Continue reading

Frugal Friday – Water Bottle Seed Starters

This weeks frugal tip is courtesy of my forced “green thumbing” thanks to FPIES. I have  to garden this year, which means I need to get some seeds started NOW. Only, most seed starter kits use either plastic or “biodegradable” material that I’m not sure is safe for Zac. One … Continue reading

Return to Work Trial Run

…aka “A Weekend at the Farm”, or “30 Hours WITHOUT the Kiddos!” A few weeks ago, Darrel suggested something that I instantly vetoed. “Why not let your parents take the boys one night? We could actually SLEEP! And they could test out keeping both boys for when you go back … Continue reading

Are You An FPIES Mama?

Recently I met a new FPIES mama, and talking with her about her overwhelming journey into the world of FPIES prompted me to start re-reading my own story from the beginning. When I got to my post from September 4, 2012, I laughed out loud. I’m amazed that I wrote … Continue reading

The Secret Worry of Rare Disease Parents

This is something that has been on my mind for a long time, but I’ve held off writing about it because…well, it’s hard to write about. Parents, by design, have to live with a certain degree of worry. We worry about little things, like whether our child is developing on … Continue reading

Shelving Sunflower

Would you like to take a trip into an FPIES parents brain for a bit? Good. Then let me share with you what Darrel and I have been thinking and doing the last few days. We started Zac on sunflower products Thursday a week ago. We’ve been using Spectrum sunflower oil … Continue reading

Date=0, Business=0, FPIES=1

I know you’re all on pins and needles, anxiously awaiting news of how the sunbutter trial is going for Zac. (Right?) Well, so far, so good. Sort of. With caveats. Ready for a story? About a month ago, a lovely young lady from our church began advertising for a fund-raiser. … Continue reading

How to Make Sunbutter From Scratch

And I do mean from scratch! I’m talking raw seeds to creamy sunbutter here. For those of you just joining me on this journey, let me fill you in on why I’m going through this ordeal. My son, Zac, is severely reactive to corn and soy. I have hunted and … Continue reading

Pork is SAFE!!!

Earlier this week I’d said that Darrel and I were planning on “calling” pork on Friday. Well, I looked at the calendar, and subtracting the days where pork was on a break during the trial, Wednesday was the 18th day Zac had pork. He is showing absolutely NO signs of … Continue reading