Like I said, this is a week of anniversaries. One year ago today, our world changed forever. Oh, we didn’t get our diagnosis until August 1st, but on July 18th – the day after we learned Jed’s IgE to egg had gotten so much worse that we needed an Epi-pen … Continue reading
Zac has FPIES reactions, apparently. This is the hard part of child care for an FPIES family; no matter how much the caregiver loves the child and believes that FPIES is real and serious, if they haven’t lived it every moment of the day they just don’t quite understand the … Continue reading
Last Wednesday, the first thing I did after landing back home was to head out to Bug Scuffle Farms. I needed some lamb, you see. Backtracking a bit; Zac was doing pretty good on his quinoa trial, but then, of course, the ruptured eardrum from hell came and forced us … Continue reading
<chirp chirp chirp> That’s the sound of the crickets chirping in the silence of the last week here at Cradle Rocking Mama. I’ve been, as they say, out of pocket. And out of my mind, but that’s starting to seem all too typical! So, to ease any concerns I’m going … Continue reading
I have to start this post with a gigantic THANK YOU. After yesterdays emotional ordeal, I was overwhelmed with the outpouring of support and encouragement! To go through a food trial for the first time is scary; to think it was unsuccessful is devastating. But to know that there were … Continue reading
Well, it took forever, but here it is: the video of Zac eating food for the first (and apparently, only) time. Breaks my heart. He was so happy to finally get to eat. I hate FPIES.
Last week I went to the doctor. For me, not the kids. I’ve been having some strange symptoms the last 6 weeks or so. A strange “lightening” in my chest followed by the feeling that I’m suddenly standing on a mountain peak, having a hard time breathing the thin air. … Continue reading
It’s been a while since I really just wrote about what is happening with the boys, so here’s the latest: Jed is doing well on our Fructose Malabsorption diet, and we’re trialing him on different foods to see how he handles them. So far, we’ve tried coconut shreds, coconut milk, … Continue reading
Tuesday this week we met with the dietician. I honestly didn’t have high hopes, as – aside from one friend who is a knowledgeable dietician (and fellow FPIES Mama) – our experiences with dieticians has been lackluster. In this case, I was pleasantly thrilled! This lady knew about my kids … Continue reading
OK, I wrote this post with the plan to post it today, but over the weekend some things popped up on our radar that complicates the issues. I didn’t have time to re-write it to include the new stuff, so, here’s the originally planned post, with the weekend revelations at … Continue reading
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)
