Facebook RSS Mail Etsy Pinterest
Skip to content
  • Home
  • Welcome!
  • Beginnings
  • FPIES Links
  • The Menu
    • Carrie (Mama)
    • Jed (Mr. Charm)
    • Zac (Mr. Happy)
  • My Recipes
Facebook RSS Mail Etsy Pinterest

Tag Archives: CPS

The Secret Worry of Rare Disease Parents

  March 11, 2014 - 8:00 am | March 11, 2014 Living With FPIES, Parenting, The FPIES World
5 Comments

This is something that has been on my mind for a long time, but I’ve held off writing about it because…well, it’s hard to write about. Parents, by design, have to live with a certain degree of worry. We worry about little things, like whether our child is developing on … Continue reading →

Tagged CPS, FPIES, parenting, rare diseases
  • Things I Love

    The Tuttle Twins - a child's foundation of freedom
  • Hello!

    Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)

  • What is FPIES?

    FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
    _________________________________________
    Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
    _________________________________________
    There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
    _________________________________________
    There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
    _________________________________________
    Find out more: Click on "FPIES Links" at the top!

  • Places I Love

  • Looking For Something?

  • Archives

  • The Latest

    • Why We Love The Tuttle Twins
    • The Incredible Vanishing Woman
    • Injured and Stressed
    • Allergic to Living: Mast Cell Activation Disorder
    • Global FPIES Day 2016
  • I’m Crafty

| Powered by Mantra & WordPress.
Facebook RSS Mail Etsy Pinterest