When Mama’s Away…

Zac has FPIES reactions, apparently. This is the hard part of child care for an FPIES family; no matter how much the caregiver loves the child and believes that FPIES is real and serious, if they haven’t lived it every moment of the day they just don’t quite understand the … Continue reading

OK, Quinoa…I Don’t Think We’re Done With You Yet!

I have to start this post with a gigantic THANK YOU. After yesterdays emotional ordeal, I was overwhelmed with the outpouring of support and encouragement! To go through a food trial for the first time is scary; to think it was unsuccessful is devastating. But to know that there were … Continue reading

Zac Probiotic Trial: Update IV

Well. I know you all sit anxiously by your computers, just waiting for my latest post to arrive every Monday through Friday, so I know I’ve been letting you down for the last two weeks with my sporadic posting. <grin> There’s a good reason for my late Zac probiotic update … Continue reading

Zac’s Probiotic Trial: Update II

Sorry this is so late today; I didn’t get a chance to use the computer all weekend and today was wicked busy! SO…as I left it last week we were wondering about the corn in the probiotics and weren’t sure if Zac was handling them well or not. Monday I … Continue reading

Tribal Beats

Last week, I wrote an article about thriving as the parent of special needs.  In it, I talked about “finding your tribe”; a group of people in the same situation as you that you can share, commiserate and celebrate with.  I said they would make your life better, even if you never … Continue reading

FPIES and Nature Apparently Don’t Mix

On Monday I talked about Zac’s ongoing FPIES reactions, and how he’s had some “unidentifiable somethings that LOOK like they might be food, but really, I don’t know” in his diaper that were our only clue as to what might be causing his current acute/chronic reactions. And we really did … Continue reading

Little Boy Blues

It’s been a while since I really just wrote about what is happening with the boys, so here’s the latest: Jed is doing well on our Fructose Malabsorption diet, and we’re trialing him on different foods to see how he handles them.  So far, we’ve tried coconut shreds, coconut milk, … Continue reading

Apparently Teething Makes FPIES Kids Sick

…at least, when their Mama doesn’t pay enough attention to what they are teething on! As a modern, good mother, I made sure to get lots of solid wood toys for my boys to play with.  Like Jed’s Thomas Trains, and the entire wooden layout. Zac has been delivering tiny, … Continue reading

FPIES Hope

Sunday night was a bad one, y’all.   Despite our new Food Protocols, at 6:00 p.m. on Sunday night Mr. Happy found a piece of breakfast sausage on the dining room floor and put it in his mouth. I immediately started swiping, while he gagged and coughed around my finger. … Continue reading