The Most Wonderful Time of the Year

I had a whole big post written for today, talking about how Christmas is different for FPIES families. How we have to eschew certain traditions and alter others so that the Christmas’s we create for our kiddos don’t really resemble the ones we had when we were kids. You know … Continue reading

Ambiguity Stinks

I just have to state for the record that one thing that really stinks about FPIES is the complication factor. The last week we’ve been confused about the carrot trial on Zac. He has definitely had an acidic diaper rash and poo full of mucous, he has screamed in pain … Continue reading

Fructose & FPIES Follies

fol·ly  (fl) n.pl.fol·lies 1. A lack of good sense, understanding, or foresight. 2.a. An act or instance of foolishness: regretted the follies of his youth.     b. A costly undertaking having an absurd or ruinous outcome. We’ve been having an awful lot of fun here, lately. Yes, I’m being sarcastic. Let’s start with Zac: … Continue reading

The Aftermath

Thank you, everyone, for your wonderful words of prayer and comfort yesterday. I don’t know how we’d endure if we didn’t have such great support. Today’s post is going to be brief. Yesterday I was much too scattered and bummed to write anything worthwhile, and today, well… By 10:00 am, … Continue reading

Red Letter Day (How Even Experienced FPIES Parents Screw Up)

I feel sick to my stomach right now. I had a post all ready to go for this morning, but then this happened and now it’s all I can think about. Yesterday I wanted to finally take the time to try and make quinoa in a way I would like … Continue reading

The Hunt for Corn-Free Carrots

I’ve become a hunter. A vegetable hunter, that is.  I’m on the hunt for a corn-free veggie to trial for Zac. Broccoli was a no-go, and we think it was because of some corny substance on the broccoli. Swiss chard was a no-go, and we aren’t sure if that was … Continue reading

I Am A Parent First

  It is well established by now that being a special needs parent is challenging. In our case, the food challenges can be utterly consuming of time and energy. Every bite of food must be considered carefully. Once the decision is made of what  to cook, then the method of … Continue reading

Food, Food Everywhere, and Not A Bite To Eat

I hate corn. If every corn field in the world were to spontaneously go up in flames, I would abandon my TED and go out on a drinking and partying binge that would put my ’20’s to shame. I’ve written about corn before, but y’all, I don’t think even *I* … Continue reading

Kids: You Can’t Make This Stuff Up

Y’all, I really just can’t make this stuff up. So yesterday morning, Jed pitched a fit when I wanted to take off his overnight disposable diaper. Frankly, I get tired of fighting the whims of a toddler 24/7, so when it’s something that doesn’t matter all that much in the … Continue reading

Blatant Self-Promotion, aka Shop My Etsy Shop for Christmas!

After my Frugal Friday post, you might read this post and think “Hypocrite, much?” I know, I know…but the real message of my “Just Say No to Christmas” post was to be aware of your spending this holiday season. Not to not  spend anything. So if you’re going to spend … Continue reading