Recently I met a new FPIES mama, and talking with her about her overwhelming journey into the world of FPIES prompted me to start re-reading my own story from the beginning. When I got to my post from September 4, 2012, I laughed out loud. I’m amazed that I wrote … Continue reading
This is something that has been on my mind for a long time, but I’ve held off writing about it because…well, it’s hard to write about. Parents, by design, have to live with a certain degree of worry. We worry about little things, like whether our child is developing on … Continue reading
Last week I took Jed to the allergist to be re-tested. In about ten days, we hope to start an egg trial for Zac’s FPIES, but we are understandably concerned about doing this since Jed is so terribly IgE allergic to eggs. It seemed prudent to get him re-tested to … Continue reading
I know you’re all on pins and needles, anxiously awaiting news of how the sunbutter trial is going for Zac. (Right?) Well, so far, so good. Sort of. With caveats. Ready for a story? About a month ago, a lovely young lady from our church began advertising for a fund-raiser. … Continue reading
And I do mean from scratch! I’m talking raw seeds to creamy sunbutter here. For those of you just joining me on this journey, let me fill you in on why I’m going through this ordeal. My son, Zac, is severely reactive to corn and soy. I have hunted and … Continue reading
Sigh. This a-gain? Didn’t we just DO this last year? Why yes, yes, we did. Renee Moilanen wrote about her discontent with her child’s school birthday party. And I wrote my rebuttal. (Along with about a zillion other Food Allergy Mama’s.) All those heightened emotions…all that energy expended…and lookiehere: just … Continue reading
Last week I missed sharing a lot of things, so here’s a little update on how the kiddos are doing. When I left off, we discovered I had inadvertently corned Zac with dishwashing soap. That put the pork trial back in full swing, albeit with some residual reaction symptoms. We … Continue reading
…is discovering you made a mistake that means your son still has a chance at his second safe food! (Who needs flowers and chocolates, right?) OK, so, here’s the deal. Pork is still a trial in progress. I know, I know…yesterday I was all “doom and gloom” about how Zac … Continue reading
Saturday Zac ate another ounce of pork at breakfast. Then he ate another ounce at dinner. Throughout the day he was happy, pleasant, playful, and perfect. He pooped a bit more than normal, and had hiccups for a few minutes in the afternoon, but that was it for anything remotely … Continue reading
Zac had an FPIES reaction yesterday. The proof came, as always, with a poopy diaper. His first diaper of the day looked great, but since we are trialing a food, I tested it for blood anyway. It was…inconclusive. It could have been blood. It might not have been. Hmm… Half … Continue reading
