Every FPIES family has a diagnosis story. This is ours.
In The New Hospital, First Day
Second Day in the New Hospital
Learning a New Way to Cook, and Learning to Swallow My Pride
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Hello!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)
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I’m so glad I found this and you. I have suspected MCAS but it is difficult to get allergy treatment in the uk. I have found a specialist but she’s expensive so im saving up to see her. Feeling rough today as have reacted to grapes which I haven’t tried for a long time. I react to so many things sometimes it’s hard to recall them all. I only learned of this condition recently although I knew something was very wrong. Could I ask how you managed to find a specialist in the USA. Would you mind sharing the name of your specialist? I’m feeling overwhelmed as new food are coming on board and being crossed off the list of what I can eat all the time.
Julie x
Julie, I’m so sorry I haven’t responded sooner. By now I’m sure you have already gotten help, but just in case, my specialist was Dr. Lawrence Afrin. He was at the Mayo Clinic but now is based out of Rochester, NY. His waiting list is CRAZY long, so if you want to go see him, call now and wait a year or two.
He actually wrote the book on MCAD, titled “Never Bet Against Occam”.
I know it’s overwhelming. I wish I could be more help. Definitely read his book, and don’t stop searching until you find the answers for you! Hugs!