Would you like to take a trip into an FPIES parents brain for a bit? Good. Then let me share with you what Darrel and I have been thinking and doing the last few days. We started Zac on sunflower products Thursday a week ago. We’ve been using Spectrum sunflower oil … Continue reading →
I know you’re all on pins and needles, anxiously awaiting news of how the sunbutter trial is going for Zac. (Right?) Well, so far, so good. Sort of. With caveats. Ready for a story? About a month ago, a lovely young lady from our church began advertising for a fund-raiser. … Continue reading →
And I do mean from scratch! I’m talking raw seeds to creamy sunbutter here. For those of you just joining me on this journey, let me fill you in on why I’m going through this ordeal. My son, Zac, is severely reactive to corn and soy. I have hunted and … Continue reading →
Today is Rare Disease Day. It’s kind of a big deal in my circles; a day to raise awareness for all people who live with a condition that is little known and little understood. I had some plans, y’all! There were things I was going to do today to celebrate … Continue reading →
Earlier this week I’d said that Darrel and I were planning on “calling” pork on Friday. Well, I looked at the calendar, and subtracting the days where pork was on a break during the trial, Wednesday was the 18th day Zac had pork. He is showing absolutely NO signs of … Continue reading →
Last week I missed sharing a lot of things, so here’s a little update on how the kiddos are doing. When I left off, we discovered I had inadvertently corned Zac with dishwashing soap. That put the pork trial back in full swing, albeit with some residual reaction symptoms. We … Continue reading →
We are still snowed in. Well, actually, we’re ICED in, which is worse. Theoretically, we could leave the house. We couldn’t safely leave until about 11:00 a.m., and we’d have to be back by about 4:00 p.m., or else we’d risk getting caught on icy roads as the temperature re-freezes … Continue reading →
There are tons of “peanut butter cup” recipes online, but most of them are chock full of dairy and sugar. Since neither of those is okay for our household, I decided to tweak and make Jed a safe butter cup to enjoy. It was worth it! This is the first … Continue reading →
This week has been an emotionally difficult week for me, with these wretched anniversaries reminding me of our rough year. So I decided that I needed to lighten the mood and indulge in a little not unhealthy, but not really healthy treat making. After Jed’s sudden comprehension of what a … Continue reading →
This last week on Pinterest I have found some amazing recipes that were completely safe for my family – as written! Our specific needs are so, well, specific, this is almost an impossible task. And I’ve found TWO dessert recipes that I really don’t have to do anything to in … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)