It’s been so quiet here for the last two weeks that I can hear crickets chirping, but there’s a good reason: we broke out of our comfort zone in a BIG way – and then we all got sick. Boo. I’ll share more about our trip in a whole post of its … Continue reading →
On Thursday, August 13th, Darrel and I declared russet potatos a safe food for Zac. It’s his 18th safe food, and we couldn’t be happier! For his part, Zac adores potatos. He gets excited by mashed potatos, thrilled with hamburger hash, and ecstatic over French fries. For our part, life … Continue reading →
Being gone for a few weeks means a LOT has gone on in our lives that I haven’t shared. Let me start, though, by updating about the kiddos doctor appointment yesterday. Sure enough, the doctor found signs of ear infections in both boys. However, either the virus had just run … Continue reading →
Last Thursday I left for work again, arriving home on Monday morning. Have I mentioned lately that I am tired of going to work? It’s just exhausting. The good news is that February’s work schedule looks a lot better overall; it’s still a little grueling the first week of the … Continue reading →
A month ago I shared the scary proposition that Zac may have CAS (Childhood Apraxia of Speech). Shortly after that post, our beloved speech therapist was in a session with Zac and, hitting another brick wall of progress, called her boss in to observe. Our therapist, Miss K, is amazing! The … Continue reading →
Thanksgiving went beautifully for us! Last year Zac could only eat quinoa drops during the meal, while segregated in a high chair. This year he sat with us at the table and chowed down on 7 different foods! (Nine if you count butter, milk and salt.) It was a glorious … Continue reading →
I have to start this post with a gigantic THANK YOU. After yesterdays emotional ordeal, I was overwhelmed with the outpouring of support and encouragement! To go through a food trial for the first time is scary; to think it was unsuccessful is devastating. But to know that there were … Continue reading →
Sorry this is so late today; I didn’t get a chance to use the computer all weekend and today was wicked busy! SO…as I left it last week we were wondering about the corn in the probiotics and weren’t sure if Zac was handling them well or not. Monday I … Continue reading →
On Monday I talked about Zac’s ongoing FPIES reactions, and how he’s had some “unidentifiable somethings that LOOK like they might be food, but really, I don’t know” in his diaper that were our only clue as to what might be causing his current acute/chronic reactions. And we really did … Continue reading →
Last Wednesday was Mr. Charm’s first day of speech therapy. Even before he went, he had a word explosion! He learned 8 new words the week before his first session, and started mimicking, which he had always refused to do before. At his ‘orientation’ session, his therapist said lots of … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!