I wish we were normal. I wish we didn’t have so many food issues. I wish I were still obese and could feed my kids without thinking. I wish my kids could throw up and I didn’t have to analyze every aspect of their lives to determine the cause. I … Continue reading →
Yesterday’s recipe was a surprise to me. I wrote it and scheduled to post it last week – and forgot all about it! Just to give a little update, things are better. First, I want to thank you all for your concern, prayers, and insight. After the last post, I … Continue reading →
Last week, when we needed to give Rocephin shots to Zac thanks to a double ear infection, I was sure we were about to endure another FPIES reaction. After all, he’d reacted to his last round of shots. Imagine my surprise as each day passed with NO signs of a reaction … Continue reading →
We seem to be on the upswing, finally, from the virus that wiped us all out the last week and a half. The “sick fog” is lifting, and we are slowly getting back to routine. Darrel caught it last, and he is still suffering worse than the rest of us, … Continue reading →
Well. Long time no write. Sorry. So, last Monday we were Zombies because Zac had spent a weekend teething horribly with no amber necklace and kept us awake. We put the necklace back on him and suddenly he was much better…and I then spent the next two nights completely … Continue reading →
Thank you, everyone, for your wonderful words of comfort yesterday. My Mommy guilt decided to listen to your wisdom and chill out. So. You know how you take your car to the mechanic and it stops making “that noise”? Yeah. Kids do that, too. At the doctor yesterday, Zac had … Continue reading →
Today we are supposed to be in Atlanta, having follow up appointments with our GI and Allergist. We are not in Atlanta. We cancelled the appointments. It was REALLY hard to make this decision. Darrel and I spend our lives trying to make sure our kiddos have the very best … Continue reading →
Yeah. I know. It’s actually “anger”. You’ll understand. Let me tell you a story about Monday… Jed peed in his riding toy. It leaked all over the floor, of course. Before that, he head butted me in the face making my eye sore and tender. I decided to eat a … Continue reading →
The last half of August was a hot mess for me. I worked ten days in the month, all of which were after the 16th. That explains my absence here last week, by the way; anything beyond basic survival was WAY beyond my abilities! To make matters worse, this last … Continue reading →
<chirp chirp chirp> That’s the sound of the crickets chirping in the silence of the last week here at Cradle Rocking Mama. I’ve been, as they say, out of pocket. And out of my mind, but that’s starting to seem all too typical! So, to ease any concerns I’m going … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)