One of the most frequently searched-for recipes found on my site is my egg-free, gluten-free Salmon Patties. It makes me so happy to know I’m helping some people figure out how to make something delicious again after losing eggs and gluten from their diet! Unfortunately, that recipe was from my early … Continue reading →
The last post I wrote shared how grateful I feel for our little “not normal” lives. I was. I am. But, you know, the reality is that no one can sustain any feeling on a 24/7 basis. Not even gratitude for the blessings you have. Last week was an absolute … Continue reading →
Yesterday I shared my frustrations with FPIES and my wish for my family to be normal, food-wise. But let me tell you about the rest of the day… Zac ate salmon at 9:00 a.m. He never showed any signs of a reaction to it whatsoever, for which I was grateful! That … Continue reading →
I wish we were normal. I wish we didn’t have so many food issues. I wish I were still obese and could feed my kids without thinking. I wish my kids could throw up and I didn’t have to analyze every aspect of their lives to determine the cause. I … Continue reading →
Every year for Thanksgiving, my family traditionally lays out a plate of “snacks”: stuffed celery sticks, black and green olives, and pickles are always present, and sometimes other little goodies make an appearance. It’s just enough to take the edge off the hunger brought on by all those delicious cooking … Continue reading →
We gave Zac salmon for dinner last Wednesday. He loved it! He actually licked his fingers and pressed them on the plate to get the tiny bits of salmon that were left after he scarfed down his serving. By far, his favorite way to eat salmon is in patty form, … Continue reading →
All FPIES parents eventually have to ask themselves the all-important question: What do we trial next? It’s an important, vexxing, terrifying question. Early on, Darrel and I came up with a list of foods we wanted to trial. We picked highly nutritious food to get the most bang for our … Continue reading →
One fabulous side benefit of having a fun-filled weekend away from home is two small children whose sleep schedules are completely thrown off! Children who don’t go to sleep until nearly midnight don’t leave their mama a lot of time to write coherently, after all. I decided it was kinder … Continue reading →
There’s no fabulous story behind this recipe. I just got bored with the dinners I’ve been making and started throwing things together in the kitchen! It’s a bit of an interesting combination, but in the end it turned out pretty delicious. The grocery store had some gorgeous mushrooms this week, … Continue reading →
Click here for my revised recipe. It’s also egg-free and gluten-free, and has printable formatting and much better photos! Thank you! Ever since Thanksgiving, I’ve been pretty much out of the kitchen. With being so sick for so long, I completely lost my drive to ‘create’ and found myself fairly … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!