How Living With A Rare Disease Kept Me From Participating in Rare Disease Day 2014

Today is Rare Disease Day. It’s kind of a big deal in my circles; a day to raise awareness for all people who live with a condition that is little known and little understood. I had some plans, y’all! There were things I was going to do today to celebrate … Continue reading

Rare Disease Day

  Today is Rare Disease Day. This is a worldwide initiative to bring greater awareness to those who suffer with rare diseases.  Rare Disease Day in the United States is sponsored by NORD (National Organization for Rare Disorders) and Rare Disease Day Worldwide is sponsored by Eurodis (Rare Diseases Europe). … Continue reading