The concept of life being a juggling act is so well known it has become part of our vernacular. Why else would we say we “dropped the ball” on something? For the most part, I agree with the analogy. I do often feel like I have all my little “balls” … Continue reading →
Last week I was inspired to try something new for Zac. On one of the message boards, someone had mentioned making meringue and piping it into shapes for a safe Easter “cookie” for their FPIES kiddo, and that sounded intriguing to me. We don’t have sugar or vanilla as safe … Continue reading →
I have a toddler who has lately been refusing to go to sleep at night. He also refuses to play happily in the living room during the time between when his brother goes to sleep and when he is finally ready to go to sleep. So I’ve been forced to … Continue reading →
…is discovering you made a mistake that means your son still has a chance at his second safe food! (Who needs flowers and chocolates, right?) OK, so, here’s the deal. Pork is still a trial in progress. I know, I know…yesterday I was all “doom and gloom” about how Zac … Continue reading →
We’ve had a rough couple of days. Most of it is non-FPIES related, so I won’t bore you with the details, but let’s just say I’ve been feeling very shaky. Even if I’d been feeling great, though, yesterday would have brought me down. Yesterday, Zac reacted to the pork. It’s … Continue reading →
When it came time to consider another meat trial for Zac, I admit to being at a bit of a loss. My awesome lamb guy only raises lambs. We’re pretty confident chicken (so probably turkey and other poultry) is a trigger, so we didn’t want to go there. Game meats … Continue reading →
Zac had an FPIES reaction yesterday. The proof came, as always, with a poopy diaper. His first diaper of the day looked great, but since we are trialing a food, I tested it for blood anyway. It was…inconclusive. It could have been blood. It might not have been. Hmm… Half … Continue reading →
After writing about our Anniversary and saying that we wouldn’t be able to go out on a date, we got a big surprise! My parents and I spoke early Friday morning, and Mom mentioned they were planning to go to town to run some errands. I had a sudden brainstorm: … Continue reading →
Long before I even became pregnant with Mr. Happy, I started making my own breakfast sausage. By that point, Mr. Charm’s food issues had started our “reading labels” adventure, and I was sort of disgusted by what I found in most breakfast sausages. It was enough to make you go … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
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Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)