Three years ago, on August 1, 2012, while standing in the hallway of the doctors office, we received our FPIES diagnosis. Three years. It seems like an eternity and a blink simultaneously. In honor of this dubious anniversary, I’ve been re-reading the early posts I wrote about our journey. Remembering … Continue reading
What is FPIES?
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
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