One thing that many non-food allergic families don’t often understand is the way food allergies restrict your life. It’s not something you consciously think about, but occasionally it hits you in the face just HOW much your life has been changed by the existence of food allergies. For FAAW, I … Continue reading →
With five days of goat milk under our belts, I’m happy to report that we have good news, and we have great news! For the good news, goat milk has so far proven to be very similar to eggs in terms of FPIES food trials for Zac. No symptoms whatsoever, … Continue reading →
Well. We decided to trial BOTH boys on goat milk. At the same time. I can hear you all thinking it: Why would they do something so crazy? Well, Jed has MSPI, and has been kept away from dairy products since he was 5 weeks old. However, he’s had infrequent … Continue reading →
fol·ly (fl) n.pl.fol·lies 1. A lack of good sense, understanding, or foresight. 2.a. An act or instance of foolishness: regretted the follies of his youth. b. A costly undertaking having an absurd or ruinous outcome. We’ve been having an awful lot of fun here, lately. Yes, I’m being sarcastic. Let’s start with Zac: … Continue reading →
Everything looks better after a good night’s sleep, you know? I don’t think there’s any way I can possibly THANK YOU ALL for the outpouring of support and encouragement we received yesterday. It means the world to me. Seeing how many people are “in our corner” and praying for my … Continue reading →
Tuesday evening the kids and I were at the grocery store. Jed was entertaining himself by looking at the candy, which, as I’ve already said, the poor child has no concept of. He doesn’t want to eat any of it, he just likes the pretty colors! He grabbed a Snickers bar … Continue reading →
My babies are bald. And they have delicious gummy smiles. I drink in the smell of Mr. Happy’s little bald head. One day, in about six or seven more months, he’ll have enough hair that I won’t be able to kiss his sweet scalp. I’ll be kissing peach fuzz, instead. … Continue reading →
I love my children. Ahem. More specifically… I *LOVE* my children with every fiber of my being. But sometimes, the unrelenting…relentlessness of being responsible for them 24/7/365 is just flat-out exhausting. Because I don’t ever – EVER – get a break.** Child care is hard enough to find without … Continue reading →
Oh, blood. I never thought Motherhood would bring so much blood into my life. Yesterday Mr. Charm’s first poopy diaper of the day had visible blood in it. As I’ve stated before, that has only ever happened for him if he consumes dairy. So I called the Geek at work … Continue reading →
Recently I shared some ‘before’ and ‘after’ pictures of my amazing weight loss with my online Mommy friends (from the Parenting Weekly monthly birth club group I joined when I was pregnant with Mr. Charm – yes, three years later and we’re still an active group!) and they were impressed … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)