Zac has FPIES reactions, apparently. This is the hard part of child care for an FPIES family; no matter how much the caregiver loves the child and believes that FPIES is real and serious, if they haven’t lived it every moment of the day they just don’t quite understand the … Continue reading →
I have now officially finished my first trip back to work. Honestly, it wasn’t too bad. Pretty much my entire time away was a series of me thinking “I can handle this!” followed by “I can’t handle this!” – repeat ad nauseum. It started with arriving in my domicile on … Continue reading →
When Jed turned one year old, we had a family celebration on his actual birthday and a party the following weekend. At the family celebration, we served homemade spaghetti and garlic bread, and Darrel’s mom brought a cake for everyone (except me and Jed) to eat. At the party Darrel … Continue reading →
What, did you think I was going to be uber-serious all week? After yesterday, I thought I would share with you the lighter side of going to a protest rally with your children. Let’s start at the beginning. I care (obviously) very much about this cause…but, I don’t get out … Continue reading →
Stick a fork in me, y’all, ’cause I’m done. It’s been such a fun week here, why NOT cap it off with a little middle of the night terror-filled screaming for no apparent reason? Seems fitting, right? Last night Zac fought going to sleep with all he had. Finally, at … Continue reading →
FAAW is nearing its completion. I have seen some beautiful, amazing testimonies to the effects of food allergies on families, and learned some new food allergy facts and trivia (yes, no matter how far in the food allergy rabbit hole you’ve fallen, you still learn new things all the time!). … Continue reading →
They say a picture is worth a thousand words…how much is a video worth? This is my very first video making effort, and I’m sure anyone who knows anything about putting a video together will laugh at what I’ve done! But I don’t mind. This was fun to make, and … Continue reading →
Saturday afternoon, as I struggled to strap a screaming Zac into his carseat, I looked down to see that – oh my goodness! He got another tooth! Finally. This teething thing was getting old. So he now has 7 little teeth in his cute little head, and I’m sure the … Continue reading →
Well. I know you all sit anxiously by your computers, just waiting for my latest post to arrive every Monday through Friday, so I know I’ve been letting you down for the last two weeks with my sporadic posting. <grin> There’s a good reason for my late Zac probiotic update … Continue reading →
OK, seriously, y’all. I DO watch my son. I DO make Herculean efforts to keep him from eating stuff he’s not supposed to have. But Zac has an uncanny ability to locate and consume paper that I am just not fast enough to prevent. My dad has started calling him … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)