Bad Words. Bad Words. Very Very VERY Bad Words.

Sorry in advance, but this is going to be a long, sad post. Back in June we started a quinoa trial. We planned to pull the quinoa for three days and resume the trial to see if he reacted, and on the final day of the first stage of the … Continue reading

One Year With FPIES

Like I said, this is a week of anniversaries. One year ago today, our world changed forever. Oh, we didn’t get our diagnosis until August 1st, but on July 18th – the day after we learned Jed’s IgE to egg had gotten so much worse that we needed an Epi-pen … Continue reading

When Mama’s Away…

Zac has FPIES reactions, apparently. This is the hard part of child care for an FPIES family; no matter how much the caregiver loves the child and believes that FPIES is real and serious, if they haven’t lived it every moment of the day they just don’t quite understand the … Continue reading

Bug Scuffle Farms

Last Wednesday, the first thing I did after landing back home was to head out to Bug Scuffle Farms. I needed some lamb, you see. Backtracking a bit; Zac was doing pretty good on his quinoa trial, but then, of course, the ruptured eardrum from hell came and forced us … Continue reading