Weekend before last, Jed came down with a mild form of the stomach bug that has been working its way through the GI system of America this month. Because I knew about the bug, I didn’t go to the doctor (or even call the doctor) when he turned up with … Continue reading →
The Great Potato Search is on…and it’s pretty much already fizzled. This morning I was up before dawn, schlepping the kiddos out to the larger Farmer’s Market in our area. The mission: buy as many organic, non-jacked with potatos as possible and find a source for more. If I could … Continue reading →
This Sunday, the day after we got home from Nana’s funeral, Darrel and I were getting the kids ready to go to town to run some errands when Jed came over to us telling us he had a “Boo-boo on Jed’s tummy.” He was holding the test Epi-pen in his … Continue reading →
Thursday night last week, I received a distressing phone call. My grandmother had been taken to the hospital, and my aunt was told that “it didn’t look good” and that she should “call the family in”. As it was late, the kids were asleep, and Darrel and I were both … Continue reading →
(I’m going to apologize in advance…this post is rather long and disjointed, but for all my editing efforts I can’t seem to improve it. I’m still exhausted from Monday and seriously irritated and confused, and this is the best I can do. Thanks for sticking with me!) Riddle me this: … Continue reading →
Tuesday I woke up to another set of doctor’s rounds with the gaggle of interns. Out of the blue, they informed me that if Mr. Happy ate well this morning, as expected, he would be released that afternoon. Say what? I was dumbfounded! Of course I wanted him to come home, … Continue reading →
I woke up in the morning to discover that sometime in the night, Mr. Happy had decided that he no longer needed to be on oxygen. He had pulled the canula out of his nose and it was over his head like a headband. The nurse saw this while I … Continue reading →
For some reason, I woke at 6:15 a.m. and couldn’t go back to sleep. So I got up, pumped and dumped, cleaned the pump equipment and was heading into the shower at 7:15 a.m. when Mom called me. She immediately asked me if I was awake, as sometimes when she … Continue reading →
We woke up to find Mr. Happy sleeping on a wedge pillow. Apparently sometime during the night the nurses and doctor decided to elevate him to perhaps help his breathing. We talked with the dayshift crew and find out the plan for the day. They decided they wanted to rule out anything … Continue reading →
We were taken straight to the Intermediate Care Ward, which is the middle ground area between the regular ITU (Infant/Toddler Unit) and the PICU (Pediatric ICU). The nurses, doctors and therapists were immediately tending to Mr. Happy, but one nurse took the time to provide us with pillows and blankets, … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!