So far 2016 has made me yearn with longing for the return of 2015. And 2015 was a really rough year for us. Go, 2016! The sad part is, the New Year started off great! I had to work that weekend, but I picked up a nifty 30+ hour layover … Continue reading →
I hope you all had a really excellent Christmas! It’s almost the end of 2015, and I figured it would be good to do a little “year end recap” and update. For starters, I’ve been rather quiet on the blog front lately, but that’s actually because I’ve been writing furiously … Continue reading →
It’s been a rough few weeks. In fact, there’s been so much happening that I can’t fit it all in one post, so this will be a nifty “ongoing storyline”. To begin, we do have some exciting news! October 30th, I arrived home from work in the early afternoon. As soon as I … Continue reading →
Last time I updated, I said that we had started a green bean trial on Zac. It looked so promising that first day (after we convinced him to try one). Sadly, the green bean trial has flopped. The second day of the trial, I couldn’t get him to eat any … Continue reading →
On Thursday, August 13th, Darrel and I declared russet potatos a safe food for Zac. It’s his 18th safe food, and we couldn’t be happier! For his part, Zac adores potatos. He gets excited by mashed potatos, thrilled with hamburger hash, and ecstatic over French fries. For our part, life … Continue reading →
Three years ago, on August 1, 2012, while standing in the hallway of the doctors office, we received our FPIES diagnosis. Three years. It seems like an eternity and a blink simultaneously. In honor of this dubious anniversary, I’ve been re-reading the early posts I wrote about our journey. Remembering … Continue reading →
Well. That had to be the absolute weirdest sickness I’ve ever had. After I said I was definitely getting sick, I went to bed feeling like total dirt. When I woke up, I still felt like dirt…but the fever had broken! I spent the morning absolutely wanting to crawl into … Continue reading →
I just had 11 days off from work in a row, and in that time I never once plugged in my computer or other electronics, only turned on the computer once (for my last post), and made almost no progress on straightening out the house from the last few months … Continue reading →
The end of the year was so busy around here I didn’t write much. Just to keep the story-telling flow going, I figured I’d fill in the gaps for the last few weeks. When I last updated about the boys, Zac had vomited and we didn’t know why. We still … Continue reading →
The last post I wrote shared how grateful I feel for our little “not normal” lives. I was. I am. But, you know, the reality is that no one can sustain any feeling on a 24/7 basis. Not even gratitude for the blessings you have. Last week was an absolute … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!