Last week was brutal. I’m feeling very off my game right now, so this might not be the best writing I’ve ever done. Still, I wanted to give an update on the tomato trial, since I announced it last week. The tomato trial never happened. Zac helped us pick out tomatos … Continue reading →
If you’re married (and traditional), you probably remember standing in front of the minister, staring lovingly into your future spouses eyes, and glibly, naively, repeating those beautiful words: …in good times and in bad, in sickness and in health, for richer and for poorer, til death do us part. I … Continue reading →
Sorry it’s been a week since I wrote. Believe it or not, the lost bag saga has continued through this time, and I haven’t had the time or the energy to write about it. I’ve been too frustrated and crying too much just living it; recapping it was more than … Continue reading →
Last Monday I woke up in Boston, just as another major snowstorm began. My flight was scheduled to depart at 6:45 a.m. We finally took off at almost 1:00 p.m. We were lucky, though; we were one of 4 flights that my airline was actually able to get in the … Continue reading →
Being Southern, there are certain traditions and superstitions attached to New Year’s Day. For traditions, you must eat greens and black-eyed peas. For superstitions, it’s traditionally believed that whatever you do on the first day of the year is a sign of what the rest of the year has in … Continue reading →
I wish we were normal. I wish we didn’t have so many food issues. I wish I were still obese and could feed my kids without thinking. I wish my kids could throw up and I didn’t have to analyze every aspect of their lives to determine the cause. I … Continue reading →
Sigh. Last week was a challenging one for us. We had LOTS of food reactions. LOTS OF THEM. I was starting to suspect crazy things, like full moons, or I was on a hidden TV show being “Punked”, or that mercury was in retrograde (isn’t that supposed to mess things … Continue reading →
I’m a wreck. Friday afternoon we drove to my parents house. After a fun afternoon fishing in their pond, Darrel and I left the boys with Grandma and PopPop and came home for some alone time. Very early the next morning, the phone rang. It was my Mom, calling to … Continue reading →
Friday marked the two year anniversary of my FPIES TED. I remember waking up on August 8, 2012, excited but apprehensive about the new diet our family was beginning. If you had told me then that two years later I would still only be able to eat 15 foods, I would … Continue reading →
Zac had an FPIES reaction yesterday. The proof came, as always, with a poopy diaper. His first diaper of the day looked great, but since we are trialing a food, I tested it for blood anyway. It was…inconclusive. It could have been blood. It might not have been. Hmm… Half … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!