One thing that many non-food allergic families don’t often understand is the way food allergies restrict your life. It’s not something you consciously think about, but occasionally it hits you in the face just HOW much your life has been changed by the existence of food allergies. For FAAW, I … Continue reading →
Long-time readers, you’re probably bored with this post by now, but because I have received such positive feedback on it, I’m re-posting it in honor of FAAW (Food Allergy Awareness Week). Just like I did last year. Think of this as the “It’s A Wonderful Life” of my little food … Continue reading →
This first trip back to work was good, but exhausting. Instead of trying to force my tired brain into writing, I thought I’d bring back a topic I’ve already addressed: Things I wish I’d known when we first got our food allergy diagnosis. Reading over this list today, I’m struck … Continue reading →
Sigh. This a-gain? Didn’t we just DO this last year? Why yes, yes, we did. Renee Moilanen wrote about her discontent with her child’s school birthday party. And I wrote my rebuttal. (Along with about a zillion other Food Allergy Mama’s.) All those heightened emotions…all that energy expended…and lookiehere: just … Continue reading →
Before Halloween, I was looking around for treat recipes for Jed. Flipping through Living Without magazine, I was intrigued by one of their Halloween recipes: Sweet & Spicy Cinnamon Garbanzo Beans. I never got around to making it before Halloween, but better late than never, right? So I made it … Continue reading →
What causes FPIES? FPIES Mama’s often wonder this. Being Mom’s, we’re only too inclined to pile guilt onto our heads. We want to know if something we ate, drank, or did while pregnant made our kids sick. Fortunately, we have two Mama’s in our group who have twin children. In … Continue reading →
So many FPIES Mama’s talk about frustrating or dangerous situations they’ve been placed in thanks to the ignorance – or rudeness – of friends and family. Situations where they’re invited to a play date with the assurance that all food will be kept in a safe location, only to arrive … Continue reading →
Last week on one of my flights we had a passenger board the plane with her gorgeous 6 month old daughter. As I’m a huge baby-lover, I struck up a conversation with the baby and the mother. (Yes, I shamelessly get a “baby fix” from playing with the babies on … Continue reading →
Over the last month, Jed has developed a new comprehension of our “food issues”. One night Darrel was eating a bowl of cereal before bed. Jed, of course, was fascinated and kept trying to get into Darrel’s food. Since Darrel is the only person in the house that can drink … Continue reading →
Last Thursday evening, Darrel and I decided to begin our next formula trial. We’d decided to go ahead and do a gradual trial before I returned to my last two weeks at work before the leave of absence, and Zac was at baseline on Wednesday. So, Thursday evening we gave … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)