Sorry in advance, but this is going to be a long, sad post. Back in June we started a quinoa trial. We planned to pull the quinoa for three days and resume the trial to see if he reacted, and on the final day of the first stage of the … Continue reading
Like I said, this is a week of anniversaries. One year ago today, our world changed forever. Oh, we didn’t get our diagnosis until August 1st, but on July 18th – the day after we learned Jed’s IgE to egg had gotten so much worse that we needed an Epi-pen … Continue reading
This week is just an Anniversary Week for us, and kick-starting it is today – July 17, 2013 is One Year we’ve been the parents of a child in need of an Epi-Pen. Last year on this day, I took Jed to the allergist to be re-tested for his allergies. … Continue reading
Zac has FPIES reactions, apparently. This is the hard part of child care for an FPIES family; no matter how much the caregiver loves the child and believes that FPIES is real and serious, if they haven’t lived it every moment of the day they just don’t quite understand the … Continue reading
I have now officially finished my first trip back to work. Honestly, it wasn’t too bad. Pretty much my entire time away was a series of me thinking “I can handle this!” followed by “I can’t handle this!” – repeat ad nauseum. It started with arriving in my domicile on … Continue reading
Last week I went to the doctor. For me, not the kids. I’ve been having some strange symptoms the last 6 weeks or so. A strange “lightening” in my chest followed by the feeling that I’m suddenly standing on a mountain peak, having a hard time breathing the thin air. … Continue reading
Tuesday evening the kids and I were at the grocery store. Jed was entertaining himself by looking at the candy, which, as I’ve already said, the poor child has no concept of. He doesn’t want to eat any of it, he just likes the pretty colors! He grabbed a Snickers bar … Continue reading
Last week, I wrote an article about thriving as the parent of special needs. In it, I talked about “finding your tribe”; a group of people in the same situation as you that you can share, commiserate and celebrate with. I said they would make your life better, even if you never … Continue reading
Sunday night was a bad one, y’all. Despite our new Food Protocols, at 6:00 p.m. on Sunday night Mr. Happy found a piece of breakfast sausage on the dining room floor and put it in his mouth. I immediately started swiping, while he gagged and coughed around my finger. … Continue reading
Do you know one of the worst things about FPIES? It renders you completely helpless. Impotent. Yesterday I changed 8 bloody, mucousy, smelly diapers for Mr. Happy. He screamed in pain immediately after pooping each time; by the end of the day, he was screaming in pain on the … Continue reading
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)
