Before my impromptu craft fair hiatus, I left our regularly scheduled posting with a cliff-hanger: Zac had an ear infection last week that required another round of Rocephin shots. Obviously, this is not great news; at the same time, though, I admit to being a little excited. After our last … Continue reading →
Today we are supposed to be in Atlanta, having follow up appointments with our GI and Allergist. We are not in Atlanta. We cancelled the appointments. It was REALLY hard to make this decision. Darrel and I spend our lives trying to make sure our kiddos have the very best … Continue reading →
So many FPIES Mama’s talk about frustrating or dangerous situations they’ve been placed in thanks to the ignorance – or rudeness – of friends and family. Situations where they’re invited to a play date with the assurance that all food will be kept in a safe location, only to arrive … Continue reading →
The last half of August was a hot mess for me. I worked ten days in the month, all of which were after the 16th. That explains my absence here last week, by the way; anything beyond basic survival was WAY beyond my abilities! To make matters worse, this last … Continue reading →
Last week on one of my flights we had a passenger board the plane with her gorgeous 6 month old daughter. As I’m a huge baby-lover, I struck up a conversation with the baby and the mother. (Yes, I shamelessly get a “baby fix” from playing with the babies on … Continue reading →
If you follow me on Facebook you know that Tuesday night, a mere 5 days after the Splash reaction, we were pretty much forced into a new formula trial. This time, we chose Alimentum RTF. We had tentative hope for the Ali, because it is the only formula that has … Continue reading →
Over the last month, Jed has developed a new comprehension of our “food issues”. One night Darrel was eating a bowl of cereal before bed. Jed, of course, was fascinated and kept trying to get into Darrel’s food. Since Darrel is the only person in the house that can drink … Continue reading →
Last Thursday evening, Darrel and I decided to begin our next formula trial. We’d decided to go ahead and do a gradual trial before I returned to my last two weeks at work before the leave of absence, and Zac was at baseline on Wednesday. So, Thursday evening we gave … Continue reading →
Everything looks better after a good night’s sleep, you know? I don’t think there’s any way I can possibly THANK YOU ALL for the outpouring of support and encouragement we received yesterday. It means the world to me. Seeing how many people are “in our corner” and praying for my … Continue reading →
Sorry in advance, but this is going to be a long, sad post. Back in June we started a quinoa trial. We planned to pull the quinoa for three days and resume the trial to see if he reacted, and on the final day of the first stage of the … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)