Earlier this month, when we learned Jed is still allergic to egg, we received a new prescription for Epi-pen, Jr.’s for him. In fact, I requested 3 packages of the Epi-pens: one for our house, one for my parents house, and one to stay in his Thomas the Train backpack … Continue reading →
If you follow me on Facebook you know that Tuesday night, a mere 5 days after the Splash reaction, we were pretty much forced into a new formula trial. This time, we chose Alimentum RTF. We had tentative hope for the Ali, because it is the only formula that has … Continue reading →
This Sunday, the day after we got home from Nana’s funeral, Darrel and I were getting the kids ready to go to town to run some errands when Jed came over to us telling us he had a “Boo-boo on Jed’s tummy.” He was holding the test Epi-pen in his … Continue reading →
This week is just an Anniversary Week for us, and kick-starting it is today – July 17, 2013 is One Year we’ve been the parents of a child in need of an Epi-Pen. Last year on this day, I took Jed to the allergist to be re-tested for his allergies. … Continue reading →
After meeting up with the grandparents (my Mom and the Geek’s Dad) and Mr. Charm, we left to go find some food for me to eat. We were quickly interrupted by a phone call from the allergists office asking if we were okay and where we were. I was a … Continue reading →
Yesterday morning, the Geek let me sleep in just a little bit. At 8:30 a.m., he walked from the living room, where all the boys were hanging out, to our bedroom, and said “Mama, get out of bed!”. I woke up and said “OK”, he turned and walked back towards … Continue reading →
Once upon a time, I wasn’t a Mama. I was a 15 year old, hormone-riddled freak of nature, just like all teenagers are. And just like all kids, I went to school. For the most part, I had a decent time in school. The social labyrinth notwithstanding, I enjoyed learning … Continue reading →
We were taken straight to the Intermediate Care Ward, which is the middle ground area between the regular ITU (Infant/Toddler Unit) and the PICU (Pediatric ICU). The nurses, doctors and therapists were immediately tending to Mr. Happy, but one nurse took the time to provide us with pillows and blankets, … Continue reading →
It was the best of times, it was…the best of times! I was pregnant with my first, long-awaited, child. Any first time mother will know how terrified I felt at the prospect of being responsible for another human being, and how thrilled I was to finally become a Mother. Mr. … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)