Tuesday I picked up a dozen eggs from my parents. Yesterday morning I cooked the first egg that’s been cooked in our house in over a year. I was trying to make a custard-type egg dish for Zac, for a few reasons. For starters, it would be a relatively new … Continue reading →
Last week I took Jed to the allergist to be re-tested. In about ten days, we hope to start an egg trial for Zac’s FPIES, but we are understandably concerned about doing this since Jed is so terribly IgE allergic to eggs. It seemed prudent to get him re-tested to … Continue reading →
Everything looks better after a good night’s sleep, you know? I don’t think there’s any way I can possibly THANK YOU ALL for the outpouring of support and encouragement we received yesterday. It means the world to me. Seeing how many people are “in our corner” and praying for my … Continue reading →
This week is just an Anniversary Week for us, and kick-starting it is today – July 17, 2013 is One Year we’ve been the parents of a child in need of an Epi-Pen. Last year on this day, I took Jed to the allergist to be re-tested for his allergies. … Continue reading →
After meeting up with the grandparents (my Mom and the Geek’s Dad) and Mr. Charm, we left to go find some food for me to eat. We were quickly interrupted by a phone call from the allergists office asking if we were okay and where we were. I was a … Continue reading →
Yesterday morning, the Geek let me sleep in just a little bit. At 8:30 a.m., he walked from the living room, where all the boys were hanging out, to our bedroom, and said “Mama, get out of bed!”. I woke up and said “OK”, he turned and walked back towards … Continue reading →
The kids and I had to come down to Houston last week to take care of some family business and we are staying with my parents. My parents are WONDERFUL about their grandchildrens’ food issues; last year, Mom and I even made the entire Thanksgiving dinner allergy-free for Mr. Charm … Continue reading →
I woke up in the morning to discover that sometime in the night, Mr. Happy had decided that he no longer needed to be on oxygen. He had pulled the canula out of his nose and it was over his head like a headband. The nurse saw this while I … Continue reading →
We were taken straight to the Intermediate Care Ward, which is the middle ground area between the regular ITU (Infant/Toddler Unit) and the PICU (Pediatric ICU). The nurses, doctors and therapists were immediately tending to Mr. Happy, but one nurse took the time to provide us with pillows and blankets, … Continue reading →
It was the best of times, it was…the best of times! I was pregnant with my first, long-awaited, child. Any first time mother will know how terrified I felt at the prospect of being responsible for another human being, and how thrilled I was to finally become a Mother. Mr. … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)