Turns Out, We Have NOT Outgrown FPIES

Sigh. Last week was a challenging one for us. We had LOTS of food reactions. LOTS OF THEM. I was starting to suspect crazy things, like full moons, or I was on a hidden TV show being “Punked”, or that mercury was in retrograde (isn’t that supposed to mess things … Continue reading

Is Snow Safe for FPIES Kids to Eat? (With an FPIES Reaction Video)

Zac had an FPIES reaction yesterday. The proof came, as always, with a poopy diaper. His first diaper of the day looked great, but since we are trialing a food, I tested it for blood anyway. It was…inconclusive. It could have been blood. It might not have been. Hmm… Half … Continue reading

Fructose & FPIES Follies

fol·ly  (fl) n.pl.fol·lies 1. A lack of good sense, understanding, or foresight. 2.a. An act or instance of foolishness: regretted the follies of his youth.     b. A costly undertaking having an absurd or ruinous outcome. We’ve been having an awful lot of fun here, lately. Yes, I’m being sarcastic. Let’s start with Zac: … Continue reading

Emptying the Bucket

  Well. Long time no write. Sorry. So, last Monday we were Zombies because Zac had spent a weekend teething horribly with no amber necklace and kept us awake. We put the necklace back on him and suddenly he was much better…and I then spent the next two nights completely … Continue reading

The Five Stages of Grief: FURY

Yeah. I know. It’s actually “anger”. You’ll understand. Let me tell you a story about Monday… Jed peed in his riding toy. It leaked all over the floor, of course. Before that, he head butted me in the face making my eye sore and tender. I decided to eat a … Continue reading

Another FPIES Reaction

The last half of August was a hot mess for me. I worked ten days in the month, all of which were after the 16th. That explains my absence here last week, by the way; anything beyond basic survival was WAY beyond my abilities! To make matters worse, this last … Continue reading

Another One Bites The Dust

Last Thursday evening, Darrel and I decided to begin our next formula trial. We’d decided to go ahead and do a gradual trial before I returned to my last two weeks at work before the leave of absence, and Zac was at baseline on Wednesday. So, Thursday evening we gave … Continue reading

The Big Girl Panties Come Back!

Everything looks better after a good night’s sleep, you know? I don’t think there’s any way I can possibly THANK YOU ALL for the outpouring of support and encouragement we received yesterday. It means the world to me. Seeing how many people are “in our corner” and praying for my … Continue reading

Bad Words. Bad Words. Very Very VERY Bad Words.

Sorry in advance, but this is going to be a long, sad post. Back in June we started a quinoa trial. We planned to pull the quinoa for three days and resume the trial to see if he reacted, and on the final day of the first stage of the … Continue reading

One Year With FPIES

Like I said, this is a week of anniversaries. One year ago today, our world changed forever. Oh, we didn’t get our diagnosis until August 1st, but on July 18th – the day after we learned Jed’s IgE to egg had gotten so much worse that we needed an Epi-pen … Continue reading