Still Allergic to Egg

Last week I took Jed to the allergist to be re-tested. In about ten days, we hope to start an egg trial for Zac’s FPIES, but we are understandably concerned about doing this since Jed is so terribly IgE allergic to eggs. It seemed prudent to get him re-tested to … Continue reading

A Very Hard Decision

Today we are supposed to be in Atlanta, having follow up appointments with our GI and Allergist. We are not in Atlanta. We cancelled the appointments. It was REALLY hard to make this decision. Darrel and I spend our lives trying to make sure our kiddos have the very best … Continue reading

One Year With an Epi-Pen

This week is just an Anniversary Week for us, and kick-starting it is today – July 17, 2013 is One Year we’ve been the parents of a child in need of an Epi-Pen. Last year on this day, I took Jed to the allergist to be re-tested for his allergies. … Continue reading

Our New Team – The Allergist

After meeting up with the grandparents (my Mom and the Geek’s Dad) and Mr. Charm, we left to go find some food for me to eat.  We were quickly interrupted by a phone call from the allergists office asking if we were okay and where we were. I was a … Continue reading

A Good Decision

Yesterday we had our first appointments with the Atlanta specialists. Coming here was a good decision. I have so much to say about how it went and what I learned, but I don’t have a computer and it is far too much to type on an iPhone.  So I’ll just … Continue reading

Georgia Bound

Back in December, I mentioned that we were going to Travel For Medical Care.  Next Tuesday is our Big Day.  We will see a new GI and a new Allergist on Tuesday, and hopefully get an appointment with the nutritionist they both use. We picked doctors in Atlanta, mostly because … Continue reading

The Guaiac You Say!

Yesterday and today brought three more diapers I wanted guaiac-ed, so this afternoon I drove the kiddos the 50 minute, 35 mile drive to our pediatricians office.  They tested positive.  Not even ‘trace’ – just flat-out, full-fledged “positive” (which is a negative as far as I’m concerned). Combine that with … Continue reading

Comfort From the LLL

I nursed Mr. Happy three times.  Then he started reacting.  So I stopped. Bummer for both of us. However, I knew my system wasn’t completely cleaned out, so it’s not really a surprise.  I had just hoped that it was cleaned out enough that he would react only as badly … Continue reading

Our Elimination Diet – Day 1

Today was the first day of our whole family elimination diet.  I think I jumped into this before I was ready… When I arrived in the kitchen this morning to make breakfast, I realized the only pineapple we had was in the little tubs.  Okay, no problem, those will be … Continue reading

My New Reality

This morning I called both the pediatric Allergist and the GI doctor.  I wanted to tell them about Mr. Happy’s increasing reaction to the Neocate, and our experiment this weekend with dilution. The GI was in labs all day, so his nurse (who was barely comprehendible) took a message and … Continue reading