Tips on Traveling with Toddlers with Food Allergies

photo courtesy of kangshutters at http://freedigitalphotos.net

I often get asked questions about traveling with children and traveling with food allergies because traveling is my job.  So just in time for our holiday travel season I thought I would write a complete post with my best tips and advice on the matter.

  1. Yes, you can bring food.  I wouldn’t recommend a soup, but food is completely allowable.  In fact, I would strongly recommend you DO pack food in your carry-on, as airport cuisine is far from healthy or allergy friendly, and the airlines that offer food for sale usually don’t have a large variety to choose from.  If you have a smartphone, I recommend downloading the I Can Eat On The Go app.  It’s not perfect, but if you get stuck and run out of food it will help you find fast food that ‘might’ be okay for your particular food allergy.
  2. Yes, you can bring formula.  The TSA is pretty understanding about infant formula; they may run a small test on the outside of the bottle, but they will not – or SHOULD not – test the formula itself.  Children have some exemptions on the liquids rule for formula and baby foods, so don’t fret about bringing them along.  If you use a powdered formula, you might make things easier for yourself by portioning out the formula into the bottle beforehand and simply buying bottled water in the terminal, but you CAN bring liquid formula through security. If you’d like extra assurance, get a doctors’ note saying this is ALL your child can safely consume.  But, it shouldn’t be necessary.
  3. Breastfeeding mothers, you CAN bring your breastpump, ice packs and bagged breastmilk through security – even if you do not have your child with you.  Again, they may do a swipe test on the outside of some of your milk bags, but it’s harmless.
  4. So, YES, you can bring ice packs for your food, as well.  Dry ice…not recommended.  Most airlines themselves have a prohibition on dry ice, as it releases fumes that are not good for people to breathe and that’s kind of a problem when confined to a small space for a few hours.
  5. I’d recommend buying one or two large medical ice BAGS at a pharmacy and bringing those along.  Once you’re through security, you can stop at a restaurant and ask to fill your bags with ice.  Backups for your ice packs is a good idea.  DO NOT wait to do this until you’ve boarded your flight!  Airlines are all about making money, and they’ve gotten downright stingy with catering supplies.  Ice isn’t weightless, and they have calculated how much ice is ‘standard’ for each flight and provide exactly that amount.  So Flight Attendants may not have any ice to give you, especially if you wait to ask until after the first beverage service is completed!  (If you need more, ask for it – if they have it, they will give it to you.  They just might not have it, so be forewarned.)
  6. On that note, please be aware that there are no refrigerators on aircraft.  When something needs cool temperatures, it will simply get tossed on top of ice bags in a bucket.  So you’re far better off bringing ice bags in an insulated cooler.
  7. On the warmer side of things, there are NO microwaves on an airplane.  There are convection ovens and hot water spigots and that is IT.  So if you have food that needs heating before eating, look for an airport restaurant that would be willing to ‘nuke it before your flight and put it in its own insulated bag.  You’ll frequently find a Flight Attendant that would be willing to heat your food in the ovens if you ask, but if the airline didn’t provide oven-safe bowls, you are out of luck.  So if you insist on waiting until you’re on the plane, then make sure you packed your food in an oven-safe bowl and bring your own aluminum foil for the top.  Packing a pot holder isn’t a bad idea, either; if catering didn’t provide oven-safe bowls for the flight, they probably didn’t provide pot holders.
  8. Those of you whose children are not dairy allergic, please do NOT depend on the airline to provide milk for your children.  Flight Attendants are often given only 3-5 small containers of milk to serve to 120 or more people; just using it as a coffee creamer can completely wipe out our supply in one beverage service on a morning flight!  We are happy to give it to you – if we have it.  But don’t put your children in a position where they can’t have their only acceptable non-water beverage because all the businessmen take milk in their coffees: buy some in the terminal before you board.
  9. Expect the unexpected!  You never know when a mechanical problem or a weather disturbance will unravel your travel plans.  BRING EXTRA FOOD.  Bring enough food, in fact, to survive at least 3 meals, even if your flight is scheduled to be between mealtimes.  Airlines are incredibly conscious of extended tarmac delays, but the “best laid plans do oft go awry” and the last thing you need is to be stuck between a starving child and food that makes them sick.  It won’t go bad – you can use it when you arrive, but it’s better to have it and not need it than need it and not have it.
  10. On that note, pack extra clothes and diapers.  Airlines no longer have diapers on board (except on some international flights) and again, you don’t want to be in that position.
  11. Use carseats.  I know, I know, it’s a major pain in the tushie to haul your carseat through the airport and on the plane, but it’s (strictly MY opinion here) safer to have your child strapped in properly, not to mention FAR more comfortable for you to endure a plane ride without having to hold a squiggle worm the whole time!  Invest in a carseat bag to get it through the airport.  We have one similar to this backpack style, and I’ve also seen some that are on wheels so you can actually wheel your child through the aiport.
  12. If your child pushes the Flight Attendant Call Light, simply push the button again to turn it off.  This saves the Flight Attendants from constantly coming to your seat for no reason, and eliminates the “boy who cried wolf” problem (yes, if you constantly push the button for no reason – or a silly reason – we WILL stop responding immediately and you don’t want that in case you actually do have an emergency).  Then tell your child to stop pushing that button!  Thanks in advance.  🙂
  13. Please don’t use the Flight Attendants as enforcers.  Your child does need to be buckled in at certain times, and we can’t stand there as a prison warden to make sure your kiddo stays buckled in.  We’ll back you up, but we can’t ‘become the parent’ – we have to parent the other 120 adults on the plane, too!
  14. Bring toys.  Bring headphones.  Bring extra batteries.  ‘Nuff said.
  15. Decide for yourself how you want to time your flight.  My kiddos are absolutely entranced by everything aiport/airplane related.  There are people!  And buttons!  And knobs!  And STUFF!  Sleep is SO not going to happen for my kiddos, no matter how tired they are.  (Except, perhaps, on a middle of the night flight.)  So it’s pointless for me to try to fly during normal naptimes; they won’t sleep but will be exhausted, and then we’ll ALL be miserable.  I try to fly during normal awake times for this reason.  If your kids are awesome and will sleep no matter when, no matter where…then try to schedule your flights during naptimes.  Easier on everyone that way.
  16. Pick up some utensils at an airport restaurant before boarding your flight.  Often flights are not provided with eating utensils.  It would stink to have food but no way to eat it (except your hands.  Ew.).
  17. Don’t feel bad if you use a leash.

    Mr. Happy’s First Airplane Ride!

    Mr. Charm is fearless (have I mentioned that before?) and would think nothing of leaving Mama and Daddy in the dust as he boarded a flight to Istanbul.  (I actually did this to my Mom when I was about his age.  I had strapped myself in to a first class seat on a flight to Mexico City before she could convince the gate agents that her daughter had darted past them and they let her down to get me!)   There are too many distractions in an airport and too much activity to try and ride herd on an adventurous, fearless toddler without losing your mind.  Throw the leash on; it won’t kill them and honestly?  Most people will make comments like “I wish they’d had those when my kids were little!”  If you get the stink-eye, just blow it off.  It’s not like we’ll leash our kids to go to the grocery store.  Airports are just a whole different ball-game.

  18. Pillow pets are awesome.  Airplanes don’t usually have blankets and pillows any more, and if your kiddo gets tired, having one of each is welcome.
  19. Early is the theme of the day!  Get to the airport early, get to your gate early, and board the aircraft early.  Being early will eliminate that rushed, panicked feeling you get when running late, and give you the time to allow your kids to run up to a window exclaiming “COOL” and not lose your temper at them for being in awe.  Not to mention, if you board the aircraft as early as possible, you’ll be able to let your kids go visit the Flight Deck (aka the Cockpit).  Kids LOVE that – usually – and in almost 15 years of working on airplanes, I have to say there’s a 97% chance the Pilots will eat. it. up.  They think they’re God, after all, so having a little guy or girl ‘ooh’ and ‘aah’ over them and their workspace just tickles them to no end! (I’m teasing you, Pilots!) Actually, Pilots are usually madly in love with flying, and LOVE to pass ‘the bug’ on to young kids.  So they’ll almost always let the kids come up and show them buttons, and I’ve even seen Pilots let kids make an announcement on the PA, push buttons (that don’t do anything but make a noise), sit in the Captains seat for a photo, and sometimes they’ll even let them wear their Captain hat, too.  Which brings us to…
  20. Keep your camera ready.  Kids do fun stuff in airports, and you don’t want to miss a photo op!  One really cool thing I’ve seen parents do is create a Flight Log for their kids.  They hand it to the Flight Attendants and ask the whole crew to sign it and share information about the flight.  I’ve seen some AMAZINGLY detailed entries; we do get down time during the flight and Pilots and Flight Attendants are always willing to humor travel aficionados.

Whew!  I don’t know how much help this will be to anyone; a lot of it falls under the category of “Be Prepared and Plan Ahead”.  It’s easy to forget some of these things, though, when you haven’t traveled in a while.

If you have any questions about traveling with food allergies, or traveling with kids, PLEASE ask in the comments!  I want to make sure I’ve covered everything you want to know!

Happy traveling this holiday season!  

Random Thoughts

The kids and I are home again, thank goodness!

Walking in the front door felt like wrapping up in a cozy quilt on a cold day…HOME.

The kids were happy, too.  Mr. Charm had to explore every inch of ‘his’ terrain to make sure all his toys (tupperware, pots and pans, pot holders, etc.) were just where he left them!

It’s fun to visit Grandma and PopPop, but we are all very glad to be home.  Traveling is stressful for all of us!

So stressful and exhausting, in fact, that I’m completely incapable of writing anything coherent for a post.

Mama needs some sleep.  Without hanging on the edge of the bed every night.  (One Mama + one toddler + one baby + one twin sized bed = Mama sleeping halfway off the edge of the bed!)

So here are just a few random thoughts, each unworthy of a whole post but sort of interesting nonetheless.

__________

The Geek was home alone for a week and a half.  He was sick for about 5 days of that, and he’s not much of a housekeeper when he’s healthy…but do you know what that sweet man did for me?

He was chatting with a friend of ours who cleans houses (wish we could afford to hire her!) and wound up trading some small computer fix for her to come and CLEAN MY HOUSE!

I walked in completely prepared to be royally ticked off at the state of the house, and instead I found a tidy house, with vacuumed carpets, swept and mopped floors, sink scrubbed, electric range (almost) spotless – he had cooked after she was done!, bathrooms shiny and even most of the laundry and dishes under control.

I don’t care that he got someone else to do it for him – I care that he cared enough about me to get it done!  I loathe coming home to a house that requires 4 days of hard labor just to get it livable again; coming home to a house that I can just pick up and live in? Priceless.

Love that man!

__________

My dextrose came in to the health food co-op while I was gone.  The Geek picked it up for me, so I was able to read the label on it as soon as we got home.

Sure enough: corn-derived.

We had to think about it to realize that Mr. Happy is the son we think has a problem with corn.  So far, Mr. Charm hasn’t shown any problems with corn, and since the dextrose is for him and his fructose malabsorption, we’ll go ahead and trial it anyway.

If it’s okay, we may look into finding some tapioca-derived dextrose for future use, so it might be safe for Mr. Happy down the line.

Trying to keep track of two little boys’ different food issues is extremely challenging at times!

__________

Did you know that a toddler can completely trash a living room in under two hours?  My tidy house already resembles a frat house, thanks to the diligent efforts of Mr. Charm.

Oh, it’s still clean…but the puzzle pieces are spread all over the floor, toys are strewn across the carpet, all his coloring ‘stuff’ that was neatly piled on the coffee table is now tossed haphazardly everywhere.

It’s stunning, I tell you.  How could such a little person make such a big mess in such a short time?

I HAVE baskets for his stuff to go in!  I HAVE designated places for his toys and ‘stuff’.  Doesn’t matter.  Mr. Charm thinks the proper place for his stuff is all over the living room floor.

Sigh.  At least he’ll help me pick it up.

After all, it’s the only way he’ll get the pleasure of throwing it everywhere again!

__________

Mr. Charm is fructose-laden, and Mr. Happy has been reacting to who-knows-what for a couple of weeks.  Now that we’re home, we can re-implement the fructose free diet for Mr. Charm, and I’ll be able to stay strict on my diet (and avoid cross-contamination) for Mr. Happy, so hopefully by Christmas we’ll be a nice baseline family again.

I hope so.  Mr. Happy has figured out that the other members of his family EAT and he seriously wants to participate in this whole “put things in my mouth and they disappear” magic act we all perform at mealtimes.  He tries to grab my fork from me when I’m holding him on my lap at lunch, and if we’re snacking, he tries to grab the snack from me.  A couple of times he’s almost gotten the food into his mouth!

So we need him at a baseline so I can start him on some foods, and soon!

__________

We don’t have enough meat.  I looked in the freezer last night, and we just do not have enough grass-fed beef to last until our cow is ready to butcher.  (We get one cow per year for free; we had to buy the last one because our cow was a tiny baby then, and hoped it would be ready when we were out of beef.  Not so; he still needs more time to grow.)  So we’re going to have to figure out how to afford to buy another cow here very soon.

I figure I can make it about another month, maybe month and a half – and that’s if I don’t let anyone else in the family eat any beef.

Yeah.  Like that’s going to happen!

Being broke stinks.

__________

Well, it’s Thanksgiving week, so I plan to share with you some tips on traveling with kiddos with food allergies tomorrow.  Hopefully, that’s before you leave to visit your families!

Is Vanilla Fructose Free?

That’s the million dollar question, folks!

A couple weeks ago, I was looking for a vegan muffin recipe to try out for Mr. Charm.  As a reminder, he now must avoid dairy, egg, and fructose…I have muffin recipes but they all call for large quantities of sugar, maple syrup, honey, or applesauce.  I was hoping for something a little…less fructose-y!

So, I found a basic recipe that I thought had potential (with lots of eliminations, of course!) but it called for vanilla.

“Hmm…is vanilla fructose free?” I wondered.  I didn’t know.  So I started checking out the links of fructose-free and fructose-full foods that I’ve found.

No answer.

So I googled it directly.

No answer.

But I found lots of random pages about vanilla and a few links to FructMal message boards that talked about vanilla.  It seems some people react to vanilla, and others don’t.

That’s not very helpful!

Then I read what the Food Renegade lady had to say about vanilla extract and was intrigued: did some people react to vanilla because some vanilla has corn syrup added and some doesn’t?

Hmm.  Interesting.  But sort of a moot point, because I started making my own vanilla from scratch about a year and a half ago and haven’t bought a bottle from a store since!  (Try it for yourself – you’ll never go back, I promise!)

So what I really need to know is whether the ingredients in homemade vanilla are fructose free.  That should be easy, right?  It’s just vodka and vanilla beans, after all.

Well.

Did you know that Smirnoff Vodka is made out of CORN??!?  I thought all vodka – by default – was made of potatos!  Silly me…nope.  Since we’re trying to avoid corn, all that homemade vanilla in my pantry is worthless to us, now!

I did discover a vodka from Austria made out of potato that received high reviews, but could not find a single thing about whether there was any fructose in the vodka.  (You would assume that no, there would not be.  I’ve learned to never assume anything about a processed food!!)

Since I had seemingly hit a brick wall for the moment, I decided to start investigating whether vanilla beans had fructose or not.

Again, could NOT find a straight answer!

I read one persons report on a message board saying that sometimes vanilla beans were packed in sugar, and therefore were not fructose-free.  That implies different companies handle it in different ways.

So I decided to make life easier on myself and just stopped thinking about it…until my next visit to the health food co-op.

I asked the lovely ladies there if they knew who supplied their vanilla beans.  After explaining what I hoped to learn from the supplier, the ladies at the store called to make the inquiries for me.

Their vanilla beans are NOT packed in sugar, they are NOT processed beyond picking and packaging.

So I asked the nutritionist on staff at the co-op whether vanilla is ‘safe’ for FructMal.  She said she had looked into it and could not find any source that would say whether vanilla beans had fructose, or in what quantity.  What she HAD learned was that there are several ‘vanilla flavored yoghurts’ recommended for the FODMAP’s diet (which stands for Fermentable Oligo- Di- and Monosaccharides And Polyls – Fructose is a Disaccharide, and so FODMAP’s diets are often prescribed for FructMal) and her thoughts were that those would not be recommended if they were out of bounds on fructose.

So there.

I could make myself crazy and keep pushing to find out if somehow fructose is added to a triple distilled vodka, or I could just chalk this one up to “it’s probably fine” and move on.

Which I will.

I’m crazy enough without going that far.

There is no definitive answer that I could find.  But the most well-educated hypotheses I could discern rank vanilla a “GO” food for Mr. Charm.

Guess I can make muffins now!  (Not to mention start a couple new bottles of safe vanilla!)

Have you made your own vanilla before?  

Choco-holic Charmer

When Mr. Charm turned one, I made him a dairy and egg free chocolate smush/eat cake and some homemade chocolate ice cream.

He wouldn’t eat any of it.  In fact, his face was straight up “UGH!”

Mr. Charm at his 1st Birthday Party. Look how suspicious he is of the cake!

See? “Please don’t make me eat it, Mama!”

That winter, I found a dairy free hot cocoa recipe that tasted AMAZING.

He refused again.  Even with my allergy-safe homemade marshmallows on top!

Secretly, I was ecstatic.  I LOVE chocolate.  The Geek isn’t as big a fan.

So I don’t have to share.

And with a son who doesn’t like chocolate?

I STILL don’t have to share!

<Happy dance! Happy dance!>

Alas, it appears that Mr. Charm was just…developing his taste buds.  Suddenly, the kid is a COMPLETE Chocoholic!

There was the incident the first week we were fructose free when he snuck handfuls of chocolate chips.

Then a week later, snagging at least two of the free samples of chocolate at the health food store.

Two days ago, I found him with an ENTIRE square of semi-sweet baking chocolate in his mouth!  My Mom keeps it in her fridge, on the bottom shelf of the door.

Mr. Charm can open the fridge.  And so, he helped himself!

The scariest part of this is that the baker’s chocolate has dairy solids in its ingredient list.  

How do you convince a two year old that he shouldn’t eat something because it will make him sick?  He just doesn’t understand…and it’s awful to know he’s making himself worse with all the foods I just can’t keep him from ‘sneaking’.

All I can say is, now that the Geek has picked up the dextrose for me back home, I SERIOUSLY hope that I can find a cocoa powder without inulin added that Mr. Charm can tolerate.

This kid is desperate for some chocolate snacks!  

Sigh.  Guess I’ll have to share, after all.  (One day.  Many years from now.  When we can all eat chocolate again.)

Do your kiddos sneak foods?  How do you handle it?

How Did I Ever Live In Houston?

photo courtesy of marin at http://freedigitalphotos.net

When the Geek and I met, we lived in different states.  When we decided to marry, we had to decide where we wanted to live.

It didn’t take me very long to decide that Houston was NOT where I wanted to raise my family.  It’s my hometown (we moved here when I was a baby) and I hate the weather, hate the traffic, and am terrified of the school systems in my area.

Raising my children here, when they could be raised in the country with wide open fields, cows, small-town values and room to run, play and explore seemed kind of stupid.  

So I moved.

I’ve lived in my new home for almost 4 years now, and this is one of the longest visits I’ve had back in Houston since I left.

I’ve spent half of it feeling like I am going to die.  

HOW did I live here as long as I did?  I can’t even imagine it now!  My sinuses are absolutely wonky, and my allergies are going nuts.  My eyes feel like they’re about to pop out of my head, I have a headache that pounds pounds POUNDS in my head and will not go away, my nose is simultaneously stuffed up so I can’t breathe and running profusely.

It. Is. Miserable.

When I lived in Houston, I lit up like a Christmas tree every time I did an allergic prick test.  After only a few months of living in my new home, I got my first ever “clean” allergy test – NO allergies at all!

Living in Houston, I used to buy Benadryl in bottles of 500 pills, and popped Sudafed like it was candy.  I guess THAT is how I lived here for so long.

Oh, and regular visits to the Allergist for the “Magic” shot – B12 – and some prednisone so I could breathe.

What a way to live, huh?

Right now, I can’t take anything to help.  Even if I got medicines compounded to be safe, it would still be medicines like Benadryl and Sudafed that tend to dry up your milk, and I can’t risk destroying my sons ONLY food supply just because I have the sniffles.

Even if the sniffles are of the “beat you to death with snot” and “make you want to die” variety.

Then last night, my ears started hurting.  Like, impending ear infection pain.  SO not good, especially in light of the fact that I can’t take anything, and would prefer to avoid antibiotics as the gut flora damage they cause is, I believe, a big part of why my family has so many ailments.

I remember reading somewhere in the last two years about using oil to heal infections, but I couldn’t remember WHAT the concept was…so I – once again – turned to Dr. Google!  “Healing ear infections without antibiotics” was what I searched for, and I found some interesting information about using garlic and olive oil to treat yourself.

The concept is simple: olive oil and garlic are natural antibiotics, and so you crush some garlic, put it in some olive oil and warm it, then let it get to just above body temperature and put 2-3 drops in your ear.  Wait about a minute and drain the oil out.  Repeat for the other ear.

You’re supposed to do this at least 2-3 times per day and anecdotal Mama evidence says it clears ear infections right up!

So I got my olive oil/garlic combo going, put it in my ears, and you know what?  Within 30 minutes, my ears weren’t really hurting any more.  

Thank you, God!  I’m so relieved to find something that is non-invasive, natural, and works! Try it for yourself or your kids if ear pain pops up before heading off to the doctor.  (Caveat: the advice I read online said NOT to use this on children younger than 2.  Do so at your own risk!)

Still, the olive oil and garlic doesn’t fix my pounding head or the out of whack nose, so…

I can’t WAIT to go home!

Has anyone else noticed geographic connections to environmental allergies?  What places make your head explode? Have you ever tried garlic and olive oil for an ear infection? Did it work?

My Rookie Mistake

Notice the tucked in bottom lip and the drool on the chin…

Mr. Happy has been teething.  He actually cut his second tooth last week!

Here’s the problem: he’s a rotten teether.

Mr. Charm was great – we hardly ever knew he was teething.  It was as if he thought to himself “Excruciating pain in my mouth?  Whatev!  I have people to charm and things to do!”

Mr. Happy, on the other hand, says “Pain?  MAKE IT STOP!”

And he whimpers.  And cries.  And screams.  And moans.  And refuses to be put down without a full on, ear blasting explanation of ‘why that sucks’.

Well, okay.  I have ibuprofen that I can give him. So I gave him ibuprofen.

And started noticing a really NASTY smell from his diapers.

My fellow FPIES Mama’s confirmed: stinky diapers=reaction sign.

Not good.

Except…that’s pretty much all he was doing, reaction wise.  He got a small case of eczema, but nothing too bad.  He got stinky diapers.  He got stinky breath.

That’s it.

Still, it is a reaction.  So I asked the Mama’s on the boards about it, and turns out methyl cellulose, which is the only other ingredient in our compounded ibuprofen, is often corn derived.

Corn.  Which we suspect is an issue food for Mr. Happy.  Yeah.

So the question for me is: do I let Mr. Happy suffer through acute teething pain (that makes him and everyone around him miserable) or do I give him the medicine that makes him very happy and agreeable, but is causing minute chronic damage to his system?

Why does every decision regarding my children, no matter how small, have to be fraught with so many consequences?

I’d love to be able to get back to the days of saying “Sure, why not.  It won’t kill him!”

Here’s where it gets interesting, though:

Did you ever have one of those moments where you just feel like slapping yourself on the forehead saying “Stupid, stupid, stupid!” I just had one of those last night.

I looked up yesterday and realized that uh-oh!  We were almost out of diapers.  The first chance I got to head to the store was after the kiddos were in bed, so off to the grocery store I went.  I figured that while I was there, I’d pick up more staples: grass-fed beef, organic potatos, olive oil, etc.

I decided to treat myself to something different from ground beef (which I’ve basically been eating for three meals a day – it gets old) and was looking for a pack of stew meat or steaks when suddenly my brain registered something it didn’t notice the last two times I bought the meat at this store: the meat I was picking up did not specifically say ‘grass-fed’ on the package.

No, it said “Organic, humanely treated, minimally processed, antibiotic and hormone free, fed a 100% vegetarian diet”.

As in, this might be better meat to eat, but it is still GRAINED MEAT.

How on EARTH did I make such a rookie mistake???

When we got to town last week we went straight to the store.  Mom was standing next to me, pointing to the general area where the specialty meats are kept (they also have bison, lamb, and a few other ‘oddities’) and said “Here’s where the grass-fed beef is”.

So I basically just assumed that all the meat in the case was grass-fed.  NEVER ASSUME ANYTHING!  THAT’S RULE NUMBER ONE!!!  I KNOW BETTER!!

SO…is it JUST the methyl cellulose?  Or is it the grain in the beef?  Or BOTH?  

And why do BOTH my boys have to be such sensitive reactors?  Huh?  Why must the smallest amount of their particular poisons be so immediately problematic?

OK, small rant over.  Moving on…I started reading labels and found a pack of ground beef that says “100% grass-fed” on the front and have no choice but to accept that at face value.  I bought 4 pounds of that, and headed on my merry way.  The store (HEB, for all you Texans out there) says they will accept the ‘bad’ ground beef as a return, but I overheard the girls talking and realize that they will have to ‘damage’ it out and basically throw it away.  I hate the thought of wasting such delicious and really pretty good meat, so I’ll probably just give it to my parents to eat and go buy some more grass-fed stuff for me.

Tomorrow I’m calling Colliers to get them to dry batch some ibuprofen for Mr. Happy and, with any luck, they can have it ready before the Geek has to fly down so he can bring it with him.  If not, I’ll just keep trying to make Mr. Happy build his pain tolerance by only giving him the ibuprofen at bedtime (’cause Mama would like to sleep and not be ‘moaned at’ all night long).

And for God’s sake – I’m going to start reading every single label again, even of foods I ‘know’ are safe because I don’t want another “Rookie Mistake” on my conscience!

Anyone else have a ‘rookie mistake’ moment of their own that they’d like to share?  So my readers (me) won’t feel so bad?

“In Which I Give Up”, or, “Fructose, How I Hate Thee”

The kids and I had to come down to Houston last week to take care of some family business and we are staying with my parents.

My parents are WONDERFUL about their grandchildrens’ food issues; last year, Mom and I even made the entire Thanksgiving dinner allergy-free for Mr. Charm so he and I could eat everything on the table.  It was such a joy to be able to feel ‘normal’ at a holiday dinner!

My parents have always gone out of their way to make sure my kids stay safe with foods, but we  may have finally stumped them.  

Fructose free is a b***h, let me tell you.

I’m still not even sure what is safe and what is not, so there’s no way for me to educate my parents (or anyone else) on good foods for Mr. Charm.  

Consequently, their house is an absolute MINEFIELD of unsafe foods for my son.  And there is just nothing to be done about it.  What am I going to do?  Ask them to throw away hundreds of dollars worth of foods that Mr. Charm can’t have for the short visit we’re going to be here?  The idea crossed my mind to pack away any foods that aren’t safe and store them in some other area of the house, but Mr. Charm is quite handy at doorknobs nowadays, and he’s always been a climber, so that plan wouldn’t work.

So, we’re stuck.  Mr. Charm, quick little stinker that he is, has been sneaking fructose-laden foods by the handful all week long.  We catch him, stop him, take the food away, put it on a higher shelf, blah blah blah all the good things a responsible family would do for a child who can’t have fructose should do…whatever!  He still gets fructose food several times a day and stopping him after the fact doesn’t do much good.  

Can I just say…any doubts I had about fructose malabsorption being his problem have completely dissipated this last week.

Mr. Charm has been…less than charming.

In fact, he’s been a royal pain in our heinies.

Oh, the belligerence!  The “NO’s” I’m hearing from him!  The fit pitching tantrums we’ve endured!  The downright ugliness that is his behavior is SO trying for my patience this week – I’m out of my comfort zone (my house is relatively ‘safe’, everywhere else is not), dealing with stressful financial issues, Mr. Happy has been teething like crazy (moaning, crying, whimpering, refusing to be put down, only happy on his ibuprofen – which is, I believe, causing him to have an FPIES-like reaction), and then Mr. Charm has to top it all off by being absolutely horrible to deal with.

And, of course, he’s still completely precious and adorable, even when he’s rotten.  ‘Cause that’s just what Charming Children do – make you want to scream in frustration and then ‘fix’ it all with something totally wonderful the very next second.

Sleep has become a huge challenge again, too.  He fights naps and bedtime with every trick he knows.  Once he’s down for bedtime, he’s down for the night, but naps?  Have dropped from nice, long 2 to 3 hour siestas to brief 1.5 to 2 hour breaks where he wakes up grumpy, disoriented, grouchy, and entirely out of sorts.

Oh, and he’s lost weight again.  He had finally, FINALLY gained a pound in weight after two weeks of mostly fructose-free living, and we’re back down about a pound and a half after a week of noshing on sugars.  Yip. Pee.

And need I mention – the FARTS.  I’d forgotten what FM Farts smell like.  Ugh.

The worst of it, though, is that he learned a new word: “Bread”.  And he wants to eat it.  

Bread has dairy and egg, well, at least several of the types  my parents keep around does.

Egg will freaking KILL Mr. Charm!  

Y’all, I’m going to seriously be in need of a massage/valium/bottle of vodka by the time this visit is over…my nerves are FRIED!

Sigh.  I give up.  I can’t do anything about this for the time we are in Houston.  He’s going to just do everything in his power to get foods he shouldn’t have.  I will absolutely keep him from dairy and egg, but I flat give up on the fructose.  I can’t monitor him that closely in this environment.

No, I won’t make his meals with fructose laden ingredients, but the foods he sneaks?  I’m going to have to stop sweating it over those.  Otherwise, I’ll go crazy.

One thing I’ve noticed is that he hasn’t really been eating a LOT of unsafe foods for him…about the equivalent of a large snack per day.  That’s not a lot of fructose, so he is obviously VERY sensitive to fructose.  That’s not comforting to me.

So I now get to look forward to about another 2-3 weeks of Mr. Charm-less behavior before the fructose is out of his system and we can have our even-keeled son back.

I usually love visiting my parents.  Truly.  But right now? I can’t wait to go home!

What A Shut-In Child Misses Out On

Due to our heavy food issues, our geographic isolation, and my current ‘not 100% comfortable’ level of dealing with any food I don’t make myself, my kids and I are sort of shut-ins.  

We don’t go out much, except to run errands.  They don’t go to daycare, they don’t go to pre-school, they don’t get a chance to go play with other kids very much at all.

I worry about that.

I worry that by trying to keep them healthy and, frankly, alive, I am somehow depriving them of a necessary part of development: learning to interact with other children.

Keeping them alive and healthy is important enough that I don’t fret too much about that worry, but it is there, floating in the back of my thoughts.

Well.

Last week we were in a situation where Mr. Charm got to play with other children of varying ages.

Let me tell you a little about Mr. Charm: he is the biggest communist you’ll ever meet.  He has no sense of ownership!  Everything belongs to everyone.  There is no “my toy, his toy” in his worldview.  He shares EVERYTHING with EVERYONE.  It’s really quite nice to see (though the Geek and I are politically about as far from communist/socialist as you can get!).  We all want our children to be kind and play nicely, and Mr. Charm does that naturally.  

He really is just about the sweetest, most charming little boy in the world.

So, back to our ‘other children’ playing experience.

The evening started out with Mr. Charm doing what he does: meet and greet, and try to interact.  (He’s very gregarious.)  Once the door was opened, he started playing.

This is where it got interesting.  These other children, well, several of them were, um…how to say this…freaking BRATS!  They would not share.  They would not let Mr. Charm play with toys that weren’t even theirs!  Even if they didn’t want to play with the toy, they didn’t want Mr. Charm playing with it.

This wasn’t personal to Mr. Charm – these children all did it to each other.  They would go up and take a toy from another child.  If a child did it to them, they would PUSH the child in return.

After only an hour of experiencing this, I noticed Mr. Charm taking toys from other kids.  If we had stayed longer, I’m sure I would have seen him push another child, too.

Suddenly, I wasn’t as worried about my childrens’ lack of exposure to other children.

While Mr. Charm may not pick up verbal skills and other nifty cool things from his peers, he ALSO doesn’t pick up pushing, shoving, selfishness and general meanness, either.

It’s a trade I’m willing to make.  Being a shut-in never looked so good.

To Peel, or Not To Peel

photo courtesy of Suat Eman at http://freedigitalphotos.net

We’ve seen great improvement in Mr. Charm since going fructose free.  He’s much better behaved, and his verbal development is speeding up.  Now, it seems, he wants  to communicate verbally, whereas before he was content with using his few words combined with gestures to get his points across.

We’ve also seen improvement in his poop.  But…not enough to make me really happy.  In fact, I was starting to think there was something more  wrong with him that we had missed.

So I sat down to talk it over with the Geek, and in our discussion we realized that the ONLY undigested food we are now seeing in Mr. Charm’s diapers is potato peels. 

Hmm.  We eat a lot of potatos.  About two months ago I decided that life would be easier on me if I didn’t peel all those potatos, so we’ve been eating LOTS of potato peels.

So I googled “Are potato peels hard to digest?” and the very first link that came up said yes.  It also pointed out that potato peels are high in fiber.  I remember reading on a FructMal message board that people with FM often have difficulty with high fiber foods.

Do we have an answer?  Could it be that easy?

So, I have now taken on the labor-increased task of peeling the gigantic piles of potatos we eat, so we can see if his diapers are as clean and clear of undigested food as we think they are…once they aren’t chock full of potato peels!

And IF they are nice, fully digested poops, then I will have as clear an answer as I will ever get to confirm a diagnosis of Fructose Malabsorption in Mr. Charm.

If I were in Vegas, I’d lay my odds on some gorgeous poop in Mr. Charm’s future.

Fellow FPIES/FAM/FM Mama’s, did you EVER think you’d spend so much time thinking and talking about poop in your life?

How We Buy Potatos

You may have noticed that since we’re on a dual elimination diet in our house, we eat a LOT of potatos.

So, I thought I would share with you the spoils of our latest potato buy:

There are TEN 5-lb bags in there.

What?  You DON’T buy your potatos in 50 lb bags?

We get 10% off because we buy a whole case of potatos at once.

That’s not a discount I ever thought I’d qualify for!