FAAW: We Were Robbed

One thing that many non-food allergic families don’t often understand is the way food allergies restrict your life. It’s not something you consciously think about, but occasionally it hits you in the face just HOW much your life has been changed by the existence of food allergies. For FAAW, I … Continue reading

I Still Have FPIES Eyes

Long-time readers, you’re probably bored with this post by now, but because I have received such positive feedback on it, I’m re-posting it in honor of FAAW (Food Allergy Awareness Week). Just like I did last year.  Think of this as the “It’s A Wonderful Life” of my little food … Continue reading

Food Allergy Awareness Week 2014

My return to work last week was a huge adjustment for me and my family. Trying to balance Zac’s needs with our financial needs is a tricky tightrope to walk. One very positive thing came from returning to work, though: ADVOCACY. On any given day at work, I am placed … Continue reading

FPIES Angels

It’s a common complaint in the food allergy world: people don’t get it. They don’t understand, they don’t help, they don’t care. That is true in a lot of cases, but one of the greatest joys of food allergic living is when you encounter the opposite. You’re going about your … Continue reading

How to Help FPIES Families Without Giving A Dime

Before I get started with today’s post, I have a small update on Zac. When I shared the wonderful success of the egg trial, I gave a great big shout-out to the fact that we haven’t had any accidental ingestions through the whole first week. I spoke too soon. Yesterday … Continue reading

Are You An FPIES Mama?

Recently I met a new FPIES mama, and talking with her about her overwhelming journey into the world of FPIES prompted me to start re-reading my own story from the beginning. When I got to my post from September 4, 2012, I laughed out loud. I’m amazed that I wrote … Continue reading

The Secret Worry of Rare Disease Parents

This is something that has been on my mind for a long time, but I’ve held off writing about it because…well, it’s hard to write about. Parents, by design, have to live with a certain degree of worry. We worry about little things, like whether our child is developing on … Continue reading

How Living With A Rare Disease Kept Me From Participating in Rare Disease Day 2014

Today is Rare Disease Day. It’s kind of a big deal in my circles; a day to raise awareness for all people who live with a condition that is little known and little understood. I had some plans, y’all! There were things I was going to do today to celebrate … Continue reading

Rolling Hills Traeger Ranch

When it came time to consider another meat trial for Zac, I admit to being at a bit of a loss. My awesome lamb guy only raises lambs. We’re pretty confident chicken (so probably turkey and other poultry) is a trigger, so we didn’t want to go there. Game meats … Continue reading

Pocket Change for Michael

Last year I wrote about FPIES children with no safe foods. The story that had caught my attention enough to write that post was the story of Jennifer and her son Michael. At the time, they were just a family I had heard about and felt heartbroken for. Over the … Continue reading