I’ve said before how Jed can’t have cooked tomatos because of his fructose malabsorption. We’ve avoided ketchup ever since. This is sad for us, because ketchup is one of our favorite condiments. One day last week I made spaghetti for dinner. I got busy and didn’t take it off the … Continue reading →
Earlier this week I felt energetic at breakfast and whipped up some homemade sausage patties and from scratch waffles for Jed. As the first batch of waffles cooked in the iron, I headed to the fridge to get the maple syrup. To my shock, I discovered that we’d run out! … Continue reading →
When Jed was a little baby and first got his MSPI and egg IgE diagnosis, I went through every item in my pantry reading labels. Tons of food had to be disposed of, but there were things that were technically safe that we could keep. However, as time went on, … Continue reading →
Jed, as you may know, has fructose malabsorption. Trying to find foods that are safe for him is quite a challenge – particularly things like sausages, hot dogs, bacon…and condiments. All of those things are typically chock-full of fructose, not to mention fun things like “natural flavors” and “seasonings”. We … Continue reading →
I have a toddler who has lately been refusing to go to sleep at night. He also refuses to play happily in the living room during the time between when his brother goes to sleep and when he is finally ready to go to sleep. So I’ve been forced to … Continue reading →
One fabulous side benefit of having a fun-filled weekend away from home is two small children whose sleep schedules are completely thrown off! Children who don’t go to sleep until nearly midnight don’t leave their mama a lot of time to write coherently, after all. I decided it was kinder … Continue reading →
Pre-FPIES and pre-fructmal, one of the most delicious creations to come from my kitchen was my vegan banana bread. ALL of us loved this bread! It was flavorful, sweet but not too sweet, moist, and all but melted in your mouth. It was still substantial enough to also withstand being … Continue reading →
After 19 months of eating nothing but beef on my TED, I’ve made a lot of hamburgers. A LOT. So many, you’d think I would be sick of them by now. I’m not, though, because I discovered the true secret to making sensational hamburgers! If you browse online, you’ll find … Continue reading →
And I do mean from scratch! I’m talking raw seeds to creamy sunbutter here. For those of you just joining me on this journey, let me fill you in on why I’m going through this ordeal. My son, Zac, is severely reactive to corn and soy. I have hunted and … Continue reading →
Well, I underestimated how much time and effort would be needed to complete my BIG SURPRISE PROJECT (kids, anyone?), and it’s not quite ready yet. Sigh. Soon, I promise! In the meantime, how’d you like some refried beans? Sure, you can go to the store and buy a can (even … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)