A week and a half ago I got hurt at work. Again. Only this time it’s my right hand. You know, my dominant one. The one that allows me to do everything I do. I missed 5 days of work already this month and have to go to the doctor … Continue reading →
Since its been so long since I’ve written, a little “catch up” post seems in order. Jed and Zac have both been in Occupational Therapy for their Sensory Processing Disorders for most of the year. The benefits have been amazing! My children are blooming, and I couldn’t be more thrilled. … Continue reading →
It’s been a long time since I’ve written here. A LONG time. Before I start posting more frequently again, I feel I owe an explanation to my regular readers (and those of you who are still around after this long hiatus, thank you!). This will also serve as a sort … Continue reading →
February was a dark time for me. The diagnosis of Autism really rocked my world. Not Jed’s diagnosis, but my unofficial diagnosis. Maybe that sounds strange, but it’s undeniable that I accepted Jed 100% as-is and had no fear whatsoever about his future, while simultaneously struggling to accept the same diagnosis … Continue reading →
Sharing about the autism diagnosis for my family was scary for me. I clearly had nothing to fear; I am completely blown away by the HUGE outpouring of support you all gave my family and myself! It’s going to take me days (maybe weeks!) to investigate all the books, websites, … Continue reading →
When we left the doctor’s office three weeks ago, he sent home 9 tests for us (parents and grandparents) to fill out. I returned them 5 working days later. Our follow-up appointment was not scheduled until February, but to our surprise, we were called late one afternoon last week and … Continue reading →
This post has taken over two weeks to write. It started as a place for me to just “brain dump” my feelings about Jed’s SPD evaluation, but then I tried to work those brain dump thoughts into a post to share. I succeeded, somewhat, but it was still a grammar … Continue reading →
So far 2016 has made me yearn with longing for the return of 2015. And 2015 was a really rough year for us. Go, 2016! The sad part is, the New Year started off great! I had to work that weekend, but I picked up a nifty 30+ hour layover … Continue reading →
I hope you all had a really excellent Christmas! It’s almost the end of 2015, and I figured it would be good to do a little “year end recap” and update. For starters, I’ve been rather quiet on the blog front lately, but that’s actually because I’ve been writing furiously … Continue reading →
Thanksgiving did turn out to be delayed for us; Darrel was still feeling miserable from his sickness so we postponed our family gathering. Based on how Darrel felt, we really should have waited even longer, but he thought he would feel well enough to have Thanksgiving on Friday so we … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!