We have some good news: sweet potatos and cauliflower are still safe! Yay, Zac! They’re even still safe for me! Once again, I’m having to learn all about a new food issue…salicylates are throwing me for a loop. Remember when I ate the sweet potato and had an instant reaction? … Continue reading →
It’s Thursday. I don’t know if anyone has realized that ever since the summer ended, I’m at a loss for what to write about on Thursdays. Thursday meant another edition of the “Brown Thumb Gardener” series; now that summer has ended and I’m not doing any gardening, I’m sort of lost. Anyone … Continue reading →
As prayed for, last week was much better than the week before. Both kids stayed safely on their respective diets, and reactions faded slowly away. I worked for much of the time, which was exhausting (as usual), but everything plodded along quite well while I was gone. When I returned … Continue reading →
Yesterday’s recipe was a surprise to me. I wrote it and scheduled to post it last week – and forgot all about it! Just to give a little update, things are better. First, I want to thank you all for your concern, prayers, and insight. After the last post, I … Continue reading →
It was another long night with Zac. At the end of yesterdays post I wrote about Zac’s sudden weird eye swelling late Sunday night/early Monday morning. So yesterday I spent a TON of hours on the phone with pharmacists and doctors. Both boys are now scheduled to see the allergist … Continue reading →
All FPIES parents eventually have to ask themselves the all-important question: What do we trial next? It’s an important, vexxing, terrifying question. Early on, Darrel and I came up with a list of foods we wanted to trial. We picked highly nutritious food to get the most bang for our … Continue reading →
Hope you had a fabulous Labor Day weekend! I took the day off from blogging because I was working. That’s okay, though! Other than suddenly being required to be at work a little more than I’d like, my family and I are flying high! (At least, for the moment.) As … Continue reading →
More frequently than I’d like to see, new parents post on the FPIES message boards. It’s almost always the same basic introduction message: “My child was just diagnosed. I feel completely overwhelmed! What do I do now?!” Every single time, the first piece of advice given is to start a food and … Continue reading →
When I got home from work, it was almost midnight on Sunday. Monday evening, I went out to say “hi” to my garden, and my purple podded pole beans looked beautiful! They finally had some little buds on them. Last night, while watering the garden, I looked at my beans … Continue reading →
Last Thursday I walked into the health food co-op and saw a gigantic display of Apricots. They had just gotten them in, and told me they should continue to receive them for the next couple of months. Apricots are on my short list of foods to trial next for Zac, … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!
Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)