Since its been so long since I’ve written, a little “catch up” post seems in order. Jed and Zac have both been in Occupational Therapy for their Sensory Processing Disorders for most of the year. The benefits have been amazing! My children are blooming, and I couldn’t be more thrilled. … Continue reading →
Thanksgiving is upon us again, and I honestly have nothing new to share this year. At least Jed and I have picked up a small dose of the cooties Darrel has now, so it’s very possible Thanksgiving for our family won’t happen this Thursday. My parents would rather we not bring … Continue reading →
It’s been a rough few weeks. In fact, there’s been so much happening that I can’t fit it all in one post, so this will be a nifty “ongoing storyline”. To begin, we do have some exciting news! October 30th, I arrived home from work in the early afternoon. As soon as I … Continue reading →
I wish food issues played no part in our decision to homeschool. I wish food issues were a non-issue in a multitude of places, but sadly, that is not so. When you have children with food allergies, considering their safety when outside of your care is a matter of life … Continue reading →
One year ago this month I went back to work full time. Prior to that, I was essentially a full-time SAHM. With two years as a SAHM and one year as a working Mama, I can now see how each situation changes my parenting in general, and how each influences my ability … Continue reading →
With all this updating going on, I’ve been mostly talking about Zac. Jed, however, has not been idle this whole time! He’s had lots of stuff going on in his life. Most of it, though, has to do with leaving the confines of our home, so it’s a good time … Continue reading →
Today I have something special to share: a guest post written by my Mom! I often hear food issue families lamenting the lack of support they receive from friends and extended family, so I thought it would be interesting to hear what supporting a food issue family looks and feels … Continue reading →
The last post I wrote shared how grateful I feel for our little “not normal” lives. I was. I am. But, you know, the reality is that no one can sustain any feeling on a 24/7 basis. Not even gratitude for the blessings you have. Last week was an absolute … Continue reading →
I wish we were normal. I wish we didn’t have so many food issues. I wish I were still obese and could feed my kids without thinking. I wish my kids could throw up and I didn’t have to analyze every aspect of their lives to determine the cause. I … Continue reading →
It’s exactly one week from Thanksgiving. While most normal people are looking forward to a three day workweek, tryptophan overload, and Black Friday sales, food allergic families are quietly (or not so quietly) panicking over the thought of The Big Feast. When you deal with food allergies and/or food intolerances, … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!