All FPIES parents eventually have to ask themselves the all-important question: What do we trial next? It’s an important, vexxing, terrifying question. Early on, Darrel and I came up with a list of foods we wanted to trial. We picked highly nutritious food to get the most bang for our … Continue reading →
Hope you had a fabulous Labor Day weekend! I took the day off from blogging because I was working. That’s okay, though! Other than suddenly being required to be at work a little more than I’d like, my family and I are flying high! (At least, for the moment.) As … Continue reading →
This weekend, Zac reached another milestone: sweet potatos are safe!! I. Am. Ecstatic! Sweet potatos are SO yummy and nutritious! After slightly over a week of sweet potatos, Zac’s weekly weigh in was a stupendous 28 pounds!! Plus, this week he’s done his usual “new food developmental leap”. He’s trying … Continue reading →
More frequently than I’d like to see, new parents post on the FPIES message boards. It’s almost always the same basic introduction message: “My child was just diagnosed. I feel completely overwhelmed! What do I do now?!” Every single time, the first piece of advice given is to start a food and … Continue reading →
Over the last two years I’ve spent a lot of time on message boards for FPIES families. A LOT of time. As a result, there are many FPIES families I consider “friends”, even though we’ve never met in person and, to be honest, probably never will. One of those families, … Continue reading →
When I got home from work, it was almost midnight on Sunday. Monday evening, I went out to say “hi” to my garden, and my purple podded pole beans looked beautiful! They finally had some little buds on them. Last night, while watering the garden, I looked at my beans … Continue reading →
Last Wednesday was my birthday, and I spent it flying home from work and doing another goat milk run once home. Then I passed out at 8:45pm. I know. I’m such a party animal! That day was also the first day of the apricot trial break. Zac has been having … Continue reading →
For the last 22 months I have been sugar-free. That wasn’t intentional, it was an accidental by-product of the TED I went on for Zac’s FPIES. But still. The only sugars I’ve had this whole time were the ones my body created from the potatos I eat. When bananas became a … Continue reading →
Last week we trialed asparagus on Jed. Thanks to the accidental lollipop ingestion the next day, I wasn’t able to get a good “read” on whether asparagus was safe or not. So I decided to try it again this week. I’ve also been seeking out safe bacon for him. I … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
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Thanks for stopping by! My name is Carrie. This is where I talk about all things FPIES, Fructose Malabsorption, Food Allergies, Real Food, Recipes, and MCAD. Click on the photo for more on my family and what this blog is about, and thank you for visiting! Be sure to subscribe so you never miss a recipe! (Don't worry, your email is safe with me.)